P.S I love this forum

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mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 11/24/2007 11:51 AM (GMT -7)   
This is the only place that I feel that I can be myself and you understand. Thank you all for being here. yeah
Asacol 2 pills 3 times per day
Hydrocortisone Enema sometimes


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1611
   Posted 11/24/2007 2:04 PM (GMT -7)   
Your welcome, and yes this is the greatest forum ever. I would be lost without it. Ditto on the thanks to everyone

Janice
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium 
Currently in Remission


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 11/24/2007 5:00 PM (GMT -7)   
I agree, thanks to everyone
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


LadyHawk701
Regular Member


Date Joined Nov 2007
Total Posts : 49
   Posted 11/25/2007 9:10 AM (GMT -7)   
This forum had helped me tremendously.  Even my husband feels comforted knowing you guys are out there and I can go to you with questions.  Thank you for that.

32 yrs Mama to Katie and Jack
Diagnosed with UP in Feb 2005 Developed into UC by Jan 2006
Rowasa, Asacol, Colazal, Entorcort
Hospitalized July-Aug 2007 Pancolitis Contracted C Diff.
Salumedrol, Flagyl, Remicade, Demerol, Prednisone, Antibiotics
Prednisone tapering currently down to 5mg
Imuran 100mg
Remicade every 8 wks next treatment the week of Thanksgiving:(
Zoloft 100mg, Percocet, Phenergen, Fish Oil, Biotin
 
 


Sideshowbob
Veteran Member


Date Joined Sep 2005
Total Posts : 698
   Posted 11/25/2007 11:13 AM (GMT -7)   
This forum helped me make it through the worst few months of my life. I feel nothing but empathy for everyone that is here and suffering. :)
34 year old Male
First Flare was February 2005. Diagnosed June 2005-left-sided Colitis, suspect it has since spread. Started 4000 mg Oral Salofalk June 2005-stopped January 2007. Remission until November 2006.
Been in a flare to various degrees since November 2006 to February 2007. Currently in remission.
Presently on 0 mg Prednisone-down from 60 mg!
Weekly 4000 mg Salofalk enemas.
Daily 4000 mg Salofalk oral.
Started Omeprazole 20 mg February 2007.
Co-Moderator-UC Forum


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 11/25/2007 3:54 PM (GMT -7)   
I have to add the same... Ditto to everyone here, and it's nice to be as graphic as we need to be without scaring anyone off! LOL
SusieBuddy  
Diagnosed with U/C January 31st, 2004, IBS on July 21st, 2006, Dr says possible Crohn's...We'll see....
 
Meds: Rowasa enema's - Back to every night... probably forever!!!
         Canasa 1000mg. AM Only when needed, - Bentyl 10mg. As needed, -         Nexium - 40mg, 1x per day, - Xanax .5mg as needed,  Effexor 37.5mg. 
         Culturelle 1x a day 
         http://www.myspace.com/77016897         


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 11/25/2007 5:35 PM (GMT -7)   
it is nice to know i can take a bit of the pressure off my parents and talk to people who truly understand!!! thank you!
katie
23
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery
gastritis

VSL #3
Amitriptyline to slow gastric emptying
Forvia
compazine


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 11/25/2007 5:55 PM (GMT -7)   
I don't even know where I would be today w/out everyone here, seriously..........just to know I am not alone and the great advice means the world to me.

now, I need a place just as good as this for my MCD. (there are boards..... but not like this place).
Beth, 32
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly;Hydrocortisone e's tapering, Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/25/2007 6:27 PM (GMT -7)   
I must concur with everyone whose replied. This is the best forum and I would be lost without it. I know I only seem to come here when I'm flaring, but I do think about everyone often when I go MIA.

I learn something new everytime I visit here. Everyone is always helpful!
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission;
Nexium; Probiotic; Multi-Vitamin; Flax Seed Oil
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  11/2/07 Ending 5 month remission w/mini-flare :-(


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/25/2007 7:06 PM (GMT -7)   
i would be so lost in the dark still on so many things without this forum and the advice of everyone on here.
 
good laughs too!
 
cheers
steph - 31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only. 
50mg prednisone 1x day with breakfast
50mg imuran 1x  8pm stopped it to try and have a baby
2x 500mg mesalazine 2x day + night
colifoam 1x at night
now taking calcium supps for pred side effects
VSL#3 didnt work - Aloe Elite didnt work - Budesonide 9mg day didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 


happydays
Regular Member


Date Joined Sep 2007
Total Posts : 69
   Posted 11/25/2007 7:07 PM (GMT -7)   
I feel the same i love you guys and you guys are the only one's that understand. THANK YOU EVERYONE!!!!
Mild case of UC~04   Left Side Colitis~ 05-06  Pancolitis~ 07
 
6-mp 50mg ~ 1 pill a day ~~ Mesalamine 4mg ~ 2 a day ~~ Iron 325mg ~ 1 a day
Prednisone ~ 40 mg For 2 Weeks then tapper by 5mg ~~ Asacol 400mg ~ 8 pills a day
Bella Alk/PB 16.2mg ~ 8 pills a day ~ Lexapro 20mg ~ 1 a day ~ Birthcontrol ~ 1 a day
 
Doctor Says If This Dosen't Work ~ Remicaid Next ~~~ If That Doesn't Work ~Surgery.  
 


blessteve
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 1/11/2008 6:20 PM (GMT -7)   
I know this is an old post BUT:
I also concur! I have never openly talked about my UC before.
Also, I have never come across such a wealth of info on my condition.
Thanks Steve
Diagnosed panColitis 1990.
Current Meds Asacol x4 twice a day.
Pred for flares. I still have my colon THANK YOU GOD!!!
veggie juice-wheat grass juice--fish oil
Started 1/01/08
raw milk-kefir made with raw milk--natto--caprylic acid-oregano oil
probiotic
1/10/08 Started healthy diet again.
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/11/2008 8:53 PM (GMT -7)   
It is amazing how talking to ple on this forum helped me to feel more "comfortable" with UC. The more you know, the less scary things are :) A laugh here and there never hurt either!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/11/2008 9:44 PM (GMT -7)   
I come here everyday because I find it comforting and a great form of therapy.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Birunji
Regular Member


Date Joined Sep 2007
Total Posts : 60
   Posted 1/11/2008 9:50 PM (GMT -7)   
Since I found this forum, I've been coming daily too. There's just a certain quality about it - like everyone really cares about each other. A true community. And smart to boot!
Erin, 25

Diagnosed with left-sided UC June 2007
Flaring since June 2007

UC meds: Asacol 400 mg x 9; Prednisone 20 mg (since 01/09/08)
Supplements: Iron, GNC Ultra Mega Women's Bone Density Multivitamin, Extra Strength Fish Oil & Probiotic Yogurt
Other meds: Zoloft 75 mg (for depression/anxiety)


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 1/11/2008 10:21 PM (GMT -7)   
Ditto!!!!!  This place really helped to make the difference in being able to cope and give me a much better understanding of what he was going through.  I am his advocate anyway but this forum educated me and empowered me to ask the right questions.  At the Dr appts when things are discussed we are already in tuned and have an understanding of what is being explained. 
 
Hubby doesn't spend the time on the computer like I do but I give him the "readers' digest" version so he is up to speed on alot of the UC topics here.  Also our suggesting and requesting different tests, meds or whatever with the Dr due to my education on this forum instead of just waiting for the Dr to make suggestions.  Fortunately both his Gastro Drs are very nice and good listeners which make it so easy to deal with.  Likewise they both appreciate our involvement and interaction with the UC and they know we get a lot of our info from this very site and community.
 
And the best part is no question is too silly, gross or embarrasing.
 
 

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


serendipity24
Regular Member


Date Joined Jan 2008
Total Posts : 56
   Posted 1/12/2008 2:22 AM (GMT -7)   
I completely agree and I have been a member for less than a week! Who thought that a search on 'Prednisone and teeth' could lead to such an amazing find! It's so good to know that I'm not having these experiences alone. I'm very lucky to have an incredible support system at home, but nobody can understand this disease, the drugs, and everything that comes with it except the people who have been there!

I look forward to hearing many more stories!!
Rachel

23 yrs old
Diagnosed with UC: March 2004 with probable IBS component

Currently taking:
Asacol 4pills 3x/day
Prograf 5mg/day
(Prograf is my miracle drug! It doesn't seem to be well known, but it's fantastic!)

Previously Tried:
Prednisone (works, but such awful side effects!), 6-MP (gave me acute pancreatitis), Entocort, Cipro (antibiotic), Bentyl, Canasa suppositories, a couple different enemas


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/12/2008 4:42 AM (GMT -7)   

Hmmm well obviously I like coming here since I've been a member for 3 years!  tongue   When I first found HW, I was doing a websearch one night about UC.  I seen a little obscure find about a health forum.  I never participated in a health forum before so I figure, eh what the heck??  I came onto HW, read and read and read and finally shared my story.  I was astounded by everyone's caring attitude!  Even though at that time, I never participated in a health forum, I was looking as several but they were hardly ever frequented and I had soooo many questions.  But I was afraid that if I posted a question in these other forums, it would take days, months or years to get an answer.  Here on HW, you can almost guarantee you will get an answer either right away or within 12 hours.  I have 2 words for everyone -

Y'ALL ROCK!  yeah hmm or is that considered 3 words??  tongue


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 1/12/2008 5:54 AM (GMT -7)   
I learned more here in a week than my first GI had taught me in 3 months! Needless to say I am beyond grateful for this site and the people here.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


BalS
Regular Member


Date Joined Mar 2005
Total Posts : 311
   Posted 1/12/2008 10:32 AM (GMT -7)   
This forum is fab, no matter where you are in the world, there is always someone there to help you with your UC dilemmas. It's always full of latest treatments, experiences and research in UC, I can't think of anywhere else where one could get this sot of information.
:-)
UC - Flare-up since Dec2004
3000iu Vit E Enema
3x3 tablets Colazide 
10mg Predinisolone enema
2  Predfoam - 20mg
Asacol - none now - became immune to them after 2 yrs
 
 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 1/12/2008 12:30 PM (GMT -7)   
Yes, you've all helped me through the good and rough times; don't know where I'd be without your support and incredible knowledge! You are an amazing group of friends!
Carol

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 1/12/2008 12:37 PM (GMT -7)   
Me too, I love this forum.   The chat was fun too, I haven't chatted since highschool.

Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil as needed, Darvocet, Tylenol pm

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