Sara14-- more throat problems?

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Old Hat
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   Posted 11/12/2007 5:07 PM (GMT -7)   
I just read your comment in another thread that you have a sore throat again. Have you contacted the ENT who did your tonsillectomy? / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

tjf
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   Posted 11/12/2007 5:54 PM (GMT -7)   
Oh good call Old Hat. My son has ear tubes and his ENT told me he wants to see him w/ any ear issues. I bet yours would want to know about this too.
Tabitha (Tab)

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http://www.healingwell.com/donate
Co-Moderator UC Forum


Sara14
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Date Joined Mar 2007
Total Posts : 4034
   Posted 11/12/2007 7:30 PM (GMT -7)   
Hi, Old Hat and Tabitha. Thank you so much for the thoughtful suggestion.

Yes, unfortunately, I have another infection in my throat. My throat is all swollen and red and there is a little white pus again. I called the ENT this morning and talked to his nurse. She told me to see my primary care physician first, so that's what I did. My strep test came back negative, but my PCP put me on antibiotics since she saw some white pus and she said it could possibly turn into an abcess again if not treated. I'm kind of scared because my throat feels the same as last time and last time I didn't respond to the antibiotics they gave me.

Do you think I should call the ENT again tomorrow to let him know what my PCP said?
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - every other night
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil and Fiber Choice; Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed


Old Hat
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Date Joined Feb 2007
Total Posts : 5135
   Posted 11/12/2007 8:22 PM (GMT -7)   
YES, definitely! Don't let the nurse get in your way ... the ENT should most certainly be told about this ASAP. Sorry to hear that you're feeling under par again. I feel like Mitz did when she read that Beth75 was getting worrisome recommendations from her doctors-- she wrote back that she wanted to drive B. to a specialist for 2nd opinion. Except that she's in MN & Beth is in MA! We who are older get very concerned if it seems like you younger patients get the run-around. It happened to us, too, at times. Grrrrr. Drink plenty of fluids to help flush out whatever bacteria is attacking ... / Old Hat

Sara14
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Date Joined Mar 2007
Total Posts : 4034
   Posted 11/13/2007 8:59 AM (GMT -7)   
Well, I have another message in to the ENT. I hate when the receptionists and nurses don't actually pass along my message to the doctor and when I get bad advice from them. It's so frustrating. I'm trying to drink lots of water but it hurts so much to swallow.

Thanks again for your help.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - every other night
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil and Fiber Choice; Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed


Sara14
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Date Joined Mar 2007
Total Posts : 4034
   Posted 11/13/2007 8:59 AM (GMT -7)   
P.S. - I'm at work and my boss has strep throat and my co-worker has another bacterial throat infection, so I'm trying really hard not to get any of their germs!
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - every other night
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil and Fiber Choice; Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed


Old Hat
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Date Joined Feb 2007
Total Posts : 5135
   Posted 11/13/2007 9:50 AM (GMT -7)   
Gads! It may well be that you already did catch something from them ... At this point a really aggressive family member's participation could be helpful: do your mother & sister live nearby? Could they put in a call to the ENT on your behalf? I say this because a neighbor of mine kept getting put on hold by her longtime internist's office-- so her adult daughter got fed up after hearing about it, phoned the office & demanded to speak to the doctor, & then told him: "You should be ashamed to put off my mother this way after all the patients we referred to you over the years!"  That approach really got the doctor's attention! Maybe your relative could phone & say something like " I know you're very busy, but I'm really worried about Sara's repeat throat infections-- it's not like her to keep getting sick like this ..." (etc.) / Old Hat

Old Hat
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Date Joined Feb 2007
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   Posted 11/13/2007 11:23 AM (GMT -7)   
Another thought I just had RE your work situation: maybe the hygiene is bad there so infections keep incubating. It happened to a colleague of mine a couple yrs ago that his elementary school-age child kept getting infections; there was a threat of Kawasaki's syndrome developing-- so the family pediatrician recommended looking into hygiene at the school. The PTA got involved & found out that rest rooms there lacked soap. They launched a campaign to assure steady supplies of handsoap & paper towels, plus discussions on need for frequent handwashing at school. It seemed to have a positive effect on the ailing child's health. / Old Hat

Sara14
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Date Joined Mar 2007
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   Posted 11/13/2007 11:40 AM (GMT -7)   
Well, the ENT's nurse called me back again and she said she would have my ENT call my primary doctor and the ENT might want me to have another CT scan. I think the nurse actually consulted with the ENT this time, so that's good, otherwise I would have taken your suggestion of having a family member call. I don't have any family that lives nearby, unfortunately, but I'm sure I have someone who would call anyway.

Yeah, that's a definite possibility about bad hygiene in my workplace. I practice good hygiene, including washing my hands often and using hand sanitizer, but I don't know if others at my work do. However, we do have soap and paper towels, thankfully! Interesting story about the elementary school.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - every other night
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil and Fiber Choice; Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed


Old Hat
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Date Joined Feb 2007
Total Posts : 5135
   Posted 11/13/2007 12:24 PM (GMT -7)   
Sounds like things may be moving in the right direction. Good luck & let us know how you're doing. / Old Hat

tjf
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Date Joined Dec 2005
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   Posted 11/13/2007 12:37 PM (GMT -7)   
Glad they called you back. Hopefully you will feel better soon! I have a preschooler so I know all about germs:) Keep the hand sanitizer by you at all times!!!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


Sara14
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Date Joined Mar 2007
Total Posts : 4034
   Posted 11/13/2007 4:24 PM (GMT -7)   
Well, the ENT himself called and spoke to me briefly. We decided to see if I get any better by tomorrow after I see my PCP for a follow-up. If not, I'll go in and see the ENT and get a CT scan. I hope I feel better by Thursday because I have a GI appt. an hour away. Too many doctors appointments!
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - every other night
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil and Fiber Choice; Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed


Old Hat
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Date Joined Feb 2007
Total Posts : 5135
   Posted 11/13/2007 6:32 PM (GMT -7)   
No, it's good that you have the appointment because your GI should know that you've been fighting recurrent infections. In my earlier stage of UC treatment, my gastro used to ask me 1st thing if I had many colds, etc. It's the immune function-- they should hear if you have other health problems. Take care. Hope you can find time to rest with all this going on. I'm sorry that these troubles have been dogging you-- it's not fair! / Old Hat

Sara14
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Date Joined Mar 2007
Total Posts : 4034
   Posted 11/14/2007 8:30 AM (GMT -7)   
Good point, Old Hat. I will definitely let him know.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - every other night
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil and Fiber Choice; Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 11/15/2007 7:20 PM (GMT -7)   
Well, my throat is feeling a lot better. Not a hundred percent normal, but better. I just hope it doesn't get worse again.

I had a good appt. with my GI today. He sat and talked with me for about half an hour and answered all my questions. He wants me to stay on 12 Asacol/day but said I could stop the enemas altogether. I got to see pictures of my colon from my c-scope 2 months ago, which was pretty cool! I didn't have any ulcers, but just mild inflammation in the rectum. Since I only have inflammation in the rectum, I don't understand why he said I can quit the enemas though.

I told my GI about all my recent illnesses and he said he didn't think it was related to any of my UC meds at all or even related to my UC. He said he thinks it's probably just bad luck. He said if I continue to get sick often, I could get tested to see if I have an underactive immune system, but that it would be unlikely since I have UC (an overactive immune system). Does that differ from anything your GI has told you?
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - every other night
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil and Fiber Choice; Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed


Old Hat
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Date Joined Feb 2007
Total Posts : 5135
   Posted 11/15/2007 9:33 PM (GMT -7)   
This doctor sounds personable, but not as well informed about UC management as he should be. The research evidence points to improvement in remission of UC with continuation of 5-ASA enema therapy. It's cited in the Web article I posted in a thread here last weekend-- so have a look at it when time permits. Studies have shown that the majority of UC patients present with some degree of left-sided inflammation; therefore, rectal meds are an important part of treatment even for patients on oral meds. Did he say how he would have you tested for "an under-active immune system"? I've never heard any such comment. Glad to read that your throat feels better, though, & hope you'll feel well real soon. / Old Hat

Sara14
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Date Joined Mar 2007
Total Posts : 4034
   Posted 11/16/2007 8:48 AM (GMT -7)   
Hi =)

I don't know if he used the words "under active" for sure or not, but I think he did. Anyway, he said I could go to an immunologist for that test if I wanted to. I guess they can test it through blood samples. But, again, he said it would be unlikely since I have UC. I'm kind of confused about discontinuing the enemas, too, since I only have rectal inflammation. Don't they treat the rectum better than oral drugs? I asked him about going on steroid enemas just to get me into remission and he said he would prefer not to, b/c he thinks the small amount of inflammation I have will be less harmful to me in the long run than side effects of pred. And I'm not having that many UC symptoms right now, but I still want to be having none. I wonder if the suppositories would help my rectum heal.

I'll check out that article you posted last weekend. Thanks.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed


Old Hat
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Date Joined Feb 2007
Total Posts : 5135
   Posted 11/16/2007 9:58 AM (GMT -7)   
It seems like what you really could use effectively right now is that 5-ASA rectal foam which Knitty_Cat has written about. (It's not yet available in the U.S., though!) So, if you have a supply of Canasa, use them for a while-- maybe 2X per week while continuing Asacol. The other alternative (before steroid liquid retention enemas) is Cortifoam, 10% steroid rectal foam. That is excellent to use for a couple weeks to speed healing in the rectum & is very unlikely to cause side effects. Maybe you can print out that article for your GI & take it along to next appointment-- since he's not totally "with it" as to UC meds. I think Quincy would agree on this!   eyes  / Old Hat

Sara14
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Date Joined Mar 2007
Total Posts : 4034
   Posted 11/16/2007 6:11 PM (GMT -7)   
Thanks again for the suggestions. I don't have Canasa...I've never used it. I was going to ask my GI about this, but forgot. I was thinking it might help the rectum area more than the Asacol or even the enemas. I don't know if my GI would want to prescribe Cortifoam to me either, since it doesn't seem like he thinks I should be on any type of steroid right now since I'm really not having many symptoms. I think that's what I meant to ask him about, but I got it confused with hydrocortisone enemas. But, I will definitely print out that article for my appt. with him in March. I really do like this GI a lot besides the fact that he might not be as knowledgable about UC meds as I'd like.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 11/19/2007 8:33 AM (GMT -7)   
Yes, he definitely seems an improvement over the creep who set you back with the unnecessary & rough flex-sig. Do you have any Rowasa left from the earlier prescription? If so, use once or twice weekly 'til you see him next & can ask about Canasa. We really should get a petition going to the pharmaceuticals RE production in U.S. of that 5-ASA rectal foam. I'm sure it would beat Canasa any day! / Old Hat

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 11/19/2007 9:03 PM (GMT -7)   
Yeah, I still have Rowasa at home and some refills. I used one last Friday night. Sometimes when I use them, I feel like I have double the amount of BMs and urgency the next day. Like on Saturday I had about 5-6 BMS and more urgency than normal, whereas lately I've only been having about 2-4 BMs a day with minimal urgency. But then 2 days after I use them, I usually feel pretty good. It's confusing. I did read through that 5-ASA article you posted here and it was really informative. It seems I should definitely be on some sort of rectal med, according to the research cited in the article. And, I agree about the petition to get the rectal foam. It's kind of ridiculous that we don't have it here.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed


Old Hat
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Date Joined Feb 2007
Total Posts : 5135
   Posted 11/20/2007 10:53 AM (GMT -7)   
I really feel bummed over the production issues RE 5-ASA rectal meds, especially after what Trixy recently turned up. She claims generic Rowasa has not been effective for her, which is what *Jen* wrote to a thread in the summer. So that's 1 issue: is the generic as effective in reducing inflammation as the original Rowasa? Then Trixy turned up some 1999 info on a recall of Rowasa due to patient reports of non-absorption, or something like that. Therefore, issue #2: How are we supposed to know the extent to which liquid SHOULD be absorbed? That relates to what you write about having more & less formed bms the day after use-- which has also happened to me & probably to many other UCers. It's the opposite of what happens with the steroid retention enemas; they do absorb fully overnight. Before Trixy cited this recall, I had never heard of problems with original Rowasa; now I really wonder-- because I used it a lot thru the 1990s. I was absolutely dependent on it until Colazal came on the market, and Colazal is the 1st 5-ASA I took that did not contribute to or perpetuate D! Disturbing when one thinks it over!!!!! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
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