Please help, I need some answers.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Ryoko
Regular Member


Date Joined Mar 2005
Total Posts : 291
   Posted 11/14/2007 5:51 PM (GMT -7)   
I need some help and a little advice. I am scared and in intense pain, I went for my second colonoscopy in a year and it was abnormal. They found and removed some polyps and took pictures of diverticulitis and diverticulosis and loads of inflammation. I have been suffering through this since June and am at my wits end. He tried to give me antibiotics but I have taken rounds of the same stuff twice and it did not work. So he told me to wait till after the biopsy and he would call me. I still haven't been able to get a hold of him and the anti-spasmodic gives very little relief. I have lost about 32 pounds and now my hair is coming out in handfuls. I am nauseous and the diarrhea well let's just say it makes life past the bathroom door near impossible. I have really bad RA but cannot take my metho because of the inflammation. He (my gastroenterologist) thinks it is either UC or Crohn's and all I want is to be normal again! Is this stuff I am going through familiar to either one of these diseases and is there anything to help the pain and suffering?

Ryoko
Diagnosed Insulin Dependent Diabetes 2001, Seizures 2001, Scleroderma 2005, Rheumatoid Arthritis 2006, Raynaud's 2006, Diverticulitis 2006, Lupus 2006
Meds: Plaquenil, Avandia, Insulin, Teveten, Prilosec, Lipitor, Prednisone, Actonel, Methotrexate, Folic Acid, Calcuim + D..tasty, B-12, Ativan for flares after that who needs a meal??......

"Don't touch it - It's evil!!!!!"


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 11/15/2007 5:45 AM (GMT -7)   
Hi - Do you have blood and/or mucus with your D? Did the Dr. say why he was prescribing antibiotics for you?
Current Medications:
- Asacol (4 pills, 2x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


DeniseW
Regular Member


Date Joined Nov 2005
Total Posts : 346
   Posted 11/15/2007 7:12 AM (GMT -7)   
It sounds like he should have given you something if he's pretty sure it's those. Sounds like you've got a lot going on through, so I have no idea what to tell you. You can always go to the emergency room if it gets too bad. Then he'll be (or someone else will be) pretty much forced to do something imediately.
Wish you the best. I was there with my last flare and I'm so sorry you're having to go through that.
dx 4/05 with pancolitis UC after birth of my second child...
18 months of vit e enema and scd remission
Flare since 7/07...almost to surgery, now almost well through mostly natural stuff
Trying to make up the difference with...
Lialda 4/day
Remicade 10/26, 11/09, next 12/3
Imuran 50mg at night 11/11
 
Been there, tried that....
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 11/15/2007 9:13 AM (GMT -7)   
I second the question - do you see blood when you go to the bathroom? Is there a lot of mucous? Where is the pain located? Did you get the results of your polyp removal and if so, were they benign? I know the most common symptom of diverticulosis is abdominal pain and left side tenderness. I wish I could help you more :( I can however tell you the typical signs of having an IBD - bloody diarrhea, abdominal pain/cramps, urgency, mucous, frequency, and sometimes low grade fevers.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, 6mp, Prilosec, Biotin, Forvia, Pro-Bio 
Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


sdaless
Veteran Member


Date Joined Jun 2005
Total Posts : 1396
   Posted 11/15/2007 12:17 PM (GMT -7)   
It sure sounds to me like you have some kind of IBD going on. I would keep calling the doctor back unti I got an answer. If worse go to the ER. I sure hope you feel better soon.

Stacy
Current meds are:
 
Asacol 6 pills a day
Lexapro 20 mg once a day
Ativan .5 mg when needed
 
 
 


Ryoko
Regular Member


Date Joined Mar 2005
Total Posts : 291
   Posted 11/15/2007 2:06 PM (GMT -7)   
Hello,
To answer the question about blood- there was a lot, it was bright red and looked like I was bleeding to death. Since starting the anti-spasmodic not so much blood. Always muscousy, low grade fever and pain, he mentioned I was toxic?? I was tested for C-Diff and it came back negative. I am still waiting for his findings on the colonoscopy results as well as the biopsy. The nurse said she would call me back today. I am worried because this thing runs in my familyon my mother's side. My great grandmother died from her stomach rupturing, my grandmother had half of her stomach removed, my great aunt died from colon cancer and UC, and my mother suffers through pain and diverticulitis, no polyps yet though. I know stress probably doesn't help but how can I not??

Melissa
Diagnosed Insulin Dependent Diabetes 2001, Seizures 2001, Scleroderma 2005, Rheumatoid Arthritis 2006, Raynaud's 2006, Diverticulitis 2006, Lupus 2006
Meds: Plaquenil, Avandia, Insulin, Teveten, Prilosec, Lipitor, Prednisone, Actonel, Methotrexate, Folic Acid, Calcuim + D..tasty, B-12, Ativan for flares after that who needs a meal??......

"Don't touch it - It's evil!!!!!"


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 11/15/2007 2:54 PM (GMT -7)   
Once you have your biopsy results, you should have a more definitive answer. The problem with gut issues is that so many diseases throw the same symptoms, so they have to rule things out... and the biopsies are very helpful in doing that. I know the waiting game is awful. HANG IN THERE.
Current Medications:
- Asacol (4 pills, 2x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 11/16/2007 6:07 PM (GMT -7)   
Hi Ryoko - the process of elimination and trying this and that to see what works is frustrating to say the least. In March and April my husband was in kind of the same boat you are describing. On Mother's Day I had had it and brought him to the emergency room.

He was in the hospital for 5 1/2 days and within hours he was out of pain for the first time in 2 months or so. He also needed almost 3 units of blood. CT scan, stool testing etc. and pain management and that is when the imuran was started as the asacol by itself just wasn't cutting it at all. 40 mg of prednisone was started with the imuran also. He was on a very slow taper and is now on 7 1/2 mg of prednisone and it looks like this time he might be able to get off it and stay off it for (I hope) a good while as the imuran seems to be what did the trick. Also the retention enemas (colocourt at first now cortifoam) and canasa suppositories.

I wish he didn't need to take so darn many meds but this is what worked for him relatively quick. In about 1 1/2 months after discharged from the hospital he was out and about and back into socializing. Each week we could analyze the progress bit by bit.

His flare was a really bad one - and yours sounds like it too.....I hope your Dr can start you on a regimine soon that will start to make you feel better. The frequency and urgency are tough - when they start to diminish and are less often it makes a big difference.

Try to hang in there and hang out here for advice, information and support. YOu have to advocate for yourself and discuss options with your doctor. My husband's local Dr here is great but I got a ton of info from here that I would jot down or print off and ask her about and even got her to try some different things. My husband is also under the care of the Mayo Clinic now who had some different approaches even though he was on his way to a remission. I think their help brought about a faster improvement as they are more aggressive. Our local Dr will continue his care following the lead from the Mayo Clinic as we need a local Dr as it is a 5 hr drive round trip to the Mayo Clinic.

I hope when your testing comes back and taking some info from here you can get on a better course to start you feeling better soon.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran 15 mg prednisone & tapering, 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enemas AM & PM, folic acid 1mg, Fosamax 1x month


Ryoko
Regular Member


Date Joined Mar 2005
Total Posts : 291
   Posted 11/17/2007 4:59 PM (GMT -7)   
Thank-you! I really appreciate your replies. I am still waiting...patiently. devil Monday however, probably not so patiently. Hope you all have a great evening!

Ryoko
Diagnosed Insulin Dependent Diabetes 2001, Seizures 2001, Scleroderma 2005, Rheumatoid Arthritis 2006, Raynaud's 2006, Diverticulitis 2006, Lupus 2006
Meds: Plaquenil, Avandia, Insulin, Teveten, Prilosec, Lipitor, Prednisone, Actonel, Methotrexate, Folic Acid, Calcuim + D..tasty, B-12, Ativan for flares after that who needs a meal??......

"Don't touch it - It's evil!!!!!"

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 12, 2017 3:51 AM (GMT -7)
There are a total of 2,904,305 posts in 318,744 threads.
View Active Threads


Who's Online
This forum has 158131 registered members. Please welcome our newest member, suzen.
224 Guest(s), 0 Registered Member(s) are currently online.  Details