does everyone on asacol lose their hair

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Regular Member

Date Joined Nov 2007
Total Posts : 401
   Posted 11/25/2007 7:07 PM (GMT -6)   
should my daughter start taking something now to avoid hair loss-what is suggested to prevent it, she just beganasacol last week.thank you

Veteran Member

Date Joined Jul 2007
Total Posts : 2148
   Posted 11/25/2007 7:13 PM (GMT -6)   
I had no hair loss on asacol at all, I was on it for 5 years. I would wait and see if something happens before trying more meds. The only thing I would suggest is talking to her doc about her taking Calcium + Vit D and folic acid, they had me on that while on asacol and also now as well that I am on Imuran.
Beth, 32
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly;Hydrocortisone e's tapering, Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

Trixy's Got Butt Trouble
Regular Member

Date Joined Jun 2007
Total Posts : 356
   Posted 11/25/2007 7:13 PM (GMT -6)   
I take 12 Asacol a day and have never had an issue with hair loss. I have always lost hair in the shower, but since being dx in 2000, I would not say that it has increased. I have not heard of taking anything to avoid hair loss. Is she losing a lot?
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission;
Nexium; Probiotic; Multi-Vitamin; Flax Seed Oil
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  11/2/07 Ending 5 month remission w/mini-flare :-(

Veteran Member

Date Joined Dec 2005
Total Posts : 3238
   Posted 11/25/2007 7:15 PM (GMT -6)   
Biotin helps w/ hair loss and as a bonus makes your nails stronger. You can pick it up at drugstores, grocery stores or somewhere like GNC. I am on Colazal (a maintaince med similar to Asacol) and it has never caused my hair to find out.

This topic comes up a lot. You may want to do a search at the top of the page for old posts.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC
Co-Moderator UC Forum

Scrap Girl
Veteran Member

Date Joined Jan 2007
Total Posts : 653
   Posted 11/25/2007 9:17 PM (GMT -6)   
I had tons of hair loss with Asacol. It was so bad I really should have worn a hair net while I was in the kitchen. My GI switched me to Colazal and it stopped almost immediately.
Diagnosed with UC in Feb. 2005
Colazal (9 a day)
Folic Acid
Remicade remission

Veteran Member

Date Joined Mar 2007
Total Posts : 4538
   Posted 11/25/2007 9:48 PM (GMT -6)   
I haven't experienced any hair loss with 12 Asacol per day. I've been on it since March.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed

Regular Member

Date Joined May 2007
Total Posts : 256
   Posted 11/25/2007 11:43 PM (GMT -6)   

I've been on asacol for 10 yrs. No hair loss.


Diagnosed with indeterminate colitis in 1992
current meds
4 asacol 3x's a day
Rowasa enemas as needed
Bunches of vitamins

Regular Member

Date Joined May 2006
Total Posts : 260
   Posted 11/26/2007 12:19 AM (GMT -6)   
I've had just the usual hair loss typical of a 31 year old male.  Nothing extreme or out of the ordinary, with the exception of a day here or there.

---Nathan---  31 yr old male
Diagnosed May 2006 w/severe UC (pancolitis)
Currently in mild flare
2 400mg Asacol 4X day 2 Lialda/day (we'll see how that goes)
5mg Prednisone done for now :)
1 multivitamin/day
2 grams calcium/day
75mg Imuran/day
100mg Tramadol/day for abdominal pain (as needed)
1 Fioricet ever 4 hrs as needed for severe migraines

Regular Member

Date Joined Jun 2006
Total Posts : 105
   Posted 11/26/2007 4:15 AM (GMT -6)   
I haven't had any hair loss and I've been on 4 gms daily for 2.5 years.
Left Sided UC
Salofalk tablets (Asacol) 2 tablets 4 times daily (4gm total) for maintenance, Salofalk enemas and/or Colifoam for flares
Oat bran 60grams daily, Metamuscil and multivitamins

Regular Member

Date Joined Oct 2007
Total Posts : 23
   Posted 11/26/2007 8:36 AM (GMT -6)   

I don't think I have experienced hair loss on Asacol!!  Have been on it since 2003 and have only experienced hair loss this year but think it was due to the Prednisolone and being so ill.

I agree with some of the other comments about not taking anything extra for the timebeing as it is just extra pills to have to take.  Good luck.


Asacol 2 x 3 daily

Regular Member

Date Joined Mar 2007
Total Posts : 403
   Posted 11/26/2007 9:53 AM (GMT -6)   
Is she also on prednisone? I've had hair loss on prednisone but not on asacol alone.
12 Asacol
100 mg Imuran
6 or 9 fish oil pills
4 Acidophilus pills

Veteran Member

Date Joined Jan 2006
Total Posts : 616
   Posted 11/26/2007 12:13 PM (GMT -6)   
No hair loss for me on asacol, i guess you just have to try it and if that happens switch her to something else. There are plenty of different meds out there for her to try.
Current Meds

Asacol 4 tabs 2x daily
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
Omega-3 once daily
Tenth Remicade infusion Early December

Regular Member

Date Joined Jul 2007
Total Posts : 402
   Posted 11/26/2007 3:20 PM (GMT -6)   

I take 12 Asacol per day and have for years.  I've never experienced any hair loss... or any other side effects, for that matter.

It's hard to do this, but please try to remember not to get caught up in all of the possible side effects.  As you will learn from all of us here, we all have very different experiences with this disease and with the medications that we use to control it.  When I was first diagnosed, I was so afraid to try any medications because I was convinced I would get all the horrible side effects.  I've taken Asacol, Rowasa and Prednisone and have had very few side effects at all.  There is no way of knowing how these drugs are going to effect your daughter.  It's really just trial and error.  And my view is... no sense getting all worked up over the unknown! 

Current Medications:
- Asacol (4 pills, 2x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)

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