so stinking tired!

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gela
Regular Member


Date Joined Jun 2005
Total Posts : 133
   Posted 11/9/2007 12:35 PM (GMT -7)   
i have had the b-12 deficiency test run and am normal.  i know when my uc is flaring i am tired constantly, but this is ridiculous!  i could barely get out of bed this morning and am getting 9 hours of sleep!  what do you do for energy?
i can't take a nap after work b/c i have 2 youngins at home with me.
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 11/9/2007 12:43 PM (GMT -7)   
I'm in the same boat except for the fact that I haven't gotten back to the dr to take blood tests to see if I'm with normal levels or not. My husband is set on thinking that I just don't wanna get outta bed, but I really CAN'T! I'm just exhausted all of the time now. It started right after a horrible flare and starting pred and lialda. Even if I sleep all night.. 9 hours even more... I am just exhausted... I will go to work and by the end of it I can barely move. I get so cranky cuz I just don't want to deal with anything.
Diagnosed with UC March 07
 
Medications: Colazal 3 3x a day
                  Prednisone- 40mg
                  Lialda- 2 a day


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 11/9/2007 1:10 PM (GMT -7)   
I'm tired all the time too (Flare or no flare). I started working out consistently a few months ago (my son started preschool so I finally have time). Anyway I go 4 times a week and I swear it is really helping. I'm still tired but I think it is better. Do you take a mutivitamin?
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 11/9/2007 1:23 PM (GMT -7)   
I think exercise helps me well.

I know I sound like a broken record, but why not try cutting out sugars (cakes, sodas, fruit juices, candy, etc.), breads and milk for a while...it helped me regain most of my energy, I can at least function and do things now.

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
 


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 11/9/2007 3:27 PM (GMT -7)   
why are fruit juices bad... i stay away from sodas candy cake and all that stuff... but why fruit juice?
Diagnosed with UC March 07
 
Medications: Colazal 3 3x a day
                  Prednisone- 40mg
                  Lialda- 2 a day


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 11/9/2007 4:39 PM (GMT -7)   
I hear ya! It seems all I do is work and then lay on the couch and doze until my husband wakes me up to go bed, where I fall right back to sleep. I just had blood drawn yesterday and my GI is doing tests for vitamin deficiiencies, anemia, thyroid, you name it, he's testing for it. I should know by Tuesday. For the past two months he kept insisting it's due to stress and depression but I was like, the darn UC is the only thing stressing me out because I can't effing function anymore. I begged him to get to the root of the fatigue and rule out something "real" before declaring it stress and depression.

I miss the gym but I just can't push myself through even a gentle work out. If my stomach gives me a break from running to the bathroom I try to take my dogs for a good brisk walk at least.

Meesh
Diagnosed UC April 27, 2006
Remicade: 1st infusion 7/21/07; 2nd infusion 8/18/07; 3rd infusion 10/13/07
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, holding taper at alt. 5/0 mg; 9 mg Entocourt EC; Xanax as needd; Lexipro, Rowesa; Asacol; Colazal three 750 mg capsules 3X day;
[2/22/07 started Imuran, off within two weeks due to bad reaction]


Wiped Out
Regular Member


Date Joined Jun 2007
Total Posts : 71
   Posted 11/9/2007 8:11 PM (GMT -7)   
I went through about a year of anemia before testing and put on iron.  I'm out of the anemic stage now, about 15 hem., but still have bouts of extreme fatigue.  I went low carb a couple of months ago.  Although I have lost 20 lbs., I still don't feel on top of things at all.  Mornings are just awful.  I'm so sore all over, I go to the half bath and take two Excedrin and lay back down knowing I'll feel better in a few minutes.  It takes most of the morning counting meds, BM,s, before I can start to function.  It's frustrating knowing something is wrong without being able to do anything about it.  Whatever I do does'nt seem to make much difference.  I've had to use Canasa the last few nights for what appears to be a flareup on the bottom.  I used to work out on my elliptical trainer.  Now I don't think I could get it out of the spare bedroom.

 
Left-sided UC Diagnosed 2004
Iron Deficiency Anemia Diagnosed 2007
Indeterminate Dysplasia Biopsy Result 2006   
Colazal  -  3X3 daily 
Entocort - 3 daily
Nexium
Folic Acid 
Ferrous Sulfate - 325 mg X3 daily
Vitamin C - 500 mg 
Canasa - As Needed
 
 
 
 

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