Hi Everyone -- in addition to computer problems which I think are finally resolved I can finally type and post.
I did post after our Aruba vacation late Oct. I had a 4 day trip to Tampa shortly after that and we just got back from Kanas City MO on Monday. That was our Garth Brooks trip and we went to 4 shows. Hubby did amazingly well. Needed a nap during the afternoon in prep for the concert shows. He didn't stand nearly as long as all the crazy fans did but had a great time. Eating and bathroom stuff taken care of before leaving for the concert and he never needed the Men's room for a "sitting spell".
His bathroom trips are not so spontaneous anymore which does allow him to do these type of things. We eat sensibly, smaller portions and make sure there is sufficient time for a bathroom trip before going out and then we are good to go.
When we are out and need to eat out needing a bathroom is unavoidable. He usually needs 10 minutes and then is fine.
Since this must be a remission of some degree we seem to have a way at the moment to keep it at bay and not flare.
On a scale of 1-10 probably an 8. Still needs the pain meds, down to 7 1/2 mg of prednisone and this tapering this time seems to be going ok.
His face is a mess though. It was the prednisone before that did it when he was not on the Imuran. Maybe it still is..but it really broke out when he went from the 75 mg to 150 mg on the Imuran.
Back to Mayo Clinic on Monday the 19th - follow up - I wonder if the Dr can prescribe something to clear that up. I know the anti biotics are not good but this needs some attention too as it is affecting other areas as well - ears, upper neck area.
I kind of pulled my back a little earlier today so I can't sit long. I will get caught back up with some of the posts and replying as soon as I can.
(Thanksgiving in another week..............geez where does the time go??)