its all so different for everyone with the whole food thing. dont eat what really hurts.. its all trial and error.
but if its any help at all, this whole year long flare, i was running to the toilet 13-23 times a day. nights are worse.
and there has been pain the whole time. ive been on oxycontins since march for the pain.
i don't think it has anything to do with actual food or eating. I think its just the disease. u go and go and go and go like the freakin energizer bunner.
man i wish my toilet had handle bars. lol
i FINALLLY, for the last 3 weeks have had no colitis symptoms (since the 7 day hospital stay) and the last 2 days there has been blood and cramping. not a lot, but enough to make me a little depressed since i was going so good. but i am going to say that i hope it is cuz of the poppy seed bagels i ate the last 2 days. its the only thing i did different and the time coincides.. so im hoping that is what aggrivated my tender colon. please please cross your fingers that its not getting worse after doing so well.... so i guess SEEDS ARE BAD for me.
31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..
this current year long flare is now severe on left side only.
just got out of hospital with 200mg of hydrocortisone injections a day
50mg prednisone 1x 8am
50mg imuran 1x 8pm
2x 500mg mesalazine 2x day + night
2.5mg endone (oxycontin) every 4-6 hours for pain
VSL#3 didnt work
Aloe Elite didnt work
Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww