Finally Prednisone Free!

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monidad
Regular Member


Date Joined Jun 2007
Total Posts : 54
   Posted 11/14/2007 10:18 AM (GMT -7)   
I have not had prednisone for two days now. I am willing to take short victories if needed right now. I was tapering for the better part of the summer and into the fall, and as of this Monday I am off prednisone for the first time in a while. I have some really good days (2-3 BMs per day), and some days that are not as good (5-7 BMs per day). The great part, so far, is that even the not so great days are much better than when I was forced to go on prednisone. The 5-7 BM days are without D, cramps, or bleeding, and I have not woke up over night to go. Something appears to be kicking in, I do not know if it is the Imuran or the Remicade, but I will continue both of them, and keep my fingers crossed. I do not think that I can go on prednisone again. The last side effects were really bad.
Glenn
UC diagnosed 2004

Asacol 9 tablets daily

Canasa PRN/ Currently 1x in evening

Prednisone- 30 mg as of 6/8/07, Increased to 50mg 6/18/07, 0mg as of 11/12/07!!!! Finally!!

Lialda 4 tablets daily

Multi vitamins

Azathioprine 50mg

4th Remicade Infusion 11/21/07


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 11/14/2007 11:07 AM (GMT -7)   
that is awesome!!! Congrats! I still have a while and just got moonface........

I'm glad the imuran and remicade are working for you!!!
Beth, 32
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 150mg 1xday nightly;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 80mg 2xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 11/14/2007 12:35 PM (GMT -7)   
Congrats! I feel the same way about pred. I was on & off (mostly on) for a year. It definitely helped my UC but I hated the way it made me feel.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


LadyHawk701
Regular Member


Date Joined Nov 2007
Total Posts : 49
   Posted 11/14/2007 1:04 PM (GMT -7)   
Thats great news!!  I starting my 2 week with no Pred and so far so good.  So you don't know if the AZA or the Remi is what helping you?  That's the same boat I'm in right now.  Is your GI going to keep you on both?  I'm scared to stop the Remi, but it's soo expensive.  I wish there was a way to tell which drup was helping.  Anyways, congrats!  I hope it continues to go well for you:)
32 yrs Mama to Katie and Jack
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Rowasa, Asacol, Colazal, Entorcort
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Flagyl, Remicade, Demerol, Prednisone, Antibiotics
Prednisone tapering currently down to 5mg
Imuran 100mg
Remicade every 8 wks next treatment the week of Thanksgiving:(
Zoloft 100mg, Percocet, Phenergen, Fish Oil, Biotin
 
 


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 11/14/2007 2:25 PM (GMT -7)   
That is the best feeling. Congratulations!
Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
Biotin
Calcium
Remicade remission


UCreallySUCKS
Regular Member


Date Joined May 2006
Total Posts : 260
   Posted 11/14/2007 6:47 PM (GMT -7)   
I'll be right there with you in about 4 days!

---Nathan---  31 yr old male
Diagnosed May 2006 w/severe UC (pancolitis)
Currently in mild flare
2 400mg Asacol 4X day 2 Lialda/day (we'll see how that goes)
5mg Prednisone
1 multivitamin/day
2 grams calcium/day
75mg Imuran/day
100mg Tramadol/day for abdominal pain (as needed)
1 Fioricet ever 4 hrs as needed for severe migraines


philly-fan
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 11/14/2007 8:12 PM (GMT -7)   
Awesome. Keep it there.
Steve


Asacol 1200mg-3x a day

Probiotic=metagenics ultra flora plus DF

Hydrocortizone when needed

Off the prednesone since September 8th (omg)


Heart meds

Lipitor,Toprol, aspirin 81

synthroid


monidad
Regular Member


Date Joined Jun 2007
Total Posts : 54
   Posted 11/15/2007 12:43 PM (GMT -7)   

LadyHawk

I met with my GI today. He thinks that the Remicade is starting to kick in. If I do get symptomatic he will change the dosage of imuran, and the dosage and frequency of the Remicade before considering Prednisone. If prednisone becomes my only option I will then explore a surgical solution. In the meanwhile I am staying on all meds. My MD said that generally Remicade works as long as you take it. If you stop, then you will get symptomatic.


Glenn
UC diagnosed 2004

Asacol 9 tablets daily

Canasa PRN/ Currently 1x in evening

Prednisone- 30 mg as of 6/8/07, Increased to 50mg 6/18/07, 0mg as of 11/12/07!!!! Finally!!

Lialda 4 tablets daily

Multi vitamins

Azathioprine 50mg

4th Remicade Infusion 11/21/07

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