Docs don't really know...

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Regular Member

Date Joined Oct 2007
Total Posts : 61
   Posted 11/21/2007 7:38 AM (GMT -6)   
And here I thought I knew what was going on...  go for a 2nd opinion & he says no not likely IBD with UC, rather maybe IBS with UC.  O.k. fine.  Well, now it could be something non GI related...oh boy!  Back to not knowing what's going on at all!  This is soooo frustrating!  But the good news is that I'm going for ultrasounds on 28th.  As well as specific bloodwork , and failing that, ct scan is next.  So although I still have no real clue to what's going on for sure, we will get to the bottom of it eventually.  I know I'm in pain, often enough that I can't function normally.  There's d. (& occasional blood) & foods & stress seem to bring it on &/or make it worse.  But I've had other issues in the past that could be involved.  This new GI Doc & my new PCP both question everything, something I do like.  They both want to help me for reals...rather than just guess & pacify me.  I don't want guesses or pacifying, I want them to 1st believe me, and 2nd help me find the source of my pain.  I don't want pain meds & narcotics, I want the pain to stop.  Period.  Thanks for letting me vent!   Happy Turkey Day!
Diagnosed with UC Aug. 2007
Diagnosed with Degenerative Arthritis, 2006
2 asacol 3x daily  for UC.  Canasa suppositories, also 3x daily, as needed.
1 depacote 3x daily for bipolar disorder

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 11/21/2007 7:46 AM (GMT -6)   
Just for clarification - IBD IS UC and Crohns. To say that IBD with UC is like saying peanut butter with peanuts - it's the same thing. To have UC AND IBS then yes, that is a possibility. Did some doctor actually say you have IBD with UC?? If so, I'm glad you went in for a second opinion! I know it's frustrating but hang in there and I sincerely hope they find the cause of your problems. I too know what it's like to be in pain 24/7 - my pain is from other health problems though.
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-75mgs), Prilosec, Biotin, Forvia, Pro-Bio, Hydrocortisone enemas**Unable to tolerate Asacol, Rowasa or Canasa** 
~Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)~
~Secondary Reynauds Syndrome - '04 - Norvasc~
~Fibromyalgia - '06~
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@


Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 11/21/2007 10:19 AM (GMT -6)   
I'm eight years into it and recently had my diagnosis called into question, whether I had UC or Crohn's. It's not uncommon for there to be some confusion and possibly a diagnosis change. But Red's right... UC is a form of IBD (Inflammatory Bowel Disease), which is much more serious than IBS (Irritable Bowel Syndrome). Have you had a colonoscopy? That would tell you more than an ultrasound or CT.
Diagnosed with ulcerative colitis spring 1999
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years. Down to 10 mg and feeling much better.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.

Regular Member

Date Joined Oct 2007
Total Posts : 61
   Posted 11/24/2007 9:02 AM (GMT -6)   
Well, I was diagnosed with IBS like 5-6years ago...this was just a guess on my docs part. We treated me with hyasciamine. Now I had 2nd colonoscopy, doc said ulcerative proctitis. New doc is having his lab check the paths. I thought IBD was UC as well, but new doc said probably not IBD, rather UC with IBS, but he is checking everything again. We may do another colonoscopy in a couple months. He just wants to also check to make sure it isn't something other than colon related..I'm even more confused than ever! Now I'm not taking darvocets for pain. Rather it's donnatol for both cramping & pain. This is ok so far, and I'm down to one canasa at bedtime. But the Asacol's stay the same. My ultrasounds are scheduled for the 28th of this month. My path slides are at new lab now. I see my docs again on 4th & 7th. I'm hanging in there ok, it's the unknown that kills ya! I'm not so sure about only one canasa a day though...Pain level in rectal area is getting worse. Am thinking of going back to 2 a day, if not the 3 a day I was at before. I'm so very glad you nice people are here to unload on, as you understand so well, what others do not. My d. is still at bay, but lurking, waiting for the wrong kind of food to hit the gut...
Diagnosed with UC Aug. 2007
Diagnosed with Degenerative Arthritis, 2006
2 asacol 3x daily  for UC.  Canasa suppositories, also 3x daily, as needed.
1 depacote 3x daily for bipolar disorder

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 11/24/2007 12:16 PM (GMT -6)   
If this doc told you "probably not IBD, rather UC with IBS", then I'd be finding a new doc because he doensn't know what the heck he's talking about...IBD=crohns or ulcerative colitis (inflammatory bowel disease)...IBS is irritable bowel syndrom, no inflammation what so ever.

What he's saying to you makes no sense at all and it surprises me a doc would make such a mistake, find a new doc and get a colonoscopy for starters.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined Mar 2007
Total Posts : 4538
   Posted 11/24/2007 1:43 PM (GMT -6)   
I agree with pb4. UC is a type of IBD. Your doctor is not making any sense.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed

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