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Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 11/20/2007 8:23 AM (GMT -7)   
has anyone ever had one of these? This is really embarassing, but I don't know if I may have one or not! I thought I was getting my period, this past Saturday. It wound up being just spotting, brownish, not clotty at all. I still am having very little dischargs, a little bit of spotting. Not to be too gross, but it doesn't smell like stool or anything. I just don't know what the symptoms are- if I should be having pain or itching or anything. Supposedly they're fairly rare in UC, but.... me being paranoid!!!!! I guess what I'm asking is if I did in fact have a fistula, would I definitely know? Is it heavy discharge, constant discharge, real smelly, etc???? Help someone!!!!! I suppose if it stops in a day or so, I would know that it was just my period. Also- this would've been the first period I've had in months & months, I think due to the pred, the fact that I've been flaring for a year or so, my anemia, low body weight, etc.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Prednisone- 20mgs/day
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 11/20/2007 8:30 AM (GMT -7)   
Typically you would know if you had a fistula. The symptoms are extreme pain at the location of the abcess, a fever, followed by an immense sense of relief when the abcess breaks and creates the fistula. At this point you might consult with your ob/gyn or wait and see if the symptoms disappear.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 11/20/2007 8:48 AM (GMT -7)   
what a relief! See, I would assume one would have pain, but wut when you look on the internet for symptoms, a lot of sites just say "drainage of stool thru vagina", etc. Seeing as the discharge started like a period, I'm going to assume it's a false menstrual alarm, & hope it goes away in a day or so. Plus, you'd think it would get worse if it doesn't go away.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Prednisone- 20mgs/day
 


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 11/20/2007 1:54 PM (GMT -7)   
Eva,

I had a fistula and there was no pain whatsoever.

What we need to understand is that not all fistulas are the same and even if they are the same they may be at different stages. Some fistulas break through to the skin as mine did and there was discharge without pain, in other cases there's pain because it hasn't broken the skin as yet and there's buildup. Discharge can be a yellowish color or clear at times and it may smell a bit...you may want to have a GI or rectal surgeon check you out.

ps.
I believe fistulas usually require surgery to resolve as it did with me.

NBT


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 11/20/2007 2:44 PM (GMT -7)   
ugh! I knew it wouldn't be so simple! now, did you have constant discharge? For a long period of time, or just on & off? I guess if it continues & I'm still unsure of what's going on, I'll have to have someone check it out. It just burns me- I just was able to avoid a proctocolectomy (double dose of remi finally kicked in!), & now I may be looking at surgery for this! The discharge I am having is mainly brownish, also a little yellowish- it does look like menstrual blood, but it's not the same viscosity/texture, etc. Was yours vaginal, or to your skin? And did it go on for awhile before you got it checked out? Also- did you know right off the bat that something wasn't right? Know what I mean? I'm not too worried yet, because I am still unclear if it's just spotting, or something else. It's very, very, very light- I mean, I've had a panty liner on all day (about 12 hours now) & there's just tiny flecks on it.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Prednisone- 20mgs/day
 


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 11/20/2007 4:00 PM (GMT -7)   

My apologies Eva...but I'm a male and the fistula was an anal fistula. sad  

Over a period of weeks, I saw many doctors (who didn't have a clue) before finally seeing a rectal surgeon, who discovered what the problem was. In your case, you may have an infection, fistula...who knows...but maybe you should get it checked out sooner rather than later if you can.

NBT


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 11/20/2007 4:29 PM (GMT -7)   
hahaha!!!!! too funny. I suppose when you communicate via the internet, mistakes happen! oh boy! well thanks for the info anyway- I am of the type that prefers to hang back & let things sort themselves out, if possible. I'll dot hat for a month or so, then head to a doctors. I already have a good GI, thankfully, & have met with a good rectal surgeon, so at least those bases are covered.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Prednisone- 20mgs/day
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 11/20/2007 4:56 PM (GMT -7)   
Eva, I've had chronic, off and on vaginitis with symptoms just like yours ever since I started on Imuran. Repeated doses of medication haven't cleared it, but now that I'm tapering the Imuran it seems to be much less. You might have your doctor check this out.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 11/20/2007 5:33 PM (GMT -7)   
Interesting....I know Imuran does carry some wacky side effects with it. Although I'm pretty pleased with how it helps my UC. Or something is helping it nicely, who the heck knows what exactly! eyes Thanks for all the info, people! per usual, I' m probably freaking out over nothing, but will keep you posted on what happens.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Prednisone- 20mgs/day
 


UMDTerp2001
Regular Member


Date Joined Sep 2006
Total Posts : 246
   Posted 11/21/2007 8:21 AM (GMT -7)   
Hi EvaLou-
 
I had the displeasure of getting an rectal exam last Fri for the first time (argghh!) for what I believe to be a fistula with all of the symptoms that one reads about. Well except for the acute discomfort of having a doctor ram things up my bum and the accompanying pain from the air they used I was informed that I do in fact have a fistula. A horse-shoe fistula to be exact. I was prescribed Flagyl / Cipro and have read that this is a first line of defense to see if it will clear up. The surgeon wanted me also to test for Crohns as it is evidently more common so now I need another colonoscopy. I'll start the anti-biotics after I get scoped. After trying the antibiotics for a month or so if no improvement ill look at surgery as an option. I think they have some procedure where they put some type of glue in the fistula to help close it up. Dont know if this helps but wish you well in healing your fistula.
 
 
__________________________________________________________________________________
- 29 y/o single IT professional male residing in Northern VA, USA
- UC Diagnosis - April, 2006 - Symptoms were sudden and drastic
- GI did not determine type of UC as I was too inflamed during the c-scope
- Completed 3rd Prednisone taper on 4/13/07 - Tapered from early January through mid-April after being hospitalized from a bad flare with anemia & severe joint pain.
- Currently in remission and enjoying life again since getting out of the hospital in early Jan 07' from a nasty flare
- Survive on 4 Colazal/day, 1 GNC Multivitamin, occassional Fish oil & Primal Defense Probiotics
- Enjoy the outdoors, relaxing and spending time with family and friends


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 11/21/2007 9:46 AM (GMT -7)   
now I'm thinking it was just me overreacting.... the discharge has all but stopped, so if it stays away, I'm not going to worry about it. Yet! I've always been paranoid about fissures/fistulas, because they just seem so distressing. I actually have full bottles of both Cipro & Flagyl at home- they were prescribed during a bad falre but I never took them, as they tend to make things worse for me. Sooo....... I may have to self-medicate if need be. Although I don't generally do that. I have a remi infusion in 2 weeks, & I've read that those can help with fistulas also. So if things are still "weird" then, maybe that'll take care of it too. Hhhm! I hope the antibiotics help, UMDTerp- surgery is never fun!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Prednisone- 20mgs/day
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5136
   Posted 11/21/2007 11:20 AM (GMT -7)   
Don't neglect your gyno check-ups because of UC! It's easy enough to do; an additional doctor's appointment always seems like a hassle, especially while ye olde colon is acting up. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/21/2007 12:10 PM (GMT -7)   
Judilyn :)

Taking primadophilus reuteri probiotic daily aids with IBD symptoms as well as vaginal health, high cholesterol and lactose intolerance issues.


Fistuals are almost non-existant in UC because of the fact that UC is surfaceable on the intestinal lining, crohns however can penatrate through the many layers of the intestinal lining leading to fistulas, so any UCer experiancing fistulas (even one time) should definitely get another opinion on their UC DX...

The other differences between the 2 is with CD there are skipped patterns of inflammation, with UC the entire effected area will be inflammed....and CD can affect the entire GI tract from the mouth to the anus, UC is limited to the colon and rectom.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

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