uc & weight loss

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Oct 2007
Total Posts : 22
   Posted 11/10/2007 12:18 PM (GMT -6)   
has anyone had the problem of being able to keep weight on or gaining it when in remission.  I am eating enough caloroes and good foods no junk and I seem to still be slowly lossing weight?  I have always been thin but I weigh 114lbs at 5'6'' and a female and cannot put on weight.  ANy thoughts? 
oct 2007 dx ulcerative proctitis. on canasa suppositories & cortifoam

Elite Member

Date Joined May 2003
Total Posts : 30986
   Posted 11/10/2007 3:11 PM (GMT -6)   
Hi..it'll take a while for you to keep it on.

What exactly are you eating? Have you calculated how much you're eating in calories?

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Regular Member

Date Joined Oct 2007
Total Posts : 29
   Posted 11/10/2007 8:37 PM (GMT -6)   
This was my first flare and I weighed 117 at 5"4 and after 6 weeks went to 105lbs. I feel anorexic. I have been stepping on the scale now since I am out of the flare and still 105---still waiting on gaining those lbs back:) LOL
Terri D.
Asacol 2x4times a day
Toprol XL 25mg a day for rapid HB
l5-S1 disc rupture in 2004
Thyroid nodules and levels swing in and out:(

Trixy's Got Butt Trouble
Regular Member

Date Joined Jun 2007
Total Posts : 356
   Posted 11/11/2007 1:01 PM (GMT -6)   
I so wish I had a problem keeping weight on or losing it. I actually gain weight when I'm flaring. I'm not sure how that is possible, but if it can happen to me, it will :-)

Good luck. If you want a program to help you gain weight or help maintain your weight, check out www.myfooddiary.com It costs 9 dollars a month, and is so worth it. I use it to lose weight, but you can also use it to gain weight. It's a great tool!
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission;
Nexium; Probiotic; Multi-Vitamin; Flax Seed Oil
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  Ending 5 month remission w/mini-flare :-(

Veteran Member

Date Joined Jul 2007
Total Posts : 2148
   Posted 11/11/2007 5:09 PM (GMT -6)   
I think it can be just as hard for some people to lose weight as it is for people to gain weight. After that thought...........

When I was flaring bad and on prednisone I lost 10 pounds, I had some junk in my trunk to lose anyway but have since gained it back and am have not gained anymore (silver lining). But let me offer some weight gaining advice. Cheese, cheese and more cheese, blue cheese, gorgonzola cheese, brie, goat cheese also.....chips (chips are not good advice but if you become additcted you will gain weight.....my small attempt at a joke). Anyhow, cheeses do have a lot of fat in them and if you like them adding them to meals should help pack on a few pounds. I make a mean gorgonzola burger!
Beth, 32
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 150mg 1xday nightly;Remicade tests pending;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 2xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

Regular Member

Date Joined Nov 2007
Total Posts : 25
   Posted 11/11/2007 9:37 PM (GMT -6)   
Ok well it seems my flares are getting worse and my weight is going up. I am going to see gastro soon. do you all not eat at all during a flare? Well I guess the only good thing of this could be losing weight for me anyway. Hope you all feel better soon and for those of you who want to put a few pounds on.

Veteran Member

Date Joined Apr 2006
Total Posts : 3402
   Posted 11/11/2007 9:58 PM (GMT -6)   
HoneysBunny - Welcome to HealingWell!

In many cases, UC patients loose weight because of the chronic D. Food just does not stay IN long enough for nutrients to be absorbed. OR they loose weight because they become anorexic - don't eat because it makes them feel bad, makes them run to the restroom too frequently, causes cramping and abdominal pain, etc.

However, you MUST eat while in a flare to provide your body the nutrients that it needs to heal.

Maddi - I agree with those that recommend a visit to the dietician. A review of your diet is in order to make sure you're getting those things you need to heal and to make sure you're at a good weight for you. I find myself eating poorly because those junk food items seem to be easier to break down than the fruits and vegies I should be eating.

Take care!
Pan-colitis and GERD diagnosed May 2003
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate

Veteran Member

Date Joined Sep 2007
Total Posts : 955
   Posted 11/12/2007 2:11 AM (GMT -6)   
i lost 40lbs while flaring... and since (a year later) im still flaring, i have not gained it back. went down to 100lbs at 5'3'' after the hospital a few weeks ago and back up to 108lbs and staying there.

im on 50mg of prednisone a day with the munchies from hell and i eat quite a bit (junk food and good food) but can't put anymore weight on.

im crossing my fingers that it goes straight to my ass cuz its gone all flat and dropped 3 inches. YUCK. i need my bum back!!!
so im eating all kinds of food and hoping.
31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only.
**3 weeks out of hospital/no colitis symptoms... normal bm's only 1x a day + no blood
50mg prednisone 1x  with lunch or breakfast
50mg imuran 1x  8pm stopped it to try and have a baby
2x 500mg mesalazine 2x day + night
VSL#3 didnt work
Aloe Elite didnt work
Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 11/12/2007 7:20 AM (GMT -6)   
I've been thin all my life so I know where the "danger" zone for me is. I am 5'6" at 120lbs right now but if I go below 115lbs then I know it's time to review my diet. You would be surprised when you count your calories of actually how little you are cosuming! I did this and I couldn't believe I was eating so little. It felt like a ton of food only because I was flaring and what goes in must come out. And when flaring that can hurt! But definately review your calorie intake and try to add a small few meals in thru out the day if you can.
Left sided Uc -'92 - Colazal, 6mp, Prilosec, Biotin, Forvia, Pro-Bio 
Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@


Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 11/13/2007 10:13 AM (GMT -6)   
You may want to look into Absorb Plus, a nutritious shake specifically formulated for IBD patients with compromised digestions.


I'd be careful with the cheese suggestion. Many IBDers have problems with dairy. Some other options weight gaining options are nut butters, avacado and supplementing with healthy fats: fish, flax, olive and Udo's. Check your local health food store for protein powders and meal replacement powders. These are healthier choices than Boost and Ensure.

Starting a gentle weight training program is a great way to put healthy weight back on, and it's good for your bones if you're on Prednisone.

Diagnosed with ulcerative colitis spring 1999
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years. Down to 10 mg and feeling much better.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.

Regular Member

Date Joined Aug 2007
Total Posts : 326
   Posted 11/15/2007 6:05 AM (GMT -6)   
i can totally relate--i have tried to gain weight for a long time. now, i am finally at a weight i am somewhat comfortable with (115 lbs at 5 feet 7 inches), but for a long time i was under 100 pounds. what really helped was eating lots of hummas, avocado (or guacomole) and bananas. they are (for me) okay to eat in a flare and have lots of good fat. good luck!
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery

VSL #3
Amitriptyline to slow gastric emptying

Veteran Member

Date Joined Mar 2007
Total Posts : 2832
   Posted 11/15/2007 9:45 AM (GMT -6)   
Boy, I wish I could trade weight with those of you who gain weight in a flare-- I always lose and would be a happy "taker." Now, I happen to benefit, IBD-symptom-wise, from eating low-carb, but as a side effect it has made me skinnier than I used to be in my high carb days .... so leaving aside the harsh wars of beliefs between about high fat/low carb vs. low-fat/high carb, low-carb is the easiest way to keep off the pounds. Not the reason I am low carb, but for those who gain (or can't lose excess) during flares, consider trying it and benefiting from that side effect.
Pancolitis dx'd 1986, full med-free remission 88-97
Flaring or simmering ever since
10 20 17.5 15 12.5 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO
Turmeric/circumin, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD)

Regular Member

Date Joined Jun 2007
Total Posts : 62
   Posted 11/15/2007 11:04 AM (GMT -6)   
Peanut butter and olive oil.  They are both high in calories and healthy fat.  I am currently 165lbs (5'10'' male).  I dropped to 147lbs 5 months ago before I found this site and decided to be more aggressive in fighting back against UC.  Even before UC I was always on the thin side and this disease causes me to lose weight if I don't monitor my diet.  When I want to put on a few pounds, I eat spoonfuls of peanut butter several times per day.  I will also take a tablespoon or two of extra virgin olive oil.  Both are easy on the stomach, too.

Diagnosed UC 1999
Asacol (no effect)
Colazal (no effect)
VSL#3 (not enough difference to justify the cost)
OTC : Probiotics (Primadophillius Reuteri, 1 capsule per day), enteric coated Fish Oil (1.7g 3x per day), Metamucil (one serving 4x per day), NSI Turmeric/Curcumin95% (1g 2x per day), Caltrate 600D (2x per day), L-Glutamine (9g 2x per day),
Natures Way Alive Multivitamin

Veteran Member

Date Joined Mar 2007
Total Posts : 2832
   Posted 11/15/2007 12:29 PM (GMT -6)   
I wish I could eat nut butters, but they make me flare. As a low-carber for my UC (though I believe it for general health too) I do eat alot of fat including alot of olive oil, but my "set weight" has dropped down (110-115 lbs male, but I'm only 5'01") about 10 lbs from my high carb days and I just get tired of eating fatty foods. I can gain some weight on my half-and-half homemade yogurt but I get loose stool if I eat more than about 2 or 3 cups a day of it.
Pancolitis dx'd 1986, full med-free remission 88-97
Flaring or simmering ever since
10 20 17.5 15 12.5 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO
Turmeric/circumin, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD)

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 20, 2018 5:56 PM (GMT -6)
There are a total of 3,005,236 posts in 329,204 threads.
View Active Threads

Who's Online
This forum has 161763 registered members. Please welcome our newest member, Dnoey.
288 Guest(s), 12 Registered Member(s) are currently online.  Details
Celeste15, imagardener2, Kent M., netsavy006, Ss800, JOKERWILD477, 3timechamp, Anitas, Girlie, Alex ArmPain, InTheShop, fiddlecanoe