Hi Ryoko - the process of elimination and trying this and that to see what works is frustrating to say the least. In March and April my husband was in kind of the same boat you are describing. On Mother's Day I had had it and brought him to the emergency room.
He was in the hospital for 5 1/2 days and within hours he was out of pain for the first time in 2 months or so. He also needed almost 3 units of blood. CT scan, stool testing etc. and pain management and that is when the imuran was started as the asacol by itself just wasn't cutting it at all. 40 mg of prednisone was started with the imuran also. He was on a very slow taper and is now on 7 1/2 mg of prednisone and it looks like this time he might be able to get off it and stay off it for (I hope) a good while as the imuran seems to be what did the trick. Also the retention enemas (colocourt at first now cortifoam) and canasa suppositories.
I wish he didn't need to take so darn many meds but this is what worked for him relatively quick. In about
1 1/2 months after discharged from the hospital he was out and about
and back into socializing. Each week we could analyze the progress bit by bit.
His flare was a really bad one - and yours sounds like it too.....I hope your Dr can start you on a regimine soon that will start to make you feel better. The frequency and urgency are tough - when they start to diminish and are less often it makes a big difference.
Try to hang in there and hang out here for advice, information and support. YOu have to advocate for yourself and discuss options with your doctor. My husband's local Dr here is great but I got a ton of info from here that I would jot down or print off and ask her about
and even got her to try some different things. My husband is also under the care of the Mayo Clinic now who had some different approaches even though he was on his way to a remission. I think their help brought about
a faster improvement as they are more aggressive. Our local Dr will continue his care following the lead from the Mayo Clinic as we need a local Dr as it is a 5 hr drive round trip to the Mayo Clinic.
I hope when your testing comes back and taking some info from here you can get on a better course to start you feeling better soon.
61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07 Oct 07 feeling quite normal most days. 150mg Imuran 15 mg prednisone & tapering, 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Cortifoam enemas AM & PM, folic acid 1mg, Fosamax 1x month