Enema to Cleanse

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mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 11/24/2007 11:49 AM (GMT -7)   
Hi does anyone use an enema to cleanse their colon? I know that most of us use some type of steroid enema, but I just don't feel clean! I just go to the bathroom so much I that sometimes I'd like to be able to feel cleaner. Also, I'd like to make sure that I have a BM before I go out to the store or wherever out in public. I drink green tea in the morning to make sure that things get moving early before it happens at work. I guess that I am just trying to find a way to have more control over when and where I do my business. I rarely eat in the morning unless its the weekend. Having accidents at 34 years of age sucks!!!!!Any suggestions for enemas over the counter easy to use or anything to help me feel a little cleaner would be welcomed.

Thank you confused sad
Asacol 2 pills 3 times per day
Hydrocortisone Enema sometimes


quincy
Elite Member


Date Joined May 2003
Total Posts : 29842
   Posted 11/24/2007 8:23 PM (GMT -7)   
The enemas we use are medication to help heal the inflammation...not to clean us out. Those types of enemas aren't something most of us would even consider.

I don't think you're on enough meds/the right meds if you're not improving.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 11/24/2007 11:33 PM (GMT -7)   
Hi. Is the issue more about feeling clean or about wanting to make sure you go to the bathroom before you leave the house?

If it's more about trying not to have accidents, then I agree with Quincy... Hopefully you could find a better med or med combo so that you don't have to worry about accidents.

I'm not sure that I understand the need to cleanse the colon. I know that colonics are sometimes fashionable. But I figure the colon is meant to be the way it is... and I shouldn't mess around with it unless I'm prepping for a c-scope. My intuition makes me think that I'd seriously caution anyone with UC against colon cleansing. I would talk to a doctor about it if you're really intent on trying it. Otherwise, I think that focusing on the anxiety about going out might be more useful.

I totally understand the desire not to have to use a public restroom when you have active UC. But then I remember that I've survived using some of the worst bathrooms I've ever seen (while traveling abroad) and realize that if you really, really need to go, any bathroom will do. There is, of course, no place like home. But when you gotta go... It turns out that having control over where and when we go may not always be possible. Does it help to know that a lot of the people on this board (including me) have had accidents in public too? You're in good company. :)
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 11/25/2007 5:52 AM (GMT -7)   
I guess your right. I have had this flare for so long D, urgency, blood and I am taking the Asocal well forever it seems like and I am just being patient hoping it will go away. I don't think that I have been doing the hydrocortisone enemas enough.I have been flaring on and off for over a year now. Remissions have been far and few. I spoke with my GI docs nurse and we really discussed my consistency with the Asocal. She said that she had seen people come out of a flare after up to 3 days with consistently taking meds so I made sure to really stick to it (actually believe that something other than prednisone could help me. And just as she said I seemed to go into remission for one month. Everything was gone but the urgency. Then boom after about a month or so I was back in a flare (while consistently taking my meds confused I went up from 2 pill three times per day to 3 pills 3 times per day. I have been doing this since October in the hopes that I will achieve my wonderful remission again. My doc wants me on Remicade but I am really wanting to try these other things before I go on such a strong med. I would like to have a children one day.

So answer to your question I just want to feel cleaner but it is due to the flare when I am not flaring I don't feel this way. I am just trying to reach for something to feel better. I feel so yucky and unattractive around my husband even though he is very loving towards me. I don't have a doctor who seems able to call me back very much and she has told me no more Prednisone. so I am also in the process of looking for a new GI who might try other things with me, not necessarily prednisone but hopefully not remicade. I am just so..........confused right now. So many schools of thought out there. Eat this, don't eat that, it doesn't matter what you eat, ect. One thing might work for a short time then not work. Ahhhhhh It is enough to make you crazy. My GI does not believe in anything except the meds. No alternative stuff which she feel is s waste of $. My doc before would tell me that I wasn't having a flare even with the bleeding, D, urgency etc. He referred my to a specialist for my sphincter muscle for the urgency. He would only prescribe canasa for me no hydrocorisone enemas. I had to go to my current doctor to just get this the enemas. I never went to the sphincter muscle specialist because I thought my GI was out of his mind.

Well anyway a long answer to a short question. I think that I am just plain confused. I know that we are all different and I have to find what works for me but it is nice to get ideas from others. I love coming to this forum, sometimes its my only sanity with regard to my UC issue.

Your right it does not make sense to do a cleanse.I am considering the probotic enemas though. Any suggests on what kind of enema bottle I should use? Where can I buy one?
Left-sided colitis diagnosed at age 28 in 2001
Asacol 3 pills 3 times per day
Hydrocortisone Enema as needed
Probotic taken Daily


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 11/25/2007 9:43 AM (GMT -7)   
Hi again. I cannot BELIEVE that your previous GI recommended a sphincter muscle specialist. Actually, I can't believe that such a thing exists, but geez, how obvious is it that the urgency is not a matter of muscle control? It's fascinating how far off the mark a doctor can be. So glad to hear that you didn't go down that path and changed doctors instead!

So, I don't know anything about the probiotic enemas, but my guess is that a really good health food/ natural products store might have info about that.

Maybe -- here's just one idea -- you could give yourself and a month or two to strictly follow whatever med routine your doctor suggests. (Assuming it's reasonable.) Trying different kinds of med enemas; upping the dose of Asacol; or switching to a different 5ASA... these sound like good things to try. Certainly jumping to Remicade before you've exhausted all other "easy" medicine options makes no sense to me either.

If you're having a lot of trouble with urgency, you could ask your doctor about a drug like Lomotil or Levsin. Both seem to slow things down and stop the spasms that lead to urgency. They've worked for me, but that might be because I likely have IBS in addition to UC. At least, that's my doctor's theory. It could be worth a shot.

I think that some doctors aren't open to alternative med because they don't like patients assuming that the alternative treatment worked when it might have been the meds finally kicking in. But I'm a big believer that there is a lot of decent alternative medicine out there. There's also a lot of bunk...!
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 11/25/2007 12:19 PM (GMT -7)   
Thank you, what you said makes sense to me I needed someone to say something that made sense. I will stick with my current meds adding in more hydrocoristone enemas plus add in a probotic. I am going to check into the 5ASA then see what happens. I honestly think that my GI doc wants me on the easies thing for her (Remicade) so that I don't bother her with my calls and or visits as often. I am going to try and research another GI as well.

As for my old Sphincter muscle doc LOL my current GI just looked at me with a blank stare when I told her what he recommended. I told her that I thought is was just what went along with a flare. She then said with her German ascent "You'r smart you know"


Live and learn.

Well anyway I'm going to the health food store today.


Thank you and God bless.This is the first time I've smiled
Left-sided colitis diagnosed at age 28 in 2001
Asacol 3 pills 3 times per day
Hydrocortisone Enema as needed
Probotic taken Daily


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 11/25/2007 2:12 PM (GMT -7)   
Yea! Glad to hear you smiled. :)

Just a quick FYI in case you don't know. 5ASA is the shorthand for a bunch of drugs with a similiar chemical makeup. Asacal is one of those 5ASA drugs. It seems to be the one that most doctors start with. There are a bunch of others and since they all work slightly differently, some doctors will have you try another one if the Asacol doesn't work. (Colazal is another that some people here have been speaking about recently.) The usual route, I think, is to up the Asacol dose to the max (I can't remember what that is) and then if that doesn't work, try another drug in the same class.

Personally, I went through about 5 different drugs until I decided to take 6MP, which is an immunosupressor. The joys of trial and error... Why does it seem like it's mostly error??

Hey, at least your doctor knows you're smart. That's good news too. :)
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 11/25/2007 3:42 PM (GMT -7)   
I was wondering, do you feel the need for your colon to be cleaner? Or just "down there" from going to the bathroom so much... What I use is baby wipes to clean myself up when I am going to the bathroom more often and that makes me feel pretty clean... I especially hate it when I have just showered and have to use the poopie bowl... But the babywipes really help to keep cleaner. I am not sure I understand about having the need to have a cleaner colon.. Mine get's cleaned out plenty every day... lol...
SusieBuddy  
Diagnosed with U/C January 31st, 2004, IBS on July 21st, 2006, Dr says possible Crohn's...We'll see....
 
Meds: Rowasa enema's - Back to every night... probably forever!!!
         Canasa 1000mg. AM Only when needed, - Bentyl 10mg. As needed, -         Nexium - 40mg, 1x per day, - Xanax .5mg as needed,  Effexor 37.5mg. 
         Culturelle 1x a day 
         http://www.myspace.com/77016897         


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 11/25/2007 8:00 PM (GMT -7)   
Juliee 70 :Okay, I thought 5ASA was an enema.



Susiebuddy: I hate having to go after a shower. The wipes are a good idea. I'll try them. :-)
Left-sided colitis diagnosed at age 28 in 2001
Asacol 3 pills 3 times per day
Hydrocortisone Enema as needed
Probotic taken Daily

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