Remicade and flare ups

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Date Joined Apr 2004
Total Posts : 256
   Posted 11/21/2007 8:13 PM (GMT -6)   
Hello all! 
Just wanted to share this and get any feedback on having flare ups while on Remi??  I just had my 6th infusion on Monday and wouldn't you know it, 3 days before, I flared up something terrible.  The strange thing was I did not have d, just many bm's and blood in the stool.  I had been feeling great for the past 3 months and out of no where I got hit!
I realize most people start showing symptoms just before a treatment.  I will say, this isn't as severe as before taking Remi and I'm taking cortenemas to control it.
I guess I'm just trying to figure things out with flares..........before Remi, I would have fore warning it was coming with d and cramps, then blood and weeks of being sick.  Now out of the blue it hit me mainly the pain on my left side is what was the worse and I think it was because my stool is formed.  But it seems like it's more controllable......I hope.  I had a mild flare in Aug--that started with d and cramps. 10 days of cortenemas got me back on track.  I had my energy back and it was like I didn't have it at all, until a few days ago!!
Please share any experiences or feed back.  As minor as this maybe compared to others, your input helps!!! 
Remicade- 5th Infusion Sept 28th
Dx with UC In Mar 2004. Mainly Left sided, at times has skipped through the whole colon. Also have IBS.
150mgs of Imuran, Asacol 3/3x's day, Bentyl as needed

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Date Joined Mar 2003
Total Posts : 10407
   Posted 11/21/2007 9:50 PM (GMT -6)   
I was overdue the last time, and had a little urgency and softness - enough to make me restrict my diet a little more. Usually I have no symptoms. I know sometimes they give a higher dosage or move to a 6-week schedule if people have breakthrough flares, so you may want to discuss this with your doctor.
Moderate to severe left-sided UC diagnosed 2001.
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
Now tapering Azathioprine, please pray for me.
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."

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