I'm really sorry to hear about
what you have been going through. It is very difficult, as well all know. But harder too when you have to justify going to the ER when you know that's what you need.
Here are three suggestions... take them if you think they will help, ignore if you like. :)
1) Maybe the Canasa suppositories are too hard to use when you are so imflammed. I mean literally, they are hard as opposed to the liquid or foam enemas. Ideally, you could ask a doctor to prescribe small amounts of Rowasa, Cortifoam, and Cortenema. Then you could figure out whether one of those will work better for you. (The Rowasa would be the best because it doesn't have steroids, but the others might be more effective for the short-term to get this under control.)
2) Try to find the best and most compassionate doctor you can. Do you go to school at a university with a med school? If so, that would be a good place to start. One thing I do when I'm looking for a doctor is to treat it like a research project. That way, I force myself to investigate every option, not be shy about
it, and keep going until I find the right doctor for me. You can call other doctors who you like and ask them for a GI suggestion. That's one good way because often compassionate and competant doctors will know who THEY would go to if they needed a GI dr. This is a pain in the ass to do when you're feeling like crap but it's worth it if you can. Maybe you can find someone to help you?
3) Try not to let other people determine whether you need to go to the ER or call a Dr. This one is very hard to do. But maybe you can remind them that if they are ever in pain or need medical care you would not assume to know more than they do about
how they are feeling. (Of course, this may not be easy with family, it's an emotional subject.)
Hang in. You are very strong for being able to deal with this.
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.
Post Edited (julee70) : 11/24/2007 8:43:18 PM (GMT-7)