My 3 year old daughter was recently diagnosed with UC after much testing and a colonoscopy and small bowel follow through to rule out Chron's. She's had blood and stool testing galore as well, for everything from bacterial to Celiac.
She's currently in a pretty bad flare. As a matter of fact, I'd say since the colonoscopy and starting Azulfidine several months ago, it's getting worse instead of better. She has several very loose bm's a day with a significant (to me) amount of blood and mucous. All of this is after she was diagnosed at age 18 months with juvenile rheumatoid arthritis (poly type). Her arthritis was brought under control (remission?) with methotrexate weekly injections, which came after we tried naprosyn and prednisone without any long term success. Now she's off all of the arthritis drugs and has been for almost a year, but she's on prednisone and the azulfidine, along with prilosec and iron supplement.
I've been finding very little information out there regarding UC and children this young. For this reason alone, I'm wondering if her diagnosis is correct. That and she's been on the pred almost 3 weeks and the azulfidine several months with no apparent improvement in her symptoms. I am just so fearful that perhaps something was missed. She has a lot of stomach pain now, much more than before the drugs....this is so frustrating. I don't even really know what I should ask, but I guess I'm just looking for somewhere to go to get info about this disease as it relates to very young children. Anywhere you can point me to get info and to maybe discuss with other parents? I don't even know enough to tell whether her doc is a good one or not. Thanks in advance!