kim123 julee-my daughter

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Nov 2007
Total Posts : 382
   Posted 11/25/2007 5:01 PM (GMT -7)   
thank you for your responses. regarding the diet i am going to try some of your ssuggesttions. on the suppositories, i understand their importance, but she tried using thecanasa a few times in the night and they made her go more and have worse cramps than whe n she didn't use them. would the rowasa suppositories be different , whay is the difference between the two. or will the suppository get easier the more you use it? just a reminder she takes the oral asacol.

Trixy's Got Butt Trouble
Regular Member

Date Joined Jun 2007
Total Posts : 356
   Posted 11/25/2007 5:08 PM (GMT -7)   
Hi Please!
Sorry to hear about your daughter.  As for the Rowasa suppositories, those have been discontinued.  The only Rowasa that you can get is the Rowasa Suspension Enemas.  I have found that when I am in a flare, the Rowasa helps immensly.  However, the first few days, depending on how bad the flare it, I will have cramping and the urge to go immediately after doing the enema.  As the days go on and the longer I keep the enema in, the better it gets and helps with the flare.  Sorry, and I hope that helps somewhat.
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission;
Nexium; Probiotic; Multi-Vitamin; Flax Seed Oil
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  11/2/07 Ending 5 month remission w/mini-flare :-(

Regular Member

Date Joined Oct 2007
Total Posts : 486
   Posted 11/25/2007 7:11 PM (GMT -7)   
Hi again.
Let's see -- you'll see that I posted this week about Canasa. At the moment, I'm feeling like I'm at the beginning of a flare, so I'm trying Canasa to stop a little bleeding. It's kinda working for me but it definitely took a few days for me to notice. I never had cramping with it.

Rowasa, as described by Trixy are liquid. I used to use them a lot and I never had problems with using them. I just found the liquid a little cold, so I'd try to warm the plastic bottle a little first. The best way I found to use them was to lie in bed, use it, and then go to sleep on my left side for better absorption. I suppose that this might not be ideal for a college student with a roommate. Hopefully she has a single room!

The last kinds of rectal meds are cortisone foam or cortisone liquid enemas. I swear by the foam, brand name Cortifoam. It's super easy to use, you don't feel it at all once it's in, you can put it in standing up in a public bathroom easily, and it works great to stop bleeding. The down side is that the cortisone/ steriods aren't good for you in large doses and in the long term. However, this is a far, far better option than prednisone pills.

My doctor says that using the Cortifoam for a few weeks (a few times a year) to quell a flare is better than letting my inflammation go on for a long time. Still, I'm trying to phase it out and use Canasa instead. But that's because I've been using Cortifoam for years on and off. It's not a maintenance drug... it's really best just for flares because of the steroids.

The Rowasa can be used as a maintenance drug... some people here use it every night and then go to every other night when they feel better. And this keeps them in a good shape.

Tell your daughter that she's not alone, if you think that will help. I swear that the other night I totally didn't want to deal with the rectal meds and I just thought, "all those people on HealingWell are doing it too" and I felt a lot better!
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, February 18, 2018 1:29 PM (GMT -7)
There are a total of 2,930,567 posts in 321,553 threads.
View Active Threads

Who's Online
This forum has 160292 registered members. Please welcome our newest member, xjbuaa.
385 Guest(s), 12 Registered Member(s) are currently online.  Details
Storm_Rider2, L.Botev, TOOTY, Ides, Abdomare, Girlie, NiceCupOfTea, Carlos, TJ123, garyi, Uaunem, Tall Allen