Posted 11/19/2007 2:10 AM (GMT -7)
Paul...poor you for having to go through such a hell week! I had an ear infection when I was about 6...I can STILL remember the pain!!!!

Your colon does look quite nasty...as goofy as this sounds, I hope you're getting the placebo.

I agree...the next month has got to be better!

Thank you for keeping us updated.

Feel-better wishes bsent your way!

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 11/19/2007 9:00 AM (GMT -7)
Thanks everyone. Last night I got a good nights sleep. It was the first time in about a month that I did not wake up overnight because of an ear infection pain or to go to the washroom. Hopefully things are getting better.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision
 

Posted 11/19/2007 11:48 AM (GMT -7)
Ah...zzzzzzzz smurf   
q


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 11/19/2007 12:12 PM (GMT -7)
Oh no! I am so sorry you are going through so much. My 2 year old got ear tubes in April b/c he had so many ear infections. I have only had 2 but boy I know they hurt. And on top of everything else! You hang in there! Keep us posted. I enjoy reading your posts.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

https://www.healingwell.com/donate
Co-Moderator UC Forum

Posted 11/19/2007 2:42 PM (GMT -7)
Holy cow, Paul -- you've been through the wringer. I'm glad you are starting to feel a bit better in regard to the ear infection and good to hear you got some rest. Hope the little one is feeling better soon too.

Carol

Remicade - will have my 19th infusion on December 27.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 

Posted 11/19/2007 8:39 PM (GMT -7)
Thanks Tabitha and Carol,

Other then in my childhood I don’t remember ever having an ear infection before. Even when I search for information about ear infections I have to include the word adult or I only get info about children.

This is only the second time my daughter has had an ear infection. The antibiotic she is taking is a banana flavored liquid that is given into her mouth with a syringe. The first 2 times we gave it to her she fought against it. I had to hold her down while my wife gave it to her. The first time she actually spit it out. Now it is much easier to give it to her. She actually cooperates and even gets it from the fridge when it is time. I think she finally realizes that it does help. She stayed home sick 3 days last week and went to school today. She is feeling much better.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision
 

Posted 11/19/2007 9:04 PM (GMT -7)
Aww, poor little peanut. Glad that she is taking the medicine like a big girl....and tell her I said so. She should be very proud of herself! Glad to hear she is feeling better...now to keep Mom from getting it!

Carol

Remicade - will have my 19th infusion on December 27.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 

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