I guess your right. I have had this flare for so long D, urgency, blood and I am taking the Asocal well forever it seems like and I am just being patient hoping it will go away. I don't think that I have been doing the hydrocortisone enemas enough.I have been flaring on and off for over a year now. Remissions have been far and few. I spoke with my GI docs nurse and we really discussed my consistency with the Asocal. She said that she had seen people come out of a flare after up to 3 days with consistently taking meds so I made sure to really stick to it (actually believe that something other than prednisone could help me. And just as she said I seemed to go into remission for one month. Everything was gone but the urgency. Then boom after about
a month or so I was back in a flare (while consistently taking my meds
I went up from 2 pill three times per day to 3 pills 3 times per day. I have been doing this since October in the hopes that I will achieve my wonderful remission again. My doc wants me on Remicade but I am really wanting to try these other things before I go on such a strong med. I would like to have a children one day.
So answer to your question I just want to feel cleaner but it is due to the flare when I am not flaring I don't feel this way. I am just trying to reach for something to feel better. I feel so yucky and unattractive around my husband even though he is very loving towards me. I don't have a doctor who seems able to call me back very much and she has told me no more Prednisone. so I am also in the process of looking for a new GI who might try other things with me, not necessarily prednisone but hopefully not remicade. I am just so..........confused right now. So many schools of thought out there. Eat this, don't eat that, it doesn't matter what you eat, ect. One thing might work for a short time then not work. Ahhhhhh It is enough to make you crazy. My GI does not believe in anything except the meds. No alternative stuff which she feel is s waste of $. My doc before would tell me that I wasn't having a flare even with the bleeding, D, urgency etc. He referred my to a specialist for my sphincter muscle for the urgency. He would only prescribe canasa for me no hydrocorisone enemas. I had to go to my current doctor to just get this the enemas. I never went to the sphincter muscle specialist because I thought my GI was out of his mind.
Well anyway a long answer to a short question. I think that I am just plain confused. I know that we are all different and I have to find what works for me but it is nice to get ideas from others. I love coming to this forum, sometimes its my only sanity with regard to my UC issue.
Your right it does not make sense to do a cleanse.I am considering the probotic enemas though. Any suggests on what kind of enema bottle I should use? Where can I buy one?
Left-sided colitis diagnosed at age 28 in 2001
Asacol 3 pills 3 times per day
Hydrocortisone Enema as needed
Probotic taken Daily