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some great guidence and answers.

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some great guidence and answers.  
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Posted 11/20/2007 6:42 PM (GMT -7)
hay everyone, i was given a book today by my doc and after reading a bunch of it have found it to be the some of the best info i've been able to find on colitis and crohns. i haven't finished it so i don't know how far indepth it goes but i've seen material covered from smoking, to steroids (the diferent common kinds as well as the reults/sideeffects), to diet, to surgeries, to meds, ect.
It seems to be great. i tel you this after only an hour with the book, because i read quite slowly, and thought i should send what little helpful knowledge has come my way to you folks.
the book is called: Mount Sinai Hospital
                         Crohn's & Colitis-Unerstanding and Managing IBD.
                    by: Dr.A. Hillary Steinhart MD, MSc, FRCP (C) Division head, Gastroenterology.
 
cheers.
>40mg 30mg prednisone
>100mg azathioprine
>500mg ciprofloxacin
>600mg ferrous gluconate
>Calcium and vitamin D
>HUMIRA injectins every 2 weeks.
tapering off predizone, going off cipro and ferrous, and upping azathioprine, all by january.

Posted 11/20/2007 6:56 PM (GMT -7)
How long have you been on the Cipro?
Posted 11/20/2007 8:02 PM (GMT -7)
i satrted all these meds about 2 and 1/2 weeks ago but i was on some of them in the hospital for about 2 weeks before that, i think i was on the cipro during that time so sbout a month. Are you on it? i haven't heard from many people on these drugs. any experiences?
>40mg 30mg prednisone
>100mg azathioprine
>500mg ciprofloxacin
>600mg ferrous gluconate
>Calcium and vitamin D
>HUMIRA injectins every 2 weeks.
tapering off predizone, going off cipro and ferrous, and upping azathioprine, all by january.

Posted 11/20/2007 9:37 PM (GMT -7)
I had a suspected urinary tract infection (actually wasn't) and took 1Kmg/day Cipro for 10 days. It pretty much eliminated all symptoms within 24 hrs. Symptoms gradually came back after I discontinued it, but I'll use it again in a heartbeat if I think I've got a flare starting up. It worked faster than prednisone and there's no taper, so I was happy to find this out. It also prompted me to try grapefruit seed extract, which is supposed to mimic Cipro (somewhat), and after about 3 weeks I'm beginning to see signs of improvement. Since GSE is a natural substance, I should be able to use it indefinitely for maintenance providing it continues to provide a reduction of symptoms.
Posted 11/20/2007 9:48 PM (GMT -7)
wow thats interesting news, the combonation of these drugs has been amazing. they releaved me almost right away an haven't had a symptom since.
where do you find this extract? and do you only se it during flare?
>40mg 30mg prednisone
>100mg azathioprine
>500mg ciprofloxacin
>600mg ferrous gluconate
>Calcium and vitamin D
>HUMIRA injectins every 2 weeks.
tapering off predizone, going off cipro and ferrous, and upping azathioprine, all by january.

Posted 11/20/2007 9:54 PM (GMT -7)
I bought it online.....I forget where, just google it.......there's several places. I guess you could take it during a flare, but I'm thinking it needs time to build up in your system to be effective.
Posted 11/20/2007 10:38 PM (GMT -7)
fair. i'm going to lok into it and maybe give it a try, thanks for the tip.
>40mg 30mg prednisone
>100mg azathioprine
>500mg ciprofloxacin
>600mg ferrous gluconate
>Calcium and vitamin D
>HUMIRA injectins every 2 weeks.
tapering off predizone, going off cipro and ferrous, and upping azathioprine, all by january.

Posted 11/20/2007 10:48 PM (GMT -7)
You might want to look into probiotics as well as fibre supplements.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 11/20/2007 11:15 PM (GMT -7)
i wnat to take probiotics but i was told that its expencive and my meds are already out of hand i don't think i can aford anythig else. but fiber supplements i could try, thanks for the advice.
>40mg 30mg prednisone
>100mg azathioprine
>500mg ciprofloxacin
>600mg ferrous gluconate
>Calcium and vitamin D
>HUMIRA injectins every 2 weeks.
tapering off predizone, going off cipro and ferrous, and upping azathioprine, all by january.

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