Posted 11/18/2007 4:16 AM (GMT -6)
tabitha...tell me again why you aren't on the retention enemas?

ask the doc for them rather than the suppositories.

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 11/18/2007 4:18 AM (GMT -6)
tjf said...
I had gotten my Canasa samples and prescription a year ago. Wow...I have used only 6 in the last year.
What exactly does that mean...that you only used 6 of what?
 
q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 11/18/2007 7:38 AM (GMT -6)
My GI gave me 6 canasa suppositories samples over a year ago. In that year I only had one time (I don't exactly remember when). I saw mucous and used them for 4 nights. Things went back to normal. I had 2 left. Used them Fri, and Sat. Will ask for the retention ones when I call. Q...thinking back we talked about both and my GI decided on the suppositories. Unfortunately my brain will not recall the conversation and why we did those over Rowasa (too many mornings of cartoons have fried my brain cells!).
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum

Post Edited (tjf) : 11/18/2007 6:00:57 AM (GMT-7)

Posted 11/19/2007 10:19 AM (GMT -6)
Go right back to the full dose of Colazal if you feel a flare coming on. I hesitated for a couple days in July & just added a couple Rowasas to my "step-down" dose of Colazal. That stopped proctosigmoid inflammation, but my descending colon blew! Within a couple days of return to full Colazal dose the whole flare started to subside. Phew! Blessed relief, and I wish you the same. Take care. My gastro advised to stay at full dose for at least 3 months after signs of a flare! / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily; seem to be back in remission)
Posted 11/19/2007 10:23 AM (GMT -6)
P.S. on oatmeal: if you can't tolerate the "old-fashioned" oats cooked to a creamy consistency, try farina. It's warm in the tummy & generally stays put for a reasonable while-- in my experience. / Old Hat
Posted 11/19/2007 11:56 AM (GMT -6)
I upped the Colazal this weekend. Thanks for the tip on the 3 months!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum

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