is this "normal"?

jennie1472

New Member

Joined : Nov 2007

Posts : 1

Posted 11/10/2007 3:03 AM (GMT -6)

Hi! I'm new to this site. So hello to everyone. I was wondering if you all would be able to shed some insight to a question i have. I was dx'd with UC when I was 15/16 after long bout of being sick. I was fine until I was 20/21 I got really sick..I mean really sick. At that time my doc and I were considering surgery, but last minute went a different direction, but still landed me in the hospital for a good month. WhenI was dc'd I was given azsulfadine,predinsone folic acid,iron, and 6-MP. I'm now 35 and don't take any meds,I haven't had a flare up since then. Is it possible to remissions to last this long, or was there a chance i was misdiagnosed?

theklep

Regular Member

Joined : Nov 2007

Posts : 75

Posted 11/10/2007 4:55 AM (GMT -6)

My doctor told me it is possible to go into a permanent remission. It happens for some people, that is great you are able to stay in remission. Keep it up.

Lialda - 1x Day
Rowasa 1x (for spot treating and flare ups)
Centrum Multi-Vitamin 1X Day
Lexipro- 1x Day 10Mg
Ambien- 1x Day 10mg
Omega 3 Fish Oil- 2x Day

mjw82704

Regular Member

Joined : Dec 2006

Posts : 251

Posted 11/10/2007 9:29 AM (GMT -6)

I'm curious???? Since you've been in remission do you eat whatever you want?

Asacol 2 pills 3 times per day
Hydrocortisone Enema sometimes

kb5

Veteran Member

Joined : Jan 2007

Posts : 1015

Posted 11/10/2007 9:44 AM (GMT -6)

Long remisions are very possible. You ususally don't hear about them because when people feel better they tend not to post as much here. My longset remission was just over 5 years but i hope to someday have one as long as you! I do think you should enjoy it and congrats!

Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, 15 mg pred. until immuran kicks in...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07
Prontonix once daily for acid reflux, zofran twice daily for nausea

pb4

Elite Member

Joined : Feb 2004

Posts : 20577

Posted 11/10/2007 1:20 PM (GMT -6)

Yup, long remissions do happen.

:)

My bum is broken....there's a big crack down the middle of it! LOL :)

quincy

Elite Member

Joined : May 2003

Posts : 31099

Posted 11/10/2007 3:21 PM (GMT -6)

Hi...I've read and heard from my doctor that it happens, but it could also be that you were misdiagnosed...but probably not. How long were you on the meds after you left the hospital?

When was your last colonoscopy? If you do have UC, you'll have some evidence of past inflammation healing characteristic of UC.

It's awesome to hear you're doing well....I hope it continues!!!

quincy

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

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is this "normal"?

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