Out of flare, finally

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UCJuly2007
Regular Member


Date Joined Aug 2007
Total Posts : 95
   Posted 11/19/2007 9:10 PM (GMT -7)   
Well, I think that I can finally say that I am out of my first flare since being diagnosed July 18.  No D, no blood.  Bathroom trips are around 2-4 a day.  It only lasted 4 months, hopefully the next won't be so long, or better yet, maybe there will never be another, wishful thinking anyways.  I visited the Gastro first part of November and he said that he really thought I would improve even more, that would be great.  I did change meds to Colozal from Asacal since I have lost half of my hair.  Luckily I had more than a fair share than most.  My hair stylist said that I had, "normal people hair now."  I am still seeing my PCP because he is treating me for my blood clot...still on blood thinners.  My blood can't decide if it wants to be thick or thin these days. 
 
I guess I just want to say thank you to all of you for helping me get through these first months of my diagnosis.  You all have offered such good knowledge of this disease, and I appreciate that.  I am more comfortable with it now, and don't get online as much, but when I do I am again always learning.  There are many of you that know so much and can answer every question.  Thanks!! :-)  
 
Smiles,
29/F Diagnosed UC July 18, 2007 
Meds: 3 Colozal 3x a day 6 Asacol 400mg Tab
         40 mg Prednisone Just finished tapering off, Yippee!
         2 30mg Tylenol #3
         1 1000mg Canasa Suppository as needed
         1 Calcium 500+D
         1 Cerovite Vitamin and Mineral Supplement
         1 325mg Ferrous Sulfate
          
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 11/19/2007 9:14 PM (GMT -7)   
UCJuly2007, glad to hear you are doing so well! That's awesome, and it's good to hear when people get out and are living life again...we love to hear that! This is an incredible forum, full of wonderful and caring people....and you being one of them!
Carol

Remicade - will have my 19th infusion on December 27.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29843
   Posted 11/19/2007 9:17 PM (GMT -7)   
I'm happy to hear you're feeling much better and that the Colazal is working for you....are you still using the Canasa?

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


UCJuly2007
Regular Member


Date Joined Aug 2007
Total Posts : 95
   Posted 11/19/2007 9:18 PM (GMT -7)   
I actually have not used the Canasa in about 2-3 weeks. 

Smiles,
29/F Diagnosed UC July 18, 2007 
Meds: 3 Colozal 3x a day 6 Asacol 400mg Tab
         40 mg Prednisone Just finished tapering off, Yippee!
         2 30mg Tylenol #3
         1 1000mg Canasa Suppository as needed
         1 Calcium 500+D
         1 Cerovite Vitamin and Mineral Supplement
         1 325mg Ferrous Sulfate
          
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29843
   Posted 11/19/2007 10:21 PM (GMT -7)   
oh...just to let you know that if you have any change in symptoms start them right away....

be well,
q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 11/20/2007 5:59 AM (GMT -7)   
That's great news. Congrats!!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 11/20/2007 12:49 PM (GMT -7)   
Awesome!Gives me hope too!I just start Colazal yesterday because i couldnt take the Asacol. Happy Thanksgiving!

Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 11/20/2007 3:02 PM (GMT -7)   
Good to hear that you're doing better! It gives me some hope too as I switch to Colazal from Asacol tomorrow. 
Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatments, chinese herbs, VSL#3): didn't work and became anaemic.
Canasa, 2 daily: remission for a month then flared up.
Completed first (6-week) tapered course of Pred in 10/07, flaring up since coming off it.
Currently on: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite (not sure if it works).
Holding off from taking next dose of Pred as the side-effects were strong, but may have to give in if I'm not better soon.


Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/20/2007 4:37 PM (GMT -7)   
Congrats! I wish for a long remission for you. I just have to ditto Heather about hitting the Canasa as soon as you feel a symptom coming on. My GI prefers that I don't stop entirely. He says it is best to do at least 1 a week.
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission;
Nexium; Probiotic; Multi-Vitamin; Flax Seed Oil
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  11/2/07 Ending 5 month remission w/mini-flare :-(


UC Fighter
Regular Member


Date Joined Oct 2007
Total Posts : 89
   Posted 11/20/2007 5:06 PM (GMT -7)   
Congratulations, and hopefully I'm right behind you heading to remission.
Current Prescriptions:
 
40 mg 30 mg Prednisone per day, 1 x per day
Sulfasalazine, 3x per day
   1500mg @ Breakfast, 1500mg @ Lunch, 1000mg @ Dinner
1 Mesalamine Enema per night

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