Where should I start

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peacelover1
New Member


Date Joined Nov 2007
Total Posts : 1
   Posted 11/18/2007 5:24 PM (GMT -7)   
I am still in the process of being diagnosed and thought I would ask for some advice about how to get my issues under control. My GI tract has been like a war zone over the last year and I am waiting on the path results of colonscopy done last friday.
 
To date:
Endoscopy: gastris but no other abnormality-treated with cipro, fluroque,flagyl
Celiac Panel-normal
Urine test for carcinoids-negative
Liver sono-normal
CBC panel-serum immunoglobin very high-doc says that indicated inflammation
Gastric Emptying-shorter than normal empty cycle
Small bowel follow-thru study-barium reached colon in 7 minutes-normal time is 30-40.
 
So that sent me to get a colonscopy
 
Visual results show abnormal mucosa, erythema,congestion and petechiae in whole colon, sigmoid colon, rectum,ileo-cecal valve,descending colon, ulcer in sigmoid colon-so can we just say everywhere...1 polyp removed from transverse colon.
 
GI doc put me on Asacol  2x per day -which I am just reading is for ulcerative colitis. He told me I had colitis and path would show the rest but my symptoms aren't jiving with UC I don't think..that is where ya'll come in...
 
I have to be very,very careful what I eat. Bread, pasta, potatos all send me hurling(literally)to the rest room. Lettuce, eggplant, zucchini and most veggies send me running to the restroom the other way-mid-meal sometimes I BETTER find a restroom quick.
 
  • I alternate between constipation and diarhhea-
  • I have some bleeding but thought it was just my roids-doc says he can't tell that really
  • I am always bloated-sometimes putting food in just will not work. If I am constipated I will throw up just about everything I try to eat-my 'go to' food eggs now make me sick-
  • I am anemic-just came off being a vegetarian...but that is getting under control with meds but still have little energy
  • I have pain/cramping in my gut but nothing like the kind of miserable pain I am reading about here-it sucks but it does not put me out of commission. Pain gets pretty severe on the right side sometimes but still...not like what I am reading
  • I walk everyday(just finished a marathon in April)so I relieving stress :) but am having some mudheadeness in the last few months that makes it hard to concentrate.
 
I go back to the GI in 6 weeks. My family is tired of hearing me get sick, I am tired of being sick.
Everything is just very unpredicable right now-foods I used to be able to eat make me ill, I eat something one day and think it is alright and the next day it makes me sick-what the heck am I supposed to eat???
 
If ya'll were me where would you start to get your self well-
 
All suggestion are most appreciated!
Peace~
Melissa
 
 
 

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 11/18/2007 5:45 PM (GMT -7)   
Those surely don't sound like classic UC symptoms. I'm wondering about Crohn's, although that usually causes consistent diarrhea. You might check the Crohn's section here at HealingWell for more information on that condition.

I'm sorry I'm not very helpful, perhaps some of our other members will have more ideas for you.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 11/18/2007 7:22 PM (GMT -7)   
actually it sounds just like my very first flare except for the constipation. I was bloated all the time and everything made me sick.I was anemic, dehydrated, and very low pottasuim. just try eating very small amounts at a time, eat several times a day. I would stay away from raw fruits and veggies and sugar.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 11/19/2007 1:49 AM (GMT -7)   

 

http://www.pubmedcentral.nih.gov/picrender.fcgi?artid=496717&blobtype=pdf

 

While this article is long and possibly too much technogarbo...it might be worth for you to print it out, hilight pertinent info and process questions to ask your doctor while in the process of figuring out what's going on.

I 'm assuming  he's checked stool samples as well?

It seems the only thing you can do is research and go through all the tests until a definitive diagnosis is found.

Hang tough...it's always more difficult going through this stage it seems.

Welcome to the forum Melissa!

quincy

 

 



*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 11/19/2007 5:51 AM (GMT -7)   
Hi Melissa, welcome to Healingwell :) I'm so sorry you are having a rough go at the moment. There is nothing like not knowing what the heck is going on in your body! I don't want to really say either way if you have an IBD, but one thing you mentioned does tend to stick out is that an ulcer was found in the sigmoid. That is highly indicative of an IBD because, if I'm not mistaken, the other types of colitis's don't form ulcers just visible and microscopic inflammation.

Regarding the Asacol, this med is not only to treat UC but Crohns and other types of colitis's because it is an anti-inflammatory for the colon.

Do you know when you will be getting your biopsy results in?
 @--->--SHERRY--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-75mgs), Prilosec, Biotin, Forvia, Pro-Bio, Hydrocortisone enemas**Unable to tolerate Asacol, Rowasa or Canasa** 
~Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)~
~Secondary Reynauds Syndrome - '04 - Norvasc~
~Fibromyalgia - '06~
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
 
 
 
 

 
 

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