Hi Sherry, oh I can't tell you how relieved I am to find this site and to have you responding. I have such a headache and near tears after talking to the doctor. My son has it everywhere, the doctor mentioned rectal meds but because it's everywhere he said 6mp is the only way to go. He is also steroid dependent, he does good when he's on them but the minute they take him off he goes back into bad flare up's, he was using the bathroom over 20 times a day and most times he can't hold it and goes in his clothes. The doctor did tell me about the liver he said they would have to keep check on it and about 3% of people develop pancaritis so once he starts we will be going every two weeks for a blood test then the doctor said once a month after the first few months.
thank you, thank you!! I hope to get him out of his flare up's soon.