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SamIam104
Regular Member


Date Joined Jul 2007
Total Posts : 22
   Posted 11/17/2007 9:45 PM (GMT -7)   
Hi,

Sam is scheduled for another colonoscopy because we cannot get this bleeding under control. She had one in May that's how she was diagnosed but I just wonder how often these are done for UC people. Should she & I expect to have these often? Is it a part of the "norm" It is very costly (10K) was the first one thankfully insurance paid (after serious fighting on my end) 90% originally they only paid half.

Anyway the prep is really hard for Sam, she is really tiny she is only 80 pounds at 14 and basically she has HGD (hormone growth deficiency, Basically doesn't grow) so if you can imagine a 14 year old who is about the size of 9 year old. Predisone is bumping her size up.

Anyone have any thoughts about making the prep a little easier for her?? Any thoughts are greatly appreciated
Jennifer Mom to Sam I am (14 yr old girl)
Meds
Cortifoam twice a day
35 mg Prednisone
Asacol 4 times a day @400 mg ea
6MP 1/2 tab every other day
Multi Vitamin


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 11/18/2007 12:08 AM (GMT -7)   

Not sure what prep she has to take. My daughter takes the Fleet Phospho-soda. Last year, the first time she was very sick. She did OK but the 2nd time she had to drink (in the afternoon) she really had a tough time and threw most of it back up. She also drank it with lemon-lime gatorade (which she used to like) but since then hasn't been able to enjoy the gatorade!

This time (about 3 weeks ago) she used the same gatorade again (why ruin another drink for life!). We made sure the gatorade and the prep were cold in the refrigerator. She drank from a straw. She didn't stop until she was done. A bit nauseous but she didn't throw up. Lots of controlled breathing to get her through. She also ate less a day or two before the prep. Less to come out!

The doctor would like to do another colonoscopy in about 6 months, hopefully when she is feeling well so he can get a look when she is healthy. Luckily her colonoscopies are covered by our insurance.

Bratcat is not underweight or height so her prep is treated like an adults. She does go to a pediatric GI.


--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 60 mg prednisone, 1-1/2 tabs 6-mp
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly!
Summer 2007 - slowly began tapering Rowasa
9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 11/18/2007 5:21 AM (GMT -7)   
I don't think that any prep for a cscope is easy on anyone! Scope frequency depends on how sick an individual is. Because the sicker you are, the more often they are going want to do scopes to see what's going on in there. But typically, and this varies, you will have the initial scope, another maybe 5-10 years later (depending on your symptoms) and after the 10 year mark, many get the scopes every 2 years. This was my schedule with plenty of flex sigs in between.
 @--->--SHERRY--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-75mgs), Prilosec, Biotin, Forvia, Pro-Bio, Hydrocortisone enemas**Unable to tolerate Asacol, Rowasa or Canasa** 
~Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)~
~Secondary Reynauds Syndrome - '04 - Norvasc~
~Fibromyalgia - '06~
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
 
 
 
 

 
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 11/18/2007 6:07 AM (GMT -7)   
Sorry she has to have another scope. I had one 3 1/2 years ago. My current GI says he wants one at the 8 year mark unless I have a big flare w/ lots of bleeding.

As for the prep....I would say afterwards when she is ready to eat have some foods she likes and can tolerate easily. I remember I was starving after I slept off the medicine they gave me to sleep!

Let us know how it goes.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 11/18/2007 6:44 AM (GMT -7)   
I get them every two years because my mother (who did not have IBD) died of colorectal cancer.

Bennie already gave you my best tip - drinking the prep through a straw. That puts it in the back of your mouth, past most of the taste buds so you don't taste it so much. Make sure you have a really good barrier cream. I'm sure everyone has their favorite, mine is A&D ointment because the vitamins help the skin on my bottom begin to heal at the same time the ointment helps keep the liquid away from it.

Sorry she has to do this again. The prep is the worst.
Judy
 
Left-sided UC diagnosed 2001.  Taking Colazal and Imuran, Remicade infusions and moving into remission. Finally off steroids after four years! 
 
Now in remission for almost two years. Remicade has been my wonder drug.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 11/18/2007 7:51 AM (GMT -7)   

All my tips for this past prep came from everyone's suggestions here! Cold liquid, using a straw made a big difference. Eating lightly for a few days prior was common sense.

I hope Sam is doing well soon. yeah


--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 40 mg prednisone, 1-1/2 tabs 6-mp
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone.


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 11/18/2007 8:16 AM (GMT -7)   
The bigger the straw, the better, the quicker you can get the drink in.  I use a large straw that came in a sports bottle.

diagnosed with uc 27 years ago.
asacol 400 mg 3 tabs 3x a day
hoping for remission soon


LadyHawk701
Regular Member


Date Joined Nov 2007
Total Posts : 49
   Posted 11/18/2007 8:41 AM (GMT -7)   
I will be having my third one the 11 of Dec.  My first one was in 05 and I sucked on those red and white peppermint candies inbetween drinks of the prep.  That really helped me.  My second prep I was in the Hospital and barely remember preping at all.  I do remember having a commode by the bed.  Have your daughter try the peppermint between drinks it might help.  And I think the colder the drink the better. 
32 yrs Mama to Katie and Jack
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Rowasa, Asacol, Colazal, Entorcort
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Flagyl, Remicade, Demerol, Prednisone, Antibiotics
Prednisone tapering currently down to 5mg
Imuran 100mg
Remicade every 8 wks next treatment the week of Thanksgiving:(
Zoloft 100mg, Percocet, Phenergen, Fish Oil, Biotin
 
 

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