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BMmachine
New Member


Date Joined Jun 2007
Total Posts : 10
   Posted 11/13/2007 6:53 PM (GMT -7)   
I have stopped taking Prednisone effective Monday. I have been having a lot of urges to go to the bathroom and it turns out that it is gas and mucus. The urges really come right after I eat anything. Sometimes I will have urges within 15 minutes of each other, and I go to the bathroom and it turns out to be nothing but gas.

In these phantom BMs, I still see a little blood every now and then. The majority of the time, the blood seems to be coming out in solid form (maybe it's trying to clot and it is trying to heal? ).I have been eating a lot of pasta recently and I've been wondering if it might be from the tomato sauce, so I'm going to not eat tomato sauce anymore for awhile.

I also have stated taking acidophilus and trying to eat more probiotics such as yogurt and Kraft Live Active cheese. Dairy really hasn't caused a problem for me in the past, so I don't think that is the problem but I'm willing to give lower my dairy intake.

I'm just wondering what do you guys think?
4g - Pentasa per day
75mg - 6-mp per day
1 multi vitamin per day
5mg prednisone per day for a week...will be pred free on nov 12 (is this a good thing?)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/13/2007 8:20 PM (GMT -7)   
Well you can never be too sure with dairy, I have crohns and it masked my lactose intolerance (that I didn't realize I even had) very well...eating processed foods isn't something I do anymore since I know it can exacerbate IBD symptoms along with fast-foods, caffeine, animal fat, processed sugar.

My GI told me to take a fibre supplement daily, it's done wonders, no more excessive gas, no more bloating, mucus, unformed BM's, much less frequency, I can tolerate eating fibreous foods now without getting all gassy and bloated, many benefits and I only take one fibre supplement at night before bed.

And "yes" regarding probiotics.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


candi75
Regular Member


Date Joined Nov 2007
Total Posts : 25
   Posted 11/13/2007 9:50 PM (GMT -7)   
Every time I flare, I too have those empty urges with what appears to be clots of blood. I've often wondered what that means. Just wanted you to know that you are not alone.

quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 11/14/2007 3:16 AM (GMT -7)   
It means your rectum is inflamed....ask the doctor to give you some rectal meds ... either a 5ASA or steroid.

They'll help until your body starts producing enough cortisol on its own.

The rectum is the first place to be affected and the last place to heal...on pred or on oral/rectal meds.

When you eat, it will trigger the sigmoid to "download" and if there's anything in the rectum already (inflammation/blood/mucus) it will be pushed out.

Don't wait too long to try the rectal meds.

The suggestion of a fibre supplement will help too...

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


BMmachine
New Member


Date Joined Jun 2007
Total Posts : 10
   Posted 11/14/2007 7:08 AM (GMT -7)   
Qunicy, Thank you very much for you post. How did you learn about this? Do you have any more information on this? I would like to read up this situation if possible. Thanks again.

pb4, How many grams are your fiber pills? I should try to take this route in helping my colon out. Thanks for your help as well.
4g - Pentasa per day
75mg - 6-mp per day
1 multi vitamin per day
5mg prednisone per day for a week...will be pred free on nov 12 (is this a good thing?)


schrek-chewbacca hunk
Veteran Member


Date Joined Jun 2005
Total Posts : 2666
   Posted 11/14/2007 8:04 AM (GMT -7)   

For me cow dairy does this a great deal.  I have tapered from pred and have not noticed an increase in gas.

 

Good Luck

bob


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 11/14/2007 8:12 AM (GMT -7)   
Dairy's a prime offender, but so is gluten. Increased pasta intake could be part of the problem. Foods that gave you no problem in the past could easily be problems for you now, with a compromised digestion.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years. Down to 10 mg and feeling much better.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/15/2007 5:27 PM (GMT -7)   
yes, quincy, you are a life saver... or at least you always have the info im lookin for...

im having rectal inflammation at the moment and it sucks ass! haha
i wouldnt have known if not for you.

all my current symptoms and such lead to the rectal inflammation thingo... good to know.
ive started my colifoam again for this reason.
hope it starts working soon!

still have the white knucklers tho!
i've asked my mom for toilet handlebars for christmas!!
31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only.
**3 weeks out of hospital/no colitis symptoms... normal bm's only 1x a day + no blood
50mg prednisone 1x  with lunch or breakfast
50mg imuran 1x  8pm stopped it to try and have a baby
2x 500mg mesalazine 2x day + night
VSL#3 didnt work
Aloe Elite didnt work
Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/15/2007 7:49 PM (GMT -7)   
Steve :)

I take it in caplet form and it doesn't specify the amount per cap so I couldn't tell ya...I use Prodiem (widely available in Canada where I am) but it's similare to metamucil.


:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


cap'n colitis
Regular Member


Date Joined Nov 2007
Total Posts : 51
   Posted 11/15/2007 9:16 PM (GMT -7)   
Your symptoms are exactly what happens to me. I learned the hard way not to ignore gas and mucous. If you don't hit it head-on at the start, it ain't going away!!!!! It's only going to get worse.
 
I'm probably preaching to the choir here, but just do like Barney says, and...
 
NIP IT IN THE BUD!!!!
 
 

quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 11/16/2007 12:14 AM (GMT -7)   
Steve....experience and asking a lot of questions of my doc is how I learned...as well as increasing rectal meds asap symptoms arise.

I think you should nix the dairy products such as yogurt and the cheese with live cultures and just use probiotics for a while. There are a few excellent ones to choose from, but some work better than others for us..really it can be trial and error. The reuteri is one that's a great start...they can be taken up to 3 times a day. I use Protec by Natural Factors...3 at night on an empty stomach, and once in a while I add the reuteri.

Please start on rectal meds....truly!

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 11/16/2007 12:17 AM (GMT -7)   
kazygirl said...

still have the white knucklers tho!
i've asked my mom for toilet handlebars for christmas!!

LOL....can see that it would help ...high or low ones? straight or curved?...maybe she can ask OCC to help out with the design....vrooom vrooom!
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/17/2007 6:04 PM (GMT -7)   
OMG! last night and this morning were horrible. i had gas the whole time and it was so painful and uncomfortable im just getting all upset. was doing so well with the normal bm's and no blood... guess what was in the toilet just a minute ago. blood. lots of it.
im hoping it is just from the big poo and all the gas in my colon and won't continue.
but man, this flare better not be coming back.
does pred just stop working?
31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only.
**3 weeks out of hospital/no colitis symptoms... normal bm's only 1x a day + no blood
50mg prednisone 1x  with lunch or breakfast
50mg imuran 1x  8pm stopped it to try and have a baby
2x 500mg mesalazine 2x day + night
VSL#3 didnt work
Aloe Elite didnt work
Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 11/18/2007 2:28 AM (GMT -7)   
scary...frustrating...and depressing to be sure when it never goes away. I've never been on pred, but I know for some it doesn't work at all...or it takes a long while for it to kick in. Were you on pred (and it didn't work) before you went on imuran? Is that why the switch?

Why aren't you on asacol and the 5ASA enemas? I would suggest you at least try/add them or in steroid form.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/18/2007 5:34 AM (GMT -7)   
i went into hospital on 15th -23rd. was on hydrocortisone injections 50mg x4 day. went home on 23rd started taking 50mg of pred. a day. been on it since. got 6 weeks total on it before taper. so 2 weeks to go then i go down to 40mg..
was put on imuran in hospital. about 5 days before i started the pred. i want to have a baby, decided since i was only 3 weeks in on the imuran, to stop it now before it was too late to stop it.
i use colifoam at night.

tried the salofalk enemas before but got all the side effects and couldnt hold it in. so i dont use those.

im also on mesalazine 2 500mg 2x a day.

ive used pred maybe 3-4 different times before during this year long flare, but low doses and they didnt do much. this seems to have been working except for the relapse here and there.

like just today, had a fully normal bm. but it hurt like hell of course. but not in the whole colon colitis sense. just when its on its way out. which is an improvement for sure.
the gas last night sucked, but i remember gas pains sucking even without a flare, so im just a little on the confused side as to whats going on.
i definitely know im going in the right direction.. was just wondering if anyone had the experience of pred working then all of a sudden just not working?
or i could just be paranoid and jumping the gun a little and expecting to heal quicker than i can...

who knows anymore.. its been sooooooooo long....
31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only.
**3 weeks out of hospital/no colitis symptoms... normal bm's only 1x a day + no blood
50mg prednisone 1x  with lunch or breakfast
50mg imuran 1x  8pm stopped it to try and have a baby
2x 500mg mesalazine 2x day + night
VSL#3 didnt work
Aloe Elite didnt work
Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 11/18/2007 10:46 AM (GMT -7)   
Call your doc and maybe try the Salofalk suppositories..at least...to help deal with the butt agony while having bms.

Put out another posting on your question about pred so that you'll get full attention.

Are you in Canada?

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/19/2007 1:16 AM (GMT -7)   
im in australia

and i did the prednisone question..
maybe i will bump it with the new info..

cheers
31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only.
**3 weeks out of hospital/no colitis symptoms... normal bm's only 1x a day + no blood
50mg prednisone 1x  with lunch or breakfast
50mg imuran 1x  8pm stopped it to try and have a baby
2x 500mg mesalazine 2x day + night
VSL#3 didnt work
Aloe Elite didnt work
Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 

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