thanks for the bump on the head Mitz!! I was never close w/my family growing up except my Aunt and my Grandmother, and now as an adult we've all gotten much closer, so yes I do deserve it, I just hate having people worry and fuss about
me, but I will have to get over that right! I have a box w/foam under my desk at work to help w/my legs and now that I am feeling better, I am going to try to get in 30 min of treadmill time a day and yes, I do have to get up every hour or so to fax, scan, use the restroom, get water or something, so I do get up and move around. I have tried the support hose and it just pushes the edema up my legs and when I take it off it moves around. I have some lasix and the Neph said to becareful with it and not to use more than every other day. So since my edema of course has not been as terrible as it was last week I have not tried it yet, i'm sure it will get really bad again and I can't wait to see the results of what happens.......my own little science experiment. Maybe they will name some rare kind of edema disease after me.... the "betkankle"...
Old Hat & Quincy - you are right, and I will stand up for myself w/my GI and get a new one if I need to. I just left him a message today about
how well I am doing and I am waiting to see what his response is about
my treatment, I think that will tell me a lot about
what I need to know about
keeping him for my GI for now. The Nephrologist increased my Diovan from 80mg a day to 160 a day. The 80mg a day was the lowest dose and I was doing ok on that, so I think going from 80 to 160 is a good decision, it is supposed to help reduce the inflammation in my kidneys so the 'little feet' can reattach themselves. I am glad he is doing that rather than throwing me on cellcept or cytoxin, which he has not brought up yet but I have seen in my research as a next step type of thing. I think the Nephrologist is really good and I am happy with him, he always listens well and really takes the time to explain everything to me (even drawing pictures to help me understand).
NIcepeter - i'm not sure what the abbreviations bmp and ua mean?
thanks everyone for your well wishes! I go on a kidney board and this protein going up and down is pretty typical......wish it wasn't. Also, I wish there was a kidney board on here, that would be awesome!
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 150mg 1xday nightly;Remicade tests pending;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 2xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.