when not flaring, I would have to go once a day at 10:30 like clockwork. In my worst flare (just coming out of it) was 25 times a day, mostly at night, I would be wiped out all day but still running to the bathroom. Luckily I was able to make it w/out stopping on my 45 min commute each way, though a few times I was sitting on my coat praying I would make it home (it's all highway and backroads).
I really hope you can get the right combo of meds to work for you. Also, I know people talk about diet but for me cutting out caffeine has really helped, it is the one thing that really makes me have to go (even decaf coffee can bother me, I think it's the acidity).
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly;Hydrocortisone e's tapering, Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.