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robinogue
New Member


Date Joined Nov 2007
Total Posts : 3
   Posted 11/12/2007 3:14 PM (GMT -7)   
Hi, I am new to the boards. My son (20yr) has been diagonised with colitis, right now he's having bad flareup's -- we've been on steroids twice and this will be his third time and taking asacol for maintenance. The doctor decided to put him on 6mp of course I'm worried about the side effects. Does anyone have any advice how to get him out of the flare up stage and into the maintaining stage? He had it for over 5 months before it was diagonised and now we've been dealing with it for over 3 months. Any help is greatly appreciated as I know nothing about this.

UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 389
   Posted 11/12/2007 3:15 PM (GMT -7)   
I also had a lot of trouble getting out of a flare until I took azathioprine (which metabolizes into 6MP). I'm much better now, but it takes a a few months to start working.
12 Asacol
100 mg Imuran
6 or 9 fish oil pills
4 Acidophilus pills


robinogue
New Member


Date Joined Nov 2007
Total Posts : 3
   Posted 11/12/2007 3:19 PM (GMT -7)   
thank you so much for replying, this is all new to me I feel helpless that I cannot help my son deal with this. So are you handling the medication well? I'm so stressed about the side effect are you having any? The doctor has put him back on the steriod to keep him maintaining until the 6mp can have a chance to work.
 
thanks again for replying.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 11/12/2007 3:33 PM (GMT -7)   
Hi and welcome to Healingwell :) Do you know where in the colon his Uc is? Has he ever tried rectal meds? I've been on 6mp for over a year and it has been a godsend for me. I was stuck in a year long flare and becoming steroid dependant (steroid enema). And it helped me get my life back. Yes their can be initial side effects but they usually go away after the body become accustomed to it. Initial side effects can be headaches, nausea, fatigue and some hair loss. Plus when you go on these drugs, it's important to have frequent blood tests to be sure the liver is handling it well.


 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, 6mp, Prilosec, Biotin, Forvia, Pro-Bio 
Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


robinogue
New Member


Date Joined Nov 2007
Total Posts : 3
   Posted 11/12/2007 3:41 PM (GMT -7)   
Hi Sherry, oh I can't tell you how relieved I am to find this site and to have you responding. I have such a headache and near tears after talking to the doctor. My son has it everywhere, the doctor mentioned rectal meds but because it's everywhere he said 6mp is the only way to go. He is also steroid dependent, he does good when he's on them but the minute they take him off he goes back into bad flare up's, he was using the bathroom over 20 times a day and most times he can't hold it and goes in his clothes. The doctor did tell me about the liver he said they would have to keep check on it and about 3% of people develop pancaritis so once he starts we will be going every two weeks for a blood test then the doctor said once a month after the first few months.
 
thank you, thank you!! I hope to get him out of his flare up's soon.

Bmshurt
Regular Member


Date Joined Oct 2007
Total Posts : 28
   Posted 11/12/2007 4:33 PM (GMT -7)   
Really sorry to hear that your son got this terrible disease at sucha young age. Im 35 years old and was just diagnosed this year, couldnt imagine being 20 and getting this. I have had 2 flare up since being diagnosed and both lasted 1 month. Doctor put me on Predisone which seem to help but has many side effects. Not sure what your sons diet is but make sure he is eating no Dairy, Processed Foods/Drinks, and no Fried Foods during flare up. I ate apples, plums, broth/soup, soy yogurt, and drank LOTS of water. This may not work for everyone, especially since most of time during flare up loss of appetite and worring about that next BM makes it difficult to eat anything. Im not a doctor so cant give you a professional opinion but can tell ya that support from a loved one really helps.  Best of Luck to ya.
Medication:
Predisone 20MG Daily
Imuran x2 Daily
Probiotic x2 Daily
Multivitamin x1 Daily
Oscal Calcuim Tabs X2 Daily
 
Diagnosed with UC in May of 2007
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 11/12/2007 4:58 PM (GMT -7)   
Robinogue, you're likely to hear as many diet recommendations here as there are people. Each person seems to respond to different things. High fat foods, spicy foods, dairy, raw fruits and veggies and gas-producing foods (beans, cabbage, etc) are frequent offenders, but not for everyone. I tolerate dairy with no problem, but can't eat raw fruits or veggies. Others can't tolerate dairy at all.

One thing that may help is for him to keep a diary of what he eats. After a while, we tend to notice that every time we eat a certain thing we have trouble, then we can adjust our diets. I don't believe at all that food causes UC, but it certainly can make a flare worse and more painful if we eat the wrong things.
Judy
 
Left-sided UC diagnosed 2001.  Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years! 
 
Now in remission for almost two years. Remicade has been my wonder drug.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 11/12/2007 5:08 PM (GMT -7)   
Your son is going to face many challenges with this disease thru out his whole life. I was diagnosed at 22 so I know what it was like to be a young adult trying to cope with this. Somehow I muddled thru it all! If you haven't already done so, please visit www.ccfa.org for more information about UC - educate yourself and by all means please let your son know that he is welcome here anytime. He doesn't have to suffer alone because every one of us here deal with Uc every single day; some of us for years.


 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, 6mp, Prilosec, Biotin, Forvia, Pro-Bio 
Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 

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