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cap'n colitis
Regular Member


Date Joined Nov 2007
Total Posts : 51
   Posted 11/19/2007 11:26 PM (GMT -7)   

I have a close call story! Back in early September (Labor Day), I took a fantastic bike ride. I love to ride in the summer, and there is just the most awesome network of trails around my city (Denver, CO). So I start off by my house, and I get a good pace going. I have this personal "rule" where I can't let anyone pass me. If I see someone coming up in my rear-view mirror, I step it up for about 10 minutes and almost always, I will leave whomever has crept up behind in the dust and I can go back to a more relaxed cadence. Well, no matter how hard I rode that day, this one guy kept catching me... I'd lose him, and then 10 minutes later he'd be back behind me again. It was really pissing me off because of my petty little "rule" to myself, and I really wanted to shake him off my tail. So anyway, right at about 12 miles, I started getting cramped up. I ate a pretty big breakfast earlier, and thought I was ok, but then I start hearing that voice in my head, it's like the HAL computer from "2001: A Space Odyssey", only it's my colon talking to me. 

"Dave? I think it's time we find a toilet, Dave" ...

"Oh! c'mon HAL! Not now, I'm doin' 25 and this clown is behind me, and I have to shake him!"

"Dave? Just what do you think you're doing, Dave? You need to find a toilet, or the cramps that you're experiencing are going to become ....very unpleasant. We don't want that to happen now, do we Dave?"

"How come you acted like you were fine before we left this morning? I gave you a FULL HOUR and not even a hint, and you pull this NOW? You're so full of crap!"

"Exactly, Dave. Are you sure you are making the right decision?"

"10 more miles and I'll be at Confluence Park and I'm sure that there will be a crapper there. Cut me some slack just this once! C'mon HAL, I've had no warning no nothing. Just cut me that much slack! 30 minutes!"

"I'm sorry Dave, but I'm afraid I can't do that. This conversation can serve no purpose anymore. Goodbye."

The cramps were unignorable now, so I slowed way down. As the guy behind me passed, he cheerfully said, "Boy, I've been behind you since Bear Creek Park, you must have thought that I was chasing you!" I wanted to say, "And I'd have dusted you for good too, if I didn't have to crap my brains out right now!" But, instead, I forced a smile and bid him a good ride.

I pulled off the trail onto a street that dead-ended right at the trail. Immediately I started surveying the area for possible places to "go".  In sight, there was a dive-bar that wasn't open (even if it was I'm not sure how good it would have been walking in there all sweaty in lycra shorts and fouling their rest-room; it wasn't the best area in town to be making that kind of a scene in front of their likely patrons..There was also a muffler shop closed for Labor Day and a medical prosthetics place, also probably closed, but I couldn't tell.

Then, the most amazing thing happened. This is a true story. Where I happened to pull off the trail was a contruction site. They were putting in a new strip mall, and alas, there was a portapotty right next to me!!!  I was so busy looking at businesses across the street, I hadn't noticed for almost a minute. I mean, it was as if the sky opened up and the good Lord Almighty reached down from the heavens and put it there .. just for me! The best part, the shedule inside showed that it had been cleaned that morning! Heh..

"open the pod bay doors please, HAL"

So after that ordeal, I manged to ride a total of 50 miles that day, with only that slight interruption. A really great ride, but I never did catch up to that guy who was behind me though..

"I feel much better now, Dave. I really do"


Male - Age 39
Diagnosed in 1988
Moderate Pan Colitis 10 years ago, but mild and fairly controlled since then
40mg Pred 30mg Pred 25mg Pred 20mg 15mg Pred
100mg Azathioprene
1600mg Asacol
Calcium Supp
Fish Oil Supp (or Flax Seed)
20mg Omeprazole
 
 
 
 


vietvet
Veteran Member


Date Joined Jan 2005
Total Posts : 1510
   Posted 11/20/2007 12:29 AM (GMT -7)   
hey, cap, welcome to the forum. i haven't posted for a while, but i had to when i saw your post. you remind me of a friend over on the crohns forum named 'sniper'. he also has a way of spinning a yarn. most of his are based in reality too. if you're ever killing time here, jump over to the crohns forum and read some of his stuff.

i hope dansky sees your story. he will be able to relate since he is heavy into pedal power. myself, i like riding, but i like the motorized variety.

since you are a 2001 fan, i gotta tell ya, i have hal on my computer at boot up saying, "i am completely operational, and all my circuits are functioning perfectly."

and when i am shutting down the computer, it says, "just what do you think you're doing, dave?"

it looks like you've reconciled living with your special gift.......might as well, it don't git no better! of one thing you can be sure, you'll have plenty more 'close calls' to draw on for a story.

vv

quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 11/20/2007 1:05 AM (GMT -7)   
Great story....a white-knuckler of a different sort..lol !!!

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 11/20/2007 5:05 AM (GMT -7)   
Awesome story! Quite entertaining if only it didn't come at such a personal expense for you :) You have a talent for writing for sure.
 @--->--SHERRY--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-75mgs), Prilosec, Biotin, Forvia, Pro-Bio, Hydrocortisone enemas**Unable to tolerate Asacol, Rowasa or Canasa** 
~Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)~
~Secondary Reynauds Syndrome - '04 - Norvasc~
~Fibromyalgia - '06~
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
 
 
 
 

 
 


BlizzMan
Regular Member


Date Joined Mar 2006
Total Posts : 40
   Posted 11/20/2007 6:08 AM (GMT -7)   

Captain,

 

Boy I know the feeling.  I went to the Tour this summer and rode some of the great climbs in France, Col de Peyresourde,  Col du Tourmalet, Col d'Aubisque, Superbagneres, Hautacam & Luz-Ardiden.  On several of the climbs, I was well ahead of others in the group when I had to find a secluded spot to commune with nature even though I did not want to stop.  Despite the damage to my manliness at having to stop, it was still a great experience.  Often times it is one of the few things that keeps me going.

 

It seems that Remicade has stopped working for me so I am on to Humira next.  But I never want to stop biking. 

 

Have not seen any posts from Dan lately?


Blizzman
 

Diagnosed 1996

Meds
Remicade, Prevacid, Azathioprine, Azulfidine
 
Supplements
Iron (ferrous sulfate), Omega 3, Vitamin E, C
 


cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 167
   Posted 11/20/2007 8:46 AM (GMT -7)   
Great story!  I also bike, but am more of a "utilitarian" cyclist.  I ride as an alternative to driving.  Though I rarely do longer rides, I haven't done one since getting sick.  I ride to work everyday (that I feel like it) and even though it is only a 20 minute ride, I still look for spots along the way to make a pit stop.  Riding in 6 inches of snow and a -15F windchill in Nebraska is a challenge I look forward to this time of year!  Cycling is a great way to get exercise, as you can go as fast or as slow as you want.  And it is a great form of transportation! 

Dx Left-sided UC Dec. 2006
Currently:
Azathioprine 150mg/day
Prednisone 2.5mg/day- back up to 7.5 (trying to taper-started at 60 6/1)
Lialda 4/day
Multivitamin, B complex vit., fish oil, calcium, fiber supplement, probiotic


cap'n colitis
Regular Member


Date Joined Nov 2007
Total Posts : 51
   Posted 11/20/2007 8:47 AM (GMT -7)   
vietvet said...

since you are a 2001 fan, i gotta tell ya, i have hal on my computer at boot up saying, "i am completely operational, and all my circuits are functioning perfectly."

yeah! Mine says "I'm sorry Dave, but I'm afraid I can't do that.." whenever I get a "critical error". What I love the most is that my name is actually Dave :)
Male - Age 39
Diagnosed in 1988
Moderate Pan Colitis 10 years ago, but mild and fairly controlled since then
40mg Pred 30mg Pred 25mg Pred 20mg 15mg Pred
100mg Azathioprene
1600mg Asacol
Calcium Supp
Fish Oil Supp (or Flax Seed)
20mg Omeprazole
 
 
 
 


cap'n colitis
Regular Member


Date Joined Nov 2007
Total Posts : 51
   Posted 11/20/2007 9:14 AM (GMT -7)   
BlizzMan said...

Captain,

 

Boy I know the feeling.  I went to the Tour this summer and rode some of the great climbs in France, Col de Peyresourde,  Col du Tourmalet, Col d'Aubisque, Superbagneres, Hautacam & Luz-Ardiden.  On several of the climbs, I was well ahead of others in the group when I had to find a secluded spot to commune with nature even though I did not want to stop.  Despite the damage to my manliness at having to stop, it was still a great experience.  Often times it is one of the few things that keeps me going.

 

 

 
 
That sounds like quite the experience riding those peaks and passes. I really do try to make sure I give myself time to get cleaned out before a ride. It's only happened a couple of times, but it just throws your whole rhythm off when you have to stop. You lose all your momentum, but such is life! I'm just glad that I can ride at all. Colitis is an inconvenience to me. I'm sure a lot of people would be so fortunate as to have it to the degree that I have it. So many people who are just debilitated by this disease...I count my blessings every day, as I could have this so much worse..
Male - Age 39
Diagnosed in 1988
Moderate Pan Colitis 10 years ago, but mild and fairly controlled since then
40mg Pred 30mg Pred 25mg Pred 20mg 15mg Pred
100mg Azathioprene
1600mg Asacol
Calcium Supp
Fish Oil Supp (or Flax Seed)
20mg Omeprazole
 
 
 
 


Bad Gut
Regular Member


Date Joined Feb 2007
Total Posts : 304
   Posted 11/20/2007 11:24 AM (GMT -7)   
Great story Cap'n I love the fact you can see the humor in it and besides now I know I'm not the only Denverite out there at Bear Creek with UC riding my bike. It helps to know I'm not alone I've had to stop many times this summer in and around the Bear Creek area for secluded spot or a god given portapottie. I hope you were training for the Buffalo Classic Century that day? It was the following weekend in Boulder I rode that century with out any problems bathroom wise. Hope to meet you riding the Platte or Bear Creek someday!!!!
Diagnosed Feb 2007
12 Asacol Daily
Rowasa nightly
Multi-Vitamin Daily
1 Probiotics pill daily - Culturelle with Lactobacillus
Tumeric and Garlic supplement 2x daily


vietvet
Veteran Member


Date Joined Jan 2005
Total Posts : 1510
   Posted 11/20/2007 8:37 PM (GMT -7)   
hey cap,

you ever serve with 'general colon bowel' over on the crohns forum?

what is it about guys named dave and bicycles? dansky? i know you're still about.

vv

kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/20/2007 9:42 PM (GMT -7)   
OMG.. the thought of sitting my tender tush on a little bicycle seat sounds almost too uncomfortable to imagine.

you guys/gals are hardcore!
steph - 31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only. 
50mg prednisone 1x day with breakfast
50mg imuran 1x  8pm stopped it to try and have a baby
2x 500mg mesalazine 2x day + night
colifoam 1x at night
now taking calcium supps for pred side effects
VSL#3 didnt work - Aloe Elite didnt work - Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 


doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 635
   Posted 11/20/2007 9:47 PM (GMT -7)   
really funny story...
 
Don't forget to tell "Hal" to open the bay doors to jettison it off into outer space afterwards...
 
...space equivalent of "a courtesy flush."
 
haha

Thanks for the laugh, I needed it


Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
 
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 

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