LadyHawk - I'm sorry to hear that you're feeling so down. But I totally understand why you are. We're hear for you!
I would suggest calling Centocor and asking them about
assistance for Remi. Perhaps contact your insurance carrier as well. There might be something out there that we don't know about
! Also ask them if you are near your out-of-pocket maximum. Maybe you're close to having them pick up the tab! (For the rest of 2007 at least.) Can your doctor right a note about
it being important for you to have and get you a better rate? This may take more than one call as some associates may not know. Does your insurance have a nurse assistance hotline? I know for many chronic conditions, insurance carriers will have you consult their nurses to make sure that all is being done for your care.
Would it be possible to stop the Imuran and continue Remi treatments as a way to weed things out? I don't know - and probably should know - about
quitting Imuran... Can you go back on once you've been off? Does your body build up a resistance like it does to Remi?
I would suggest consulting with the surgeon. That way you'll know more about
choices and options. A consultation doesn't mean you'll have surgery - it's just a time to ask questions and learn :)
Where are you located? Sometimes family isn't your only support. Friends can work wonders as well.
Mitz's advice about
not letting yourself feel guilty is right on! I think that's something most of us can use a reminder about
Hugs! Hang in there :)
Pan-colitis and GERD diagnosed May 2003
Asacol 12 per day, Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use. Started Azathioprine because I was steroid dependent.
Co-Mod for the UC forum