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Ulcerative Colitis
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Posted 11/9/2007 7:44 AM (GMT -7)

Any body use Lialda?  I saw a new Gi yesterday and he switched me from Colazal to this.  Colazal apparently stopped working for me.  I like the fact that it is only 2 pills once per day instead of 3 /3 times day.

 

Any feedback would be appreciated

 

Thanks

Bluechipguy

Posted 11/9/2007 7:53 AM (GMT -7)
I liked the only 2 pills per day - but I was the less than one percent that had an allergic reaction to it.

Hope it works for you.
Posted 11/9/2007 11:09 AM (GMT -7)
I take Lialda. I was in a horrible flare up about 2 weeks ago and I couldn't keep anything down. I had always sorta been in a flare though because my symptoms were never cured since I got diagnosed. The only med I had been on was Colazal. When I went in to the dr to get help he said to try Lialda and put me on pred.

I LOVE LOVE LOVE taking my pills in the morning and not having to worry about it for the rest of the day. And I really do believe it's working for me too. I can't tell you how much of a relief it is to be able to say I'm going somewhere and not think...and I might come back before I even get there.
Posted 11/9/2007 11:35 AM (GMT -7)

I've been on asacol, colazol, and dipentum and they never did enough for me--I couldn't fully get into remission unless I was also using cortisone enemas.  I was somewhat better, but I thought it was the best I could hope for when I had a bad reaction to immunosuppressants.  As a last shot before going on imuran or remicade, my doctor prescribed Lialda.  I've been on 3 pills in the morning for the past 3 weeks and I'm loving it. Works great.  This is the best I've felt so far.  The only negative so far is that I do get a little non-smelly gas in the afternoon, but at least it's not the wet kind anymore that I have to worry about dirtying myself.  

My doctor said it's a weird thing.  Although they are all the same, they have different delivery and release systems.  He has patients who do lousy on one and great on others even though they are the same mesalamine drug.  This particular drug releases very slowly and coats the entire colon. I'm keeping my fingers crossed that this good feeling continues and I can eventually try to go on the normal dose of 2 a day.  If two pills doesn't work --you can take up to 4 pills in the morning-which is what he originally wanted to put me on.

Posted 11/9/2007 12:40 PM (GMT -7)

thanks, guys, that is good to hear.  I should say that I started 20 mg of pred 2 weeks ago, and it seemd to work great at first.  I was in a 6 month flare, with every single day symptoms.  I had 2 horrible days out of 12 since starting the pred, which is a big improvement.  This 2 pills of lialda is awesome, instead of taking 3 in the morning, trying to rememebr 3 after lunch , and 3 at dinner.  Myu GI told me the same thing about how each pill delivers differently

I do have to go back on Rowasa enamas, though, which are a pain, but I guess it is better for me that pred long term

Bluechipguy

Posted 11/10/2007 2:36 AM (GMT -7)
I have been on Lialda since I was diagnosed, I take one a day. I am experiencing a flare up right now and was put on Rowasa. Lialda worked great and has kept me symptom free for 4 months. I like Lialda, I have mild UC so I am not used to flaring, it sucks let me tell you. Oh, the blood alone irks me, yes, it sucks. Its good to know people are using Lialda and having success with it, keep up with your experiences, I will update here when I go back into remission which is soon I hope Rowasa seems to be working...I think.
Posted 11/10/2007 4:55 PM (GMT -7)
I've been on Lialda about a month now. Still in a flare. Remi stopped working for me after the first two infusions, the 3rd just never kicked in. Which really sucked as after the first two worked their miracle I was in heaven. Just added Entorcort EC to the med mix, I take a gazillion pills in the morning, but then I don't have to sweat pills for the rest of the day. Unless I was on a rather high dose of Prednisone I haven't been able to maintain a remission since diagnosis. GI says if I don't get some relief now that he's added the Entocort he wants to 'scope me and see what's going on exactly. Ugh.

I do know that bad as thing are, when I was on Colazal I was taken off it for a couple of weeks and things got so much worse, so I guess these drugs are helping somewhat if not getting me into a full remission.

Meesh
Posted 11/13/2007 3:18 AM (GMT -7)
i tried taking lialda daily and it made me feel terrible and tripled my bms, but it really reduced th ebleeding and mucus....

then i found out that if i took it only on the onset of flare symptoms it would have an instant response but only help for two days.

next i was taking psyllium and lialda, which turned out to be a pretty good combination for me. i was newvous about taking th epsyllium based on what i had read online but my girlfriend came home with it one day so i tried it. it scoured me out good so i started taking lialda to reduce inflammation before taking the psyllium. this had been my best treatment so far. even though it absorbs and masks most of the blood, it is so relieving to look down and be able to see through the water

maybe one day ill experience remission.. its like a mirage in the desert you think youre getting there then you smack into a cactus
Posted 11/13/2007 8:34 AM (GMT -7)
I just stared Lialda about 3 days ago.  But since then it seems my symtoms have become worse to a degree.  Hope it's not the Lialda! 

Posted 11/13/2007 10:31 AM (GMT -7)
I take 4 a day and it helped maybe 2% with my symptoms. I hope it works wonders for you though. Maybe that MMX technology (don't ask me what that means :P ) will work for you!!!
Posted 11/13/2007 10:36 AM (GMT -7)
The Shire reps we met with the other day explained the MMX technology, though I forget exactly what they said.  It deals with the mesalamine being encased in a gel substance.  Part of it is released by contacting water in the colon, and the rest is released by contacting fat in the colon.  If anyone else that was with me at that time can remember more details about what they said in referance to the MMX, feel free to more thoroughly explain it.  It's this new releasing mechanism that got me to start trying Lialda the other day.  I always thought it was almost the same as Asacol, though it's not.  Same medication inside, but differrent way of being released.  This allows it to reach further down into the colon, which many of us need.
Posted 12/3/2007 9:35 PM (GMT -7)
I just started this Lialda 3 wks ago at first it tripled my bms it was terrible but i stuck it out and took a gas pill with it which really helped. I think its helping but not real sure yet i just statred 40mg of predisone, could be that working also. Nurse 42
Posted 12/4/2007 7:17 AM (GMT -7)
I wanted to try Lialda but it was going to be $100 a month for me so I can't afford it :(
Posted 12/4/2007 7:33 AM (GMT -7)
ediekristen, go to rxassist.org to find contact information for Shire, the manufacturer of Lialda.  There you can find out if you qualify for assistance from them to obtain Lialda at little or no cost to you.  I just applied yesterday and qualified.
Posted 12/4/2007 8:38 AM (GMT -7)

UCreallySUCKS said...
ediekristen, go to rxassist.org to find contact information for Shire, the manufacturer of Lialda.  There you can find out if you qualify for assistance from them to obtain Lialda at little or no cost to you.  I just applied yesterday and qualified.

It looks like I wouldn't be eligible with them since I do have prescription coverage, and Lialda IS covered, just not by much I guess. I hadn't heard of that website before though, thank you! I will definitely keep that bookmarked for the future as I'm sure I will need it some day.
Posted 12/4/2007 9:11 AM (GMT -7)

I just got a letter from my insurance yesterday that starting January 1st, Lialda is going to be considered a third tier medication--meaning the highest they can charge me for a prescription because there are other less expensive substitutes asacol, colazol.  But the Lialda was the only one that works for me!  First tier=generic, 2nd tier=medication with no generic, and third=medication that has a generic or lower substitute but you choose to take the original.  I'm mad because it isn't the same with the delivery system considered--I believe it makes a big difference to me.

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