Feedback on entecort?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 11/19/2007 8:57 AM (GMT -7)   
Though I don't want to take steroids, my doctor may prescribe entecort (instead of prednisone). 
 
I've noticed that there are many people on the forum who take prednisone but a lot fewer who take entecort.  From what I've been told, entecort offers similar benefits as prednisone with fewer side-effecs; so I'm wondering why more people aren't on it instead.
 
Does anyone have any feedback on entecort? Thanks.
Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatments, chinese herbs, VSL#3): didn't work and became anaemic.
Canasa, 2 daily: remission for a month then flared up.
Completed first (6-week) tapered course of Pred in 10/07, flaring up since coming off it.
Currently on: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite (not sure if it works).
Holding off from taking next dose of Pred as the side-effects were strong, but may have to give in if I'm not better soon.


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 11/19/2007 9:10 AM (GMT -7)   
Sorry, I've been mis-spelling it, so just in case someone's been wanting to look it up too - it's Entocort

Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatments, chinese herbs, VSL#3): didn't work and became anaemic.
Canasa, 2 daily: remission for a month then flared up.
Completed first (6-week) tapered course of Pred in 10/07, flaring up since coming off it.
Currently on: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite (not sure if it works).
Holding off from taking next dose of Pred as the side-effects were strong, but may have to give in if I'm not better soon.


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 11/19/2007 11:30 AM (GMT -7)   
I've taken Entocort one time in the past, and it did work for me. It comes with much fewer side effects, too. I wasn't able to use it during my last flare because I am pregnant and it is not recommended for use during pregnancy. My GI always wants me to try Entocort first. If it doesn't work, then we will go to Prednisone. The time I tried Entocort, it worked, and I never needed the Pred. I assume it will be the same protocol for future flares.
Current Medications:
- Asacol (4 pills, 2x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1611
   Posted 11/19/2007 1:12 PM (GMT -7)   
I have taken Entocort in the the past also. It worked great for me. The thing is though, probably the reason Doctors don't use this more often, is that Pred works faster. It took at least 2 months for the Entocort to kick in for me.
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium 
Currently in Remission


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/19/2007 5:16 PM (GMT -7)   
expecting226 said...
I wasn't able to use it during my last flare because I am pregnant and it is not recommended for use during pregnancy.
 
my GI told me that when i get pregnant he wants me to go on entocort (budesonide in australia) to keep my flare under control. 
im not on it now cuz im on 50mg of pred, but i plan on getting pregnant very soon and he said that i will need to go on it. 
a maintenance dose along with my mesalazine. 
 
budesonide/entocort does not get absorbed by the body like prednisone does so it is safer for pregnancy than the prednisone/steriods.  it supposedly goes straight to work on the colon.
 
i've used budesonide/entocort before for about 3 months and i stopped as it is $200 a bottle.  got a little spendy and i wasnt seeing any results.  so im not sure how good it works.
 
but im wondering about the whole pregnancy thing and who is right...
should i take it or not while pregnant?
 
 
steph - 31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only. 
50mg prednisone 1x day with breakfast
50mg imuran 1x  8pm stopped it to try and have a baby
2x 500mg mesalazine 2x day + night
colifoam 1x at night
now taking calcium supps for pred side effects
VSL#3 didnt work - Aloe Elite didnt work - Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 11/20/2007 12:50 PM (GMT -7)   
kazygirl - You should do your own research on the Entocort vs. Prednisone issue so that you can make a decision you feel comfortable with. There are do many do's and don'ts during pregnancy, that it is very hard to know what is the right thing to do (even down to simple things like whether or not to die your hair!).

I did my research when the flare arose, and I found that the studies were in line with the opinions of both my OB and GI. My OB is high-risk, and he told me that there is absolutely no issue with taking Pred during pregnancy. If you are on it for an extended period of time, you run the risk of developing gestational diabetes (which is also a risk for perfectly healthy pregnant women), but that is the only risk associated with it. Pregnant women take Pred for numerous reasons during pregnancy... rashes, asthma, pneumonia, and many other diseases. My own research agreed with that. There is a large body of research on Pred during pregnancy.

There isn't as much research on Entocort because it isn't as readily prescribed for various issues given that it targets the GI tract... and the research I found wasn't good. My GI wouldn't even prescribe Entocort during the pregnancy because of the birth defects associated with it -- and this is a GI at the Cleveland Clinic who has many pregnant patients on Remicade and 6-mp throughout their pregnancies. He isn't generally conservative.

So, I found that Pred was the choice I was most comfortable with for my flare taper.
Current Medications:
- Asacol (4 pills, 2x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 11/20/2007 3:50 PM (GMT -7)   
I've been on Entocourt for a couple of weeks now, trying to get off Prednisone. Not seeing much improvement. I haven't found anything that will get me completely out of this flare -- been mostly in a flare since diagnosis.
Diagnosed UC April 27, 2006
Remicade: 1st infusion 7/21/07; 2nd infusion 8/18/07; 3rd infusion 10/13/07
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, holding taper at alt. 5/0 mg; 9 mg Entocourt EC; Xanax as needd; Lexipro, Rowesa; Asacol; Colazal three 750 mg capsules 3X day;
[2/22/07 started Imuran, off within two weeks due to bad reaction]

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 11, 2017 2:13 PM (GMT -7)
There are a total of 2,904,085 posts in 318,718 threads.
View Active Threads


Who's Online
This forum has 158119 registered members. Please welcome our newest member, mmindc.
396 Guest(s), 9 Registered Member(s) are currently online.  Details
Michelejc, 1005tanner, PeppermintTea, eldonkey, Missouri, Mergirl, gumby44, sunnys80, JkorourkeRN for husband