Specifc Carbohydrate Diet and initial setbacks?

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orangeman
Regular Member


Date Joined Oct 2007
Total Posts : 36
   Posted 11/10/2007 1:16 PM (GMT -7)   
I've been on the SCD for 6 days. I had been having 2-4 loose BMs per day with bright red blood the TP or on the last bit of stool each time. After two days, I had formed, solid BMs, with little blood, for the first time in 6 months. The formed stool continued until this afternoon. I had 2 formed BMs in the morning (typical for me) and then a loose BM with blood on the TP and the last bit of stool. My wife says its probably my hemorrhoids causing the blood. I've had them for a while. GI doctor wants to do colonoscopy if the blood does not go away by next week.

I was wondering if anyone on the diet has seen setbacks at the beginning? I know Elaine G. says to give it one month, but after such a great start, I'm now concerned the diet may not be for me. Am I worrying too much? Any suggestions?
----
-UC since April 2006
-Flare May 2007, 28 days in hospital, (pancolitis DX June 2007)
-Remicade, June 2007, brought symptoms under control, but second infusion delayed because of MRSA infection in hospital
-Severe reaction during second Remicade infusion
-Asacol October 2007, but GI stopped due to reaction (increased D and frequency)
-prednisone since May 2007, started at 60mg/day.
-tapering now, 20mg for last 3 weeks, (will go to 17.5mg next week, if blood is gone)
-digestive advantage for CD&UC, 1 tablet per day

hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 11/10/2007 5:55 PM (GMT -7)   
i know there are a lot of folks here who will be better help than me, but i wanted to suggest the scd lists if you're not already on those.
i did the scd for 4 weeks with no improvement at all. but the lists were helpful.

there is a good yahoo group called healingcrow.
there is another one for pecanbread.com but it's mostly parents of kids with autism. still helpful for food questions tho and friendly folks.

and then there's the list serve thru scdiet.org. there is a wealth of info on that site.

anyway, i know most scd people will tell you to hang in there. if it works for you, man will it be worth it!
28, happily married, stay at home mom to 2 year old son
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.
-tried SCD for 4 weeks with no improvement...
-Asacol since 7/26/06
-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-probiotics, ground psyllium husk, fish oil, CalMag, multivitamin

may you live all the days of your life.


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 11/10/2007 7:55 PM (GMT -7)   
From what I know of the SCD, I think it is similar to an antifungal program/diet I went on. If so, you may be experiencing what is known as "Herxheimer's response". It is an initial die-off of fungus/yeast that may have been contributing to your symptoms. You will feel worse before you feel better. Everyone is different as to when the "die-off" kicks in, and what you may experience. For me it was day 2-5. I felt terrible....flu-like symptoms, major D, lethargy, achiness, etc. You may, or may not be experiencing this. I guess the only way to tell is to see if your symptoms improve in the next week or so. I would not give up on the diet. It may take a long time before you can tell if it will help you, or not. It is not a quick fix. It took you a long time to get sick. Can't expect miracles overnight, unfortunately. Even 4 weeks is not enough time. Do you have any symptoms beside the D and bleeding? And, have you thought of taking natural antifungals while trying this diet, or having your doctor prescribe Nystatin to quicken your results, in case it is a fungal condition you have? Good luck. I really hope this will be something that works for you!

me,too
Regular Member


Date Joined Mar 2007
Total Posts : 97
   Posted 11/11/2007 1:43 AM (GMT -7)   
Hi,
When it comes to diet, I think everyones different. I've been avoiding grains for a while now, and was basically doing the SCD. Once the effects of my Remicade treatment faded (I was not scheduled to continue this treatment), my symptoms came back. I happened upon the Maker's Diet while at a health food store. The diet recommends that you begin with goat yogurt and cheese, instead of cow dairy. This diet is very similar to the antifungal diet and the SCD. The main difference between what I had been doing before and this new diet was the goat's dairy. Once I changed to sheeps milk yogurt and goat cheese my symptoms (urgency, mucous, blood) went away in a matter of days, my bms were also reduced to 1-2 per day. I was able to reintroduce eggs (which I had eliminated from my diet) and a variety of vegetables. This past week I ate a no-no (a health food chocolate treat), with little effect to my bowels (my bms indicated a bit of swelling but none of the other symptoms returned). I thought I was one of those people for whom "diet" did not work. I was happy to learn that switching to other types of dairy was my solution. I'm still healing, and am looking forward to introducing more food soon!
Try to pay attention to what it is that's causing your symptoms. Don't give up!

orangeman
Regular Member


Date Joined Oct 2007
Total Posts : 36
   Posted 11/11/2007 3:23 PM (GMT -7)   
thanks for all the support and information. I am going to continue the diet for at least another 3 weeks and than re-evaluate. Today has been slightly better. 3 BMs. first was loose with blood on TP, second was soft and formed with blood on TP, third was soft and formed with no blood. I'm crossing my fingers that the change in BMs is my body's reaction to getting rid of the toxins, yeast, etc. We'll see.

I also went back and reviewed my daily food journal. The loose BMs started the day after I introduced baked apples and two days after adding ripe bananas to my diet. It was not a gradual process like discussed in BTVC. I stopped the bananas and apples yesterday and will gradually add one back in later this week Also, I was drinking a lot of grape juice, not always cut with water. Too much juice has had a laxative effect on me before.

My main concern is keeping my weight steady and/or increasing. I'm tracking my calorie intake now. I'm sure my intake was much less than before SCD.

Hoping to avoid another colonoscopy. Will be talking to my GI this week.

thanks again everyone. I'll keep you posted.
----
-39 male, UC since April 2006
-Flare May 2007, 28 days in hospital, (pancolitis DX June 2007)
-Remicade, June 2007, brought symptoms under control, but second infusion delayed because of MRSA infection in hospital
-Severe reaction during second Remicade infusion
-Asacol October 2007, but GI stopped due to reaction (increased D and frequency)
-prednisone since May 2007, started at 60mg/day.
-tapering now, 20mg for last 3 weeks, (will go to 17.5mg next week, if blood is gone)
-digestive advantage for CD&UC, 1 tablet per day

orangeman
Regular Member


Date Joined Oct 2007
Total Posts : 36
   Posted 11/11/2007 3:37 PM (GMT -7)   
oops! almost forgot about the added stress this week in addition to the diet. We had to move last weekend into a new home b/c the owner of our rental house filed for bankruptcy and the house is being foreclosed on. Moved into military housing (I'm in the Army) which meant new school for my girls (8 and 6). Three other children at home (4, 2 and 7 weeks!). Finally, big inspection of the laboratory I run on Tuesday - Thursday. the change in BMs started the day after the inspection. coincidence?

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 11/11/2007 6:00 PM (GMT -7)   
In my experience, treating UC with dietary manipulation and/or other natural, non-pharmaceutical approaches can be extremely beneficial, but it is NOT a quick-turn around process. IMHO, there's no way you can know definitively whether or not the SCD will work for you after only six days. It's going to take time for your gut to heal.

The blood you describe does sound like hemorrhoids, but a flex sig would tell for sure.

The other thing with the SCD and other dietary approaches is there is a lot of individual variation for what is helpful and well-tolerated in different folks who all have the same UC (or Crohn's) tag stuck on them. Unfortunately, there's not really anything you can do but experiment and keep a detailed food journal to track your own responses to different foods.

I got discouraged by my lack initial lack of response to the SCD, but I learned over time that the wonderful homemade yogurt that's supposed to be so beneficial and is very helpful for a lot of people just didn't work for me... not with cow's milk and not with goat's milk. I switched to a powdered, non-dairy probiotic to rebuild my helpful gut bacteria. Some folks just can't do dairy, regardless. It may be a lactose or a casein thing.

A lot of folks get tripped up by the nut flour, too. The baked goodies are so tasty and really help when you're craving the cakes and cookies you used to eat before the diet. However, too much of the nut flour too early on, when you're not totally healed can be problematic. Same thing with eating whole nuts, beans and raw fruits and veggies.

I would suggest you try to establish what for you is a subset of SCD foods that you know to be good for you. In my experience, these include tender white meat of chicken and turkey, scrambled eggs and omlettes (if you don't have an egg allergy), organic, canned, soft-cooked veggies like peas, carrots and green beans, canned or baked fruits with skins removed (apples and pears), very ripe bananas, nut butters, avacado and healthy oils - (Udo's, fish, flax and olive). I'd give that very safe diet a couple of weeks to a month, then start branching out and experimenting with other SCD foods.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years. Down to 10 mg and feeling much better.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 11/11/2007 6:01 PM (GMT -7)   
orangeman, I'm not up on all the foods allowed on the SCD. Is grape juice allowed? That seems like an awful lot of sugar to ingest, if you are trying to get rid of yeast, toxins, etc. The fungus has to starve to die, and the high sugar content of the grape juice will continue to feed it. Just an observation.......good luck!

DeniseW
Regular Member


Date Joined Nov 2005
Total Posts : 346
   Posted 11/11/2007 6:25 PM (GMT -7)   
It sounds like you are on the right track with your adjustments. I did well on the SCD and the vit e enemas (for the first few weeks only to speed things along, no other meds) for a year and a half. I ate some illegal stuff b/c I'd been well for so long, and I think it threw me into a flare a month later. I'll never know, and I couldn't get back on track. I suggest you be 100% dilligent for as long as possible. It's WONDERFUL when it works.
I will also suggest "Grain-free Gourmet" and "Eat Well, Feel Well"...both EXCELLENT books on SCD recipes available at B&N or Amazon. They saved my life when I started it.
dx 4/05 with pancolitis UC after birth of my second child... meds worked randomly
SCD and vit e enema remission for 18 months and had another drug free baby 10/06
Let flare get out of control and even steroids wouldn't work 7/07 - docs wanted surgery
lialda x4 daily and started remicade 10/26/07
 
 


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 11/12/2007 8:10 AM (GMT -7)   
Just to chime in on the SCD: I second the motion that fruit and nutflour products cause trouble for a lot of people who try the diet- and I mean enough to completely negate the beneficial effects.  Granted, there are some who tolerate them well, and many tolerate them after a month or a year or whatever, but some like me will flare if we make those items staples in the diet.  Nor could I tolerate the yogurt at first, though after a few months I could.
 
Personally I am more a believer in a low carb approach, and with the fruit, honey and nutflour the SCD becomes quite a high carb diet (even though still lower carb than the Standard American Diet).
 
Plus, you definitely need to get onto those SCD lists and ask questions if you want to try that diet in earnest.  Healingcrow is good too but it evolved out of many of us who 'tweak' the diet and don't believe so muhc in the somewhat rigid 'legal/illegal' worldviews that is the official doctrine of the diet.  Give eliminating the sweet stuff a shot- you may well tolerate them later down the line.
 
 
Pancolitis dx'd 1986, full med-free remission 88-97
Flaring or simmering ever since
10 20 17.5 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO
Turmeric/circumin, fish oil, many vits/minerals
Low-carb version of Specific Carb Diet
 
 
 

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