Hi! Thanks for the suggestion! Guess you can tell that I am new!
My history with UC is rather short, but full of too many meds in my opinion. Suppose not nearly as many as some, so I guess I shouldn't complain.
Has my first sign of colitis almost 3 years ago. Was given enemas and some meds (can't remember now what they were). I also started drinking mangosteen juice at the time and with all of it my symptoms went away. I was mainly having bloody stools. No pain and no loose stools. Then this past March, I started having bloody stools again (very slight). But going into April things got much worse (loose stools, pain, fever, weight loss, fatigue, ect.). I was in the hospital by the end of April.
While in there I was given steriods through the IV and asacol. Can't remember now how much. My regualr dr. tried to taper me off of the steroid in about a month and by the end of that month all symptoms were back and I was back in the hopital for a weekend stay.
I then went to see a GI dr. He switched me from Asacol to Lialda (4 tabs a day) and put me back on prednisone. 40 mg per day for 1 month then I tapered by 5 mg. every 2 weeks until I got to 20 mg. I then tapered by 2.5 mg every 2 weeks. By the time I got to 10 mg, I was so tired of being swollen up the GI dr. let me taper by 2.5 mg every week.
By the time I got down to 2.5 mg. I was starting to have another flare. He had me start taking 10 mg of prednisone again and I was scheduled for another colonoscopy with 2 weeks of that. Was getting NO relief from the increase in prednisone.
I had the scope done and it showed that the entier large colon was inflammed. I was having A LOT of pain, loose stool, weight loss again, & bloody stools.
A couple of days after the scope I decided that I DID NOT like the sound of the 3 options that he said I had which were, take azathioprine the rest of my life, have surgery, or try another med that is so expensive our insurance would probably drop us. I started drinking the mangosteen juice every day again. Within 2 days I could tell a difference and that my symptoms were improving. Within 3 weeks I was once again symptom free.
I went back to see my GI dr. about 10 days after the scope. And by this time I was feeling REALLY good. At that time I was still taking 10 mg of prednisone and 4 Lialda tablets a day, which I still don't feel that the combo of those did anything for me. He asked me how I was doing and I told him that I felt great. He asked me what I was taking and I told him about the juice. Of course since it wasn't some prescription med, he laughed it off and told me that I still had to take the azathioprine.
Well stupid me, even though I have still been feeling great, I started taking the new med 2 weeks ago (100mg). I got myself off of the prednisone even though he didn't tell me too. He wants me to start taking 200 mg of the azathioprine starting this coming Monday, but I'm going to stay at 100mg if not go down to 50mg.
I know that not everyone feels comfortable with trying natural remedies, but after reading what all azathioprine can and will do to a person, I am willing to try the natural or alternative stuff. And I guess for me, it is working so far with the juice I take (which I would HIGHLY recommend)!!!
So I want to get off of the azathioprine before I get too far into it. Any suggestions would be greatly appreciated.
My stats for right now
UC of the entire large colon
100 mg - azathioprine
4 tabs - Lialda
3-6 oz mangosteen juice a day
probiotic tabs before each meal