I know how you're feeling, but trust me it won't go on like that for ever. I was diagnosed over 15 years ago (and I'm only 30 years old now) and have suffered two serious flare ups. The first one was the worst and took me a while to get under control, but once you and the docs have found the best medication for you, they really start working.
I was in remission for many years and even though I was aware of the CU, it never stopped me from living my life to the full, emigrating twice etc :)
When I'm flaring, it's hard not to become house-bound and be scared to leave the security of knowing the toilet is close by, but it will get better!!
Even after I'm finally getting better after my latest flare, I still now where all the public restrooms are I have a 15 minute journey into work and sometimes have to stop at the restrooms. It's embrassing at work to run to the rstrooms constantly, but I found that once I explained to my work people wwhat's going on, the anxiety levels decreased and I didn't need to worry about it constantly.
Best of luck and hopefully your medications will start working soon !