prednisone = zombified

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kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/9/2007 11:57 PM (GMT -7)   
well... im still on the prednisone.  50mg a day for 3 weeks now and another 3 weeks to go before i taper off.
 
and i feel like a pile of crapola!
 
does anyone else have these issues with prednisone?  or is it something else that is making me feel like this??
 
i feel like im in a bubble or something.  like a robot going through the motions.
food tastes a little bit off..
im moody as all hell.  and getting mean.  i anger easily and snap at my husband all the time (poor guy)..
im tired and listless..
oh, and did i mention that if i dont take a sleeping pill im awake all night thru to morning and all day. i didnt sleep for a whole week after i got out of the hospital..
i feel down in the dumps kinda... almost depressed but not "depressed"... just not with it i guess.
i have a general unwell feeling and i guess you can say i just feel "off"..
im not getting puffy or putting on any weight.  i need to cuz im way too skinny now. 
 
so?
is it the prednisone/steroids or am i just ##$%^&
 
anyone else have any input into this that might give me some reassurance that im not gonna permanently be like this?
 
31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..
this current year long flare is now severe on left side only.
just got out of hospital with 200mg of hydrocortisone injections a day
 
50mg prednisone 1x  8am
50mg imuran 1x  8pm
2x 500mg mesalazine 2x day + night
2.5mg endone (oxycontin) every 4-6 hours for pain
VSL#3 didnt work
Aloe Elite didnt work
Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 


Knitty_Cat
Regular Member


Date Joined Jun 2006
Total Posts : 105
   Posted 11/10/2007 1:19 AM (GMT -7)   
Hi Kazygirl

I think it's the pred causing all of your current troubles. I experienced most of the things you are when I was on the sort of dose you are. I was really moody - could go from really euphoric to mean in an instance. I'm a really calm person normally but did snap at people when I was on pred. Didn't sleep much. I also felt really down sometimes, like I was hopeless and nothing was going right - which again is really nothing like me normally. Those feelings used to hit me hardest in the morning for the couple of hours before I was due for my next pred tablet.

The only thing I didn't experience was food tasting a little off - I had a great appetite from the pred and had to be careful with what I was eating. Still gained weight though.

All I can say is hang in there and try to realise that all this crap is from the pred and will clear up as you taper down and get off the pred. If you feel angry or sad or whatever, try to tell yourself that it is likely the pred and things will get better. Perhaps also explain this to your husband so that he knows it is the pred talking!

When did you start the Imuran? If you are new to it then hopefully it will have well and truly kicked in by the time you taper off the pred. Another thing to consider is learning about rectal meds so that you have a few other options for future flares and don't have to hit the high doses of pred again. If your current flare is affecting just your left side then rectal meds can help a lot and help you avoid going through this again.

You'll get through this and feel better - I promise!

Best wishes.
UC since 2001, diagnosed May 2005
Salofalk tablets (Asacol) 2 tablets 4 times daily (4gm total) for maintenance, Salofalk enemas and/or Colifoam for flares
Oat bran 60grams daily, Metamuscil and multivitamins


Currently using Colifoam (steroid foam) nightly to clear up a stubborn flare.


icanrace
Regular Member


Date Joined Sep 2007
Total Posts : 221
   Posted 11/10/2007 6:13 AM (GMT -7)   
I'm going to be honest with you but Prednisone makes me feel good.
I eat well, have a good sense of well being, full of energy, great focus etc. It makes it difficult for me to sleep at night & it makes my joints hurt. Those are really my only complaints about it..............................well other than the fact it's Prednisone.
Hope you start feeling better
updated medication schedule coming on 11-2-07

started Prednisone & Asacol on Thursday 10-4-2007

10-22-07- coming out of about an 8 week flare (my first one ever)


tabitha m
Regular Member


Date Joined May 2007
Total Posts : 139
   Posted 11/10/2007 6:34 AM (GMT -7)   
 Reading your story was like reading how i have been this year , although luckily my flare lasted 6 months and touch wood i feel great now .
 
Felt just like you on Pred, first of all i thought it was withdrawel from the massive amounts i had been having in hospital , but my blood sugar level had gone so low due to not eating for god knows how many weeks and then living on hospital food , which was lovely but just no added sugar , the hospital advised me to eat a small amount of chocolate and coke ( remember i was in remission so had no qualms about eating that much sugar)
 
Well, after about 20 minutes or so of scoffing a glaxay and a glass of coke i could feel myself ' lifting' almost . My brain seemed to kick into gear for the first time in weeks and that bubble foggy feeling started to disappear .
 
This may be of no help to you at all but just wanted to pass it on.
 
I really hope you feel better soon , it certainly is a horrible feeling .
 
Tab x
Diagnosed Proctitis 2003
leaped to Pancolitis May 2007
bye bye Pred (fingerscrossed )!
2000mg pentasa a day
omega 3
Allergic to Sulphalizine
In remission since june
Multivitamin and calcium supplement
 
 


Delarge
Regular Member


Date Joined Mar 2007
Total Posts : 157
   Posted 11/10/2007 10:36 AM (GMT -7)   
Prednisone is likely to be the culprit.

happydays
Regular Member


Date Joined Sep 2007
Total Posts : 69
   Posted 11/10/2007 8:06 PM (GMT -7)   
Hi krazygirl,


Sorry to hear about the bad side of pred. for you but i really understand. I also have the same side affects except my spine hurts and my muscules and bones. So good lucky and remember that it's NOT you.
Mild case of UC~04   Left Side Colitis~ 05-06  Pancolitis~ 07
 
6-mp 50mg ~ 1 pill a day ~~ Mesalamine 4mg ~ 2 a day ~~ Iron 325mg ~ 1 a day
Prednisone ~ 40 mg For 2 Weeks then tapper by 5mg ~~ Asacol 400mg ~ 8 pills a day
Bella Alk/PB 16.2mg ~ 8 pills a day ~ Lexapro 20mg ~ 1 a day ~ Birthcontrol ~ 1 a day
 
Doctor Says If This Dosen't Work ~ Remicaid Next ~~~ If That Doesn't Work ~Surgery.  
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 11/10/2007 8:17 PM (GMT -7)   
Hi Kazy,

Pred made/makes me cry, be moody, cranky, shaky, leg cramps, feet cramps, hot flashes, night sweats, not all of them every day but have had all of these and some of them more frequently than others. Princesa recommended a book called coping w/Prednisone (search the threads) and the book made me feel normal as normal as being on pred can be.

I have also had a few, crawling out of my skin days (meaning I am just annoying myself and can't shake the pissy mood I am in). Also, I think the side effects were worse for me the first month when I was on 60mg a day, second month 60 / 40 alternating and going into my third month on the 60/40. I think I kind of learned how to deal w/some of the side effects a little better, the first month or two was a real shocker to my system, plus I was flaring really bad and upset about that at the same time too and also anemic from that as well.

so sorry you are having pred problems..........oh and I just got the moonface in the past week (too much salt on my part!).

B.
Beth, 32
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 150mg 1xday nightly;Remicade tests pending;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 2xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/10/2007 10:04 PM (GMT -7)   
thanks for all the feedback.. its good to know that its not me and just the stupid meds. i feel really bad for those who have been on this stuff for years and years. i am having trouble after just 3 weeks.

i've gotten the munchies lately and just want to eat all the time.
and i sweat at night in bed too. that is the pred isnt it?

i'll check out the book. thanks again
31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only.
**3 weeks out of hospital/no colitis symptoms... normal bm's only 1x a day + no blood
50mg prednisone 1x  with lunch or breakfast
50mg imuran 1x  8pm stopped it to try and have a baby
2x 500mg mesalazine 2x day + night
VSL#3 didnt work
Aloe Elite didnt work
Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 


Knitty_Cat
Regular Member


Date Joined Jun 2006
Total Posts : 105
   Posted 11/10/2007 10:09 PM (GMT -7)   
Munchies and night sweats are also classic pred side effects :-(

Sounds like you need to gain weight back so hopefully the munchies will help you do that. Just try to munch on good food rather than junk.
UC since 2001, diagnosed May 2005
Salofalk tablets (Asacol) 2 tablets 4 times daily (4gm total) for maintenance, Salofalk enemas and/or Colifoam for flares
Oat bran 60grams daily, Metamuscil and multivitamins


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 11/10/2007 10:10 PM (GMT -7)   
pred has made my stomach feel great but im all cranky and exhausted all the time and i feel stupid sometimes lol
Kara, 20
Stomach problems whole life.. on and off. Could never figure out what it was or why it was going on. about 1yr and 1/2 ago I went to the dr. cuz I was running to the bathroom and it was ruining my life..He referred me to a GI.
After tons of testing and diff. GIs. I had a colonoscopy and it came back as IBD either Crohns or UC... they couldn't decide. I took a dye test and they ruled it as UC b/c they said Crohns always comes up and it didn't. ~Finally diagnosed with UC March 07
Medications:Colazal 3 3x a day
10/30/07 Prednisone- 40mg and Lialda- 2 a day both in the morning one time only. Haven't started tapering yet.


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/11/2007 10:18 PM (GMT -7)   
i regrettably have to say that im so into the junk food at the moment with these munchies. i just made chocolate chip cookies... yummy.
i do eat fruit tho as well. sometimes it hurts tho.

im getting the night sweats as well now. and today im just so down and i could just cry for no reason (which is unnormal for me). im sick of feeling like crap from this pred. i feel so bad for those who are on it for years. i couldnt do it. i almost would rather go to the loo 100 times than feel like this all day every day.

but the last few days, my tummy hurts. does prednisone cause tummy aches? not the normal UC cramping that I have... its another kind of uncomfortableness in my whole belly area. constantly. like a heavy achy feeling. i can feel my insides, constantly aware of my organs or something. hard to explain.

hmm, what do you think?
31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only.
**3 weeks out of hospital/no colitis symptoms... normal bm's only 1x a day + no blood
50mg prednisone 1x  with lunch or breakfast
50mg imuran 1x  8pm stopped it to try and have a baby
2x 500mg mesalazine 2x day + night
VSL#3 didnt work
Aloe Elite didnt work
Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 


follyism
Regular Member


Date Joined Aug 2006
Total Posts : 157
   Posted 11/11/2007 11:08 PM (GMT -7)   
Hi Kazygirl,

Are you taking the prednisone with food? I've found that if you are taking it without some sort of food in your stomach it never works out good. I have this ritual of getting up in the morning and eating a cup of yogurt to take along with the prednisone. My whole refrigerator is filled with yogurts!
All theory, dear friend, is gray, but the golden tree of life springs ever green.

--Johann Wolfgang von Goethe
 
Michael
25/Male/NYC
Diagnosed with UC: July 2006
 


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/12/2007 12:27 AM (GMT -7)   
yeah, i definitely ONLY take prednisone with food. i was taking it with lunch as sometimes i forget about breakfast and its noon before i look up from my work...
but this morning i took it around 9am with a bagel and my tea.

maybe its just my tender colon being sore and im getting ahead of myself with wanting to feel better.
31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only.
**3 weeks out of hospital/no colitis symptoms... normal bm's only 1x a day + no blood
50mg prednisone 1x  with lunch or breakfast
50mg imuran 1x  8pm stopped it to try and have a baby
2x 500mg mesalazine 2x day + night
VSL#3 didnt work
Aloe Elite didnt work
Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/19/2007 1:24 AM (GMT -7)   
im curious to know... can prednisolone just all of a sudden stop working?

i've been on 50mg a day for 4 weeks exactly. i have 2 more to go at 50mg before i taper by 10mg per 5 days.

my bm's have become almost completely formed (which means it hurts like hell comin out)...
and no blood during these bm's

but the last few days, i have gone to the toilet more than my "getting better" once a day and there has been the tell-tale blood and bits.

is it just my colon getting rid of the lining that was "ripped" up from my earlier bm or is it my colitis coming back or getting worse?

the pred seemed to have been doing its job (with the side effects as well) and then this goes and happens...
can pred just stop working or am i being paranoid cuz im trying to get better faster than it takes to actually heal?

help?
31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only.
**3 weeks out of hospital/no colitis symptoms... normal bm's only 1x a day + no blood
50mg prednisone 1x  with lunch or breakfast
50mg imuran 1x  8pm stopped it to try and have a baby
2x 500mg mesalazine 2x day + night
VSL#3 didnt work
Aloe Elite didnt work
Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 

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