How Long Do Most of You Retain Rowasa for?

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theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 11/11/2007 2:37 AM (GMT -7)   
I just started using Rowasa because I flared up for the first time since my Dx. I can only hold in the Rowasa for about 1-3 hours on the usual. I just get the urge to go and want to hold it in but it becomes impossible. Is this long enough to help me? And is there anyone who can make it all the way through because right now I don't think I can pull it off for that long. -Jeff confused
Lialda - 1x Day
Rowasa 1x (for spot treating and flare ups)
Centrum Multi-Vitamin 1X Day
Lexipro- 1x Day 10Mg
Ambien- 1x Day 10mg
Omega 3 Fish Oil- 2x Day


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 11/11/2007 6:00 AM (GMT -7)   
Once the inflammation is calmed down, you should be able to retain it all night. You still see a benefit from the med if held for at least 30 minutes but it's best to retain all night. 1-3 hours is a good start.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia, Pro-Bio 
Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 11/11/2007 6:15 AM (GMT -7)   
When I am flaring badly I can only handle it for 30-60 minutes but as the inflamation goes down it stays all night.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, 15 mg pred. until immuran kicks in...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07
Prontonix once daily for acid reflux, zofran twice daily for nausea


UC Fighter
Regular Member


Date Joined Oct 2007
Total Posts : 89
   Posted 11/11/2007 8:45 AM (GMT -7)   
I ditto the other comments here. Lately I've been keeping it in all night, but in the beginning it was tough to do an hour.
Current Prescriptions:
 
40 mg 30 mg Prednisone per day, 1 x per day
Sulfasalazine, 3x per day
   1500mg @ Breakfast, 1500mg @ Lunch, 1000mg @ Dinner
1 Mesalamine Enema per night


Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/11/2007 10:51 AM (GMT -7)   
Ditto the other comments. There were times that I couldn't even keep it in for 15 minutes. If that was the case, I would get another bottle and readminister it. I'm not sure if that was a good thing, but usually the 2nd dose stayed in all night. Additionally, when it was really really bad, my GI said I could do one in the morning and one at night. That helped to get the inflammation under control much more quickly. Good luck!
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission; Nexium & 1 Probiotic in the morning
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  Ending 5 month remission w/mini-flare :-(


quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 11/11/2007 1:17 PM (GMT -7)   
I hold it all night (Salofalk)...but you're doing well theklep! Welcome to the forum.
 
What's the total dosage of Lialda you're on ?
 
Where in the colon is your UC...throughout or limited?

quincy


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 11/11/2007 3:37 PM (GMT -7)   
quincy- I was told I had mild UC the GI never gave me specific location. He said I did not have it to bad but I suppose he is right because this is my first flare since being Dx. My Lialda dosage is just 1 pill a day which is 2.4 mg or however it is broken down into in pill form. Thank you all for your experiences with Rowasa. I see a lot of you are taking more oral pills so I was thinking of asking my GI to up me to maybe move me along a little faster. The mucas is gone and there is only a little blood. Now its mainly just Diarrhea, is that a good sign? Well thank you all for your input its awesome.-Jeff
Lialda - 1x Day
Rowasa 1x (for spot treating and flare ups)
Centrum Multi-Vitamin 1X Day
Lexipro- 1x Day 10Mg
Ambien- 1x Day 10mg
Omega 3 Fish Oil- 2x Day

Post Edited (theklep) : 11/11/2007 3:43:53 PM (GMT-7)


quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 11/11/2007 5:01 PM (GMT -7)   
Hi Jeff....I'm assuming it's probably limited to the rectum or rectum/sigmoid. What were your symptoms before diagnosis...exactly?

I would like you to reread your prescription dosage on the label of the bottle. Lialda comes in 1.2g...(not mg)...that would be 1200mg.
If your doctor has told you to take 2.4g...you should be taking two Lialda at the same time..once a day.
That would bring you up to 2400mg which is what I'm at.

So...please reread, because you're not on enough if you're taking one pill...you should be on two. Please clarify for me and you.
 
http://www.drugs.com/pro/lialda.html

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 11/11/2007 9:09 PM (GMT -7)   
I am also ditto'ing everyone's comments here. At first I couldn't hold it in all night and even slept with a diaper on... I even thought about inventing some sort of sexy diapers for young women with U/C.. JOKE... LOL... Anyhow, After a week or so, I was able to start holding it in longer and longer and now after I... how should I say this.... Get it all in..... I don't even know it's in there and can hold it in all night no problemo....

Just wanted to share too :)
SusieBuddy  
Diagnosed with U/C January 31st, 2004, IBS on July 21st, 2006, Dr says possible Crohn's...We'll see..
 
Meds: Rowasa enema's - OK, finally got brave enough to start every other night.
         Canasa 1000mg. AM Only, - Bentyl 10mg. As needed, - Culturelle 1x a day 
         Nexium - 40mg, 1x per day, - Xanax .5mg as needed which is haldly ever, 
         Effexor 37.5mg. 
 
         www.myspace.com/77016897         


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 11/12/2007 12:07 AM (GMT -7)   
quincy- You were right I did have it wrong, it is 1.2GM per day. My symptoms before were mucus and blood with loose stool. I am going to ask my doctor tomorrow about bumping me up to two a day since everyone seems to be on more. Plus I think the Rowasa is working because I have gone a lot less today which is a sign it must be calming things down. What are the signs you are close to remission, anything specific I should look for since this is my first flare?
Jeff, 23, Diagnosed July 2007 probably had it since 2005 but no really symptoms till July 2007
Lialda - 2.4mg 1x Day
Rowasa 1x (for spot treating and flare ups)
Centrum Multi-Vitamin 1X Day
Lexipro- 1x Day 10Mg
Ambien- 1x Day 10mg
Omega 3 Fish Oil- 2x Day


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 11/12/2007 5:11 AM (GMT -7)   
That's good that Rowasa is helping you. You still have a ways to go before you reach remission though. We each have our own definition of remission but for me, it is lack of all symptoms - no pain, no blood, no urgency, no multiple bathroom runs, no D and typically I wait about 2 weeks to a month of being symptom free before I claim remission.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, 6mp, Prilosec, Biotin, Forvia, Pro-Bio 
Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 11/12/2007 5:40 AM (GMT -7)   
Red- Thanks for the heads up on remission right now I'm am still in flare mode, but I will keep that in mind as things hopefully die down.
Jeff, 23, Diagnosed July 2007 probably had it since 2005 but no really symptoms till July 2007
Lialda - 2.4mg 1x Day
Rowasa 1x (for spot treating and flare ups)
Centrum Multi-Vitamin 1X Day
Lexipro- 1x Day 10Mg
Ambien- 1x Day 10mg
Omega 3 Fish Oil- 2x Day


quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 11/12/2007 12:30 PM (GMT -7)   
Jeff....try to focus on the meds and that you're improving....you'll get sick of me saying that. Patience really is needed with 5ASA meds...it's a longer treatment/maintenance for long-term gain. I've been doing the oral/rectal 5ASA meds for almost 19 years and it's paid off. Patients eventually get sick of using the meds or cannot use 5ASA meds eventually....I hope you make the decision to the commitment if you can use them. The top reason is you'll learn how to detect flares earlier and earlier and treat them quickly. You'll also help prevent your UC from spreading....contrary to the belief that limited UC stays as such..there's no guarantee you are one that it will. As well, 5ASA meds are strongly believed to help prevent cancer in the colon....a good thought and insurance for the future.

You must stay on the Rowasa for at least 2 weeks (or longer if necessary) nightly and if everything is "normal"..stay on them for another week then go to every two nights....stick with that for at least 2 weeks then go to every 3 nights..etc. I have tried quick tapers, slow tapers and all inbetween...and I've found that my colon tells me what it needs. I don't ignore symptoms, treat early and accept that it's what I must do in order to keep my colon working as best it can. As I look back, I can't believe I'm doing as well as I am and it pleases me as well as my doctor....apparently, he states I'm one of a few who have been 100% faithful to the 5ASA oral/rectal regimen...so, ignorance is bliss I guess..I never assumed I had a choice to not use it.

You should be on at least 2.4g of Lialda to keep everything above the area of inflammation calm and quiet...mild UC is usually clinically meaning limited to the rectum or up to and into the sigmoid. Regardless....I'm thrilled to hear the meds are working.


Keep us posted....it seems your attitude already has you off to a good start.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 11/14/2007 1:12 AM (GMT -7)   
quincy- Thanks for all your advice, I am going to my GI on Friday to discuss being upped as far as the oral meds go which will be Lialda probably twice a day. I am using the Rowasa and was able to hold it all night last night. I don't know about tonight it feels like it may or may not stay the whole night but I will hold it in as long as possible. I definitely will try my best to keep the Rowasa up especially when you say to taper of slowly, I like that idea to make sure I will not relapse. Its great that you are so knowledgeable about UC I am going to see a dietician soon also to make sure I am eating the right things and to keep my UC under control food wise. Thanks again you continue to be very very helpful to all of us on the boards.
Jeff, 23, Diagnosed July 2007 probably had it since 2005 but no really symptoms till July 2007
Lialda - 2.4mg 1x Day
Rowasa 1x (for spot treating and flare ups)
Centrum Multi-Vitamin 1X Day
Lexipro- 1x Day 10Mg
Ambien- 1x Day 10mg
Omega 3 Fish Oil- 2x Day


quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 11/14/2007 3:01 AM (GMT -7)   
Thank you for the kind words...you're already on a good track regarding dealing with UC. Experience, unfortunately, is the best teacher.

Regarding tapering the rectal meds...by having enough refills and having the doctor leave that dosaging to YOU...you'll not have a tendency to wait to treat flares.

Some are able to get off meds, some (like me) are med lifers. I use the tapering method of the enemas to find a maintenance level. It's all paid off since my flares have never been as bad as the first one.

Let us know how the GI appt goes as well as the dietitian. Common sense is really a help regarding eating. While I don't believe food causes flares, the action of foods themselves in the digestive tract can sometimes create a huge disagreement and an exacerbation of some symptoms...such as gas and diarrhea.

I'm impressed with your doc that he put you on the oral/rectal 5ASAs....not all doctors agree that the rectal meds do any good...seems a no-brainer to me eyes

One thing you should ask the doc is where exactly is your UC limited to...or is it throughout? and if he'll be doing blood tests for liver and kidneys since you're on the 5ASA meds.

Continue to feel better.

quincy


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 11/14/2007 3:04:34 AM (GMT-7)


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 11/16/2007 9:57 PM (GMT -7)   
quincy- So I finally saw my doctor in person and I am now on 2 Lialda a day and continuing with the Rowasa. I learned that my Dx of my UC was left sided and goes from the rectum on up but dissipates towards the top which leads my doctor to believe its mild. As far things go I'm holding Rowasa in better now and see my stool beginning to take a firmer shape, not all the way there yet though. As far as the dietician, have not gotten to see her yet but my doctor keeps telling me its not what I eat as much as what doesn't agree with me specifically. So I will keep at it and see if the upping of oral meds along with the Rowasa will get me back to remission.
Jeff, 23, Diagnosed July 2007 probably had it since 2005 but no real symptoms till July 2007
Lialda - 2.4mg 2x Day
Rowasa 1x (for spot treating and flare ups)
Centrum Multi-Vitamin 1X Day
Lexipro- 1x Day 10Mg
Ambien- 1x Day 10mg
Omega 3 Fish Oil- 2x Day


quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 11/17/2007 12:50 AM (GMT -7)   
Hi Jeff...good to hear your doc got you up to at least the right amount of meds for treatment....maybe you can eventually taper to the one daily..but with having left-sided UC, I would think that the 2 daily would be best. Not too high, not too low.

Please be patient with 5ASA meds....like the tortoise and the hare analogy.
If you can use them, it's best for lowest possible dose for as long as possible. So far for me it's been almost 19 years...I intend that to continue.

Learn how to use the enemas effectively. You must taper them...but do let us know once you're "normal". You react well quickly to them...that's a good sign.

As far as food, that's my doc's suggestion as well. I've never been afraid of food, and do recognise foods that tend to cause me gas. Gas is the major contributor of discomfort to me except when flaring...then it's gas and rectal pain. My flares are minimal...but I do deal with them asap.

Anyway...do make wise choices as to what you think you can eat with having the most comfort....but make sure you eat. I believe that many newly diagnosed patients stay away from food believing that it will help, but it doesn't. Trial and error....

Hope you find the right balance for you.

Keep us posted.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Mom-e
New Member


Date Joined Nov 2007
Total Posts : 6
   Posted 11/18/2007 2:26 AM (GMT -7)   
Have you taken it before you go to sleep at night? This disease is more of a job during the day to try and maintain a normal lifestyle, that using the enema meds at night may help.

quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 11/18/2007 2:48 AM (GMT -7)   
The enemas are meant to be taken at night..although some doctors do prescribe them twice a day.

They do help...definitely...and as the colon heals, symptoms during the day will lessen.

Welcome Mom-e!

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 11/19/2007 1:11 AM (GMT -7)   
Update- Things seem to be hardening up and no more D or blood so signs point towards things getting back to normal. Thanks again for all your helpful and encouraging comments. Rowasa is amazing. I am going to be more active if I see anything resembling a relapse next time around these things get it under control fast.
Jeff, 23, Diagnosed July 2007 probably had it since 2005 but no real symptoms till July 2007 *Left Sided UC*
Lialda - 2.4mg 2x Day
Rowasa 1x (for spot treating and flare ups)
Centrum Multi-Vitamin 1X Day
Lexipro- 1x Day 10Mg
Ambien- 1x Day 10mg
Omega 3 Fish Oil- 2x Day


quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 11/19/2007 2:11 AM (GMT -7)   
Awesome!!

Please stay on them for at least another week nightly and then go to every two nights....etc.

Keep us posted.

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 11/19/2007 6:14 PM (GMT -7)   
quincy- I just picked up 2 more weeks worth of Rowasa and will keep to your recommendation. Thanks again, you are a life saver!
Jeff, 23, Diagnosed July 2007 probably had it since 2005 but no real symptoms till July 2007 *Left Sided UC*
Lialda - 2.4mg 2x Day
Rowasa 1x (for spot treating and flare ups)
Centrum Multi-Vitamin 1X Day
Lexipro- 1x Day 10Mg
Ambien- 1x Day 10mg
Omega 3 Fish Oil- 2x Day


quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 11/19/2007 9:12 PM (GMT -7)   
I'm thrilled you're doing well on them...it's the butt meds that can be a lifesaver...I'm just the messenger..lol!

definitely keep us posted.

Curious....were you ever on pred? or has 5ASA been the only med of choice for you?

Were you always on Rowasa since diagnosis?

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 11/24/2007 7:22 PM (GMT -7)   
Quincy and all- I am back in remission thank goodness, all is well again I am still using Rowasa nightly probably for another week just to be extra sure and then taper off like quincy said to once every other night and so on. Quincy, just so you know I never have taken Pred or any steroids I am lucky that I didnt have to so I am quite happy with the results. What helped the most was the Rowasa it put me in remisison in a weeks time. And I have been on it for 2 weeks so far and able to hold it no problem. Thanks again for your advice all of you. I am still checking the bored and trying to stay active on it just to let you all know how much I appreciate your concern and help. :)
Jeff, 23, Diagnosed July 2007 probably had it since 2005 but no real symptoms till July 2007 *Left Sided UC*
Lialda - 2.4mg 2x Day
Rowasa 1x (for spot treating and flare ups)
Centrum Multi-Vitamin 1X Day
Lexipro- 1x Day 10Mg
Ambien- 1x Day 10mg
Omega 3 Fish Oil- 2x Day


quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 11/24/2007 8:34 PM (GMT -7)   
Hi..huge kudos for you sticking with them!!!
 
Now, this is totally my opinion.....I wouldn't call it remission, but would. I'd say your flare is now controlled....and while you're tapering and remain in a quiesced state...then I'd say you're in remission.
 
It's a word/state that is a result...again my opinion..that's not as important as the getting there learning the symptom/med connection/process.  As well...any regression that's consistent should require an increase of the Rowasa or to start them again if you're off them.   Just don't wait too long.
 
It took me 2 years to get it all figured out.

Definitely keep us posted.

quincy


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 11/24/2007 8:46:07 PM (GMT-7)

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