New w/ questions...losing hope.

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Colon Pow
New Member


Date Joined Nov 2007
Total Posts : 15
   Posted 11/25/2007 6:27 PM (GMT -7)   
Hi all. Let me first say that I really appreciate this forum. You all are so helpful.

So here's my story (i'll try to be brief)...

I haven't been feeling well in months. My UC is progressively getting worse after almost 10 months of intense symptoms (i've even switched docs). Nothing seems to lessen my symptoms even a tad. The prednisone has blown me up to where I am constantly needing to purchase more clothes and I think the Asacol is really wreaking havoc on my body as well (hair falling out, kidney symptoms). Prior colonoscopies did not reveal C.Diff, but the colonoscopy I had last week did test positive. So now my GI added Flagyl to the regimen. Doc says I should feel almost 100% better (by tomorrow) after the Flagyl course, but that is not the case unfortunately. He said that I should start considering Remicade or surgery if no improvement by tomorrow.

Prior to getting this flare I was a "health nut". I always ate healthy, i don't smoke (but used to years ago), i don't drink and worked out 4-5 days per week. I was also an avid tennis player. Doc says he doesn't want me exercising at all except for walking. That, in itself, is very frustrating. I've gained 30 pounds in less than a year and it's sooo uncomfortable. I've even developed an increase in fluid at the base of my left lung. And the fatigue is overwhelming (oh yeah, anemic too!).

I never suffered from depression before, but now I feel I am deeply depressed/frustrated from my current health situation. I do not leave the house unless absolutely necessary, I've cut my work hours and I even cancelled my xmas vacation based on my doc's insistence (we were going out of the country). Should I consider throwing in an anti-depressant too?

What are everyone's thoughts on exercising? I've read that some of you are exercising despite being in the middle of a flare up.
At what point do you draw the line and say it's time for Remicade? Is there anyone on this forum that experienced the side effects of Remicade?
I'm 49 y/o (today is my b-day!!!) and not thrilled with the possibility of osteoporosis/osteopenia from prednisone. Should I be on Fosomax/Actinel?

I apologize in advance if these questions are repetitive. Thanks in advance for any help anyone can offer. Could use a UC buddy or two!!!
UC diagnosed 2002 (pancolitis)
Flare lasted 3 months
remission for 5 years
Recurrence Jan 2007
+ C.Diff (rt colon), Nov 2007 (tested neg all prev. times); left colon-severe u.c.
Asacol 1600mg three times/day
Prednisone 40mg every am
Mesalamine Enema (1000mg) @ bedtime
Flagyl 250mg 4x day
Bentyl 10mg 2-3 caps as needed
Calcium/Vit. D
Haven't decided which probiotic yet!
 
 
 


Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/25/2007 6:37 PM (GMT -7)   
I'm no expert, but the a few things came to mind.

Have your tried switching to Colazol instead of Asacol? Some people do better on that and vice versa.

Have you tried doing Rowasa twice a day? When my flare is bad and nothing seems to be working, my Doc has told me to increase my Rowasa to 2 times a day (morning and night). It really helps.

Depression is common, you may want to talk to your doctor about meds for depression. I have also heard that anti-depressants can help with the symptoms.

I see you are taking a calcium supplement. I would speak to your doctor about your concerns. Have you had a bone density test recently?

I wish you well.
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission;
Nexium; Probiotic; Multi-Vitamin; Flax Seed Oil
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  11/2/07 Ending 5 month remission w/mini-flare :-(


happydays
Regular Member


Date Joined Sep 2007
Total Posts : 69
   Posted 11/25/2007 6:48 PM (GMT -7)   
I'm sorry i can't help on the exercising question. But i do want to tell you HAPPY BIRTHDAY and give you a GREAT big hug and kiss!!!! I'm also facing the same question about Remicade. But i guess you'll know when you've had enough. The same with surgery, i thought i wanted to go that route until yesterday. I have a freinds dad that has the surgery and when we talked it scared me so much!!! So today at church i just broke down REALLY bad. So today was a really bad day. Good luck and your in my thoughts. Jolene
Mild case of UC~04   Left Side Colitis~ 05-06  Pancolitis~ 07
 
6-mp 50mg ~ 1 pill a day ~~ Mesalamine 4mg ~ 2 a day ~~ Iron 325mg ~ 1 a day
Prednisone ~ 40 mg For 2 Weeks then tapper by 5mg ~~ Asacol 400mg ~ 8 pills a day
Bella Alk/PB 16.2mg ~ 8 pills a day ~ Lexapro 20mg ~ 1 a day ~ Birthcontrol ~ 1 a day
 
Doctor Says If This Dosen't Work ~ Remicaid Next ~~~ If That Doesn't Work ~Surgery.  
 


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 11/25/2007 7:13 PM (GMT -7)   
Colon Pow - love the name! Why does the doctor not want you to exercise? Most people feel a lot better when they do exercise. Asacol also caused my hair to fall out - switched to Colazal and it stopped. I know it's easy to get depressed, especially when you are on prednisone and not comfortable with the way you might look, but things will get better once you get this thing under control. Remicade was the only medicine that allowed me to get off prednisone. I love it. I plan on riding the Remicade train as long as it keeps working. I've never had any side effects from it. Personally, if my choices were surgery or long-term prednisone use and nightly enemas I would opt for surgery, probably the j-pouch. The more I read about it, the more I've come to realize surgery it's not the end of the world and it really improves the quality of life for a lot of people. Good luck!
Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
Biotin
Calcium
Remicade remission


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 11/25/2007 7:23 PM (GMT -7)   
Hey Colon Pow, and welcome to HealingWell! First off, Happy birthday my friend....I'll be 49 in March! :-) Next off, your talking to a 48 yr. old woman who was as healthy as ever and worked out everday; as a matter of fact when I got the dx for this UC, most could hardly believe it because I was always the "healthy one." That being said, I gained 25-30 lbs. on Pred (I cannot really remember now!) and was feeling at my worst. I still tried to exercise when possible because once you are committed to exercise, it's hard to stop! So, after a nice chat with my GI (who is very proactive and into exercise) we decided to go the Remicade route. I tried most of the other meds, and because they didn't work for me as well, he put me on a fast track to Remi. That means he had to try the other meds before he could commit to Remicade for me. I can honestly say that I've been on Remi for over two years with excellent results. I feel great; workout everyday, hike, bike, and eat mostly whatever I want...and that's the healthy stuff! I've been to Europe and have a busy job that let's me travel quite a bit. I haven't had any side effects -- only every so often I feel the effects of the UC; a bit tired and I just tell people that I've hit the wall. All my friend and bosses know exactly what I mean and I usually just take some time and sleep it off. It really doesn't happen very often, and I'm mostly in "go" motion! Oh, and one more thing, I did lose the weight after getting off the Pred. I feel good, and life is good. Remember though, this is my story. Some haven't had the good results from Remi that I have, and then there are others who have had such awesome results that they pop in and out to visit us just to let us know how well they are doing. It's so individual, but I thought I'd give you a success story. Take care, and again, welcome to Healingwell!
Carol

Remicade - will have my 19th infusion on December 27.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 11/25/2007 8:18 PM (GMT -7)   
Welcome to the forum. I’m sorry you are in a flare. I have never heard of C. Diff being diagnosed with a colonoscopy. It is a bacterial infection and is diagnosed from a stool sample. I have been tested for it many times. Last summer I tested positive for C. Diff for the first and only time. I was prescribed Vancocin, a stronger antibiotic than Flagyl. For some people Flagyl is not strong enough. My symptoms only slightly improved after the Vancocine and returned to the same level about a month later. I have been tested negative several times since then. Don’t necessarily expect improvements after getting rid of the C. Diff., especially if your UC is active.

It sounds like you still have several options before Remicade. There are many different types of 5ASA meds besides Asacol that you could try. There are also immunosuppressants such as Imuran or 6-MP. 7 infusions of Remicade never helped me but I had no side effects from it.

I have never been into regular exercise but since my UC I have had much less energy, especially with my UC related arthritis. A small amount of exercise totally wipes me out.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision
 


Colon Pow
New Member


Date Joined Nov 2007
Total Posts : 15
   Posted 11/25/2007 8:36 PM (GMT -7)   
thanks for everyone's posts.

for clarification purposes - i did try colazal and then switched back to asacol. AND my c. diff was diagnosed via a stool sample taken from the colonoscopy.

perhaps i should try vancomycin first before i consider remicade...will ponder that further.

paul - what allergic reactions did you experience to 5ASA's?

how does folic acid benefit UC patients?

and what does everyone do for pain? i read a post where someone was using a fentanyl patch. i thought narcotics were harmful to the colon and slows things down? doc won't prescribe anything for pain - says to use the bentyl, but that doesn't do a thing.

thanks again for the warm welcome and birthday wishes! :-)
UC diagnosed 2002 (pancolitis)
Flare lasted 3 months
remission for 5 years
Recurrence Jan 2007
+ C.Diff (rt colon), Nov 2007 (tested neg all prev. times); left colon-severe u.c.
Asacol 1600mg three times/day
Prednisone 40mg every am
Mesalamine Enema (1000mg) @ bedtime
Flagyl 250mg 4x day
Bentyl 10mg 2-3 caps as needed
Calcium/Vit. D
Haven't decided which probiotic yet!
 
 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 11/25/2007 8:49 PM (GMT -7)   
I don't get the pain too much anymore, but when I do, the doc gave me a low dosage (10mg) of Diazapam. It seems to relax the muscles, and I don't have the effects of constipation which some of the other pain relievers seem to have.

Carol

Remicade - will have my 19th infusion on December 27.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 11/25/2007 10:21 PM (GMT -7)   
I'd say if you're on Prednisone for more than a couple of months, definitely you should be taking a Calcium/vitamin D supplement and probably Fosamax. And if you feel good enough to exercise, I can't possibly see how it would hurt you. I've never been restricted in activities except by my decreased energy and the fact that at times I couldn't get more than six feet from a bathroom. The endorphins could only help, in my opinion.

You might consider asking your doctor why he's putting all of these restrictions on your life. If you don't buy the answers he gives you, get a second opinion - or just a different doctor. Most docs tell us to do whatever we feel well enough to do.

I'm sorry you're going through this, and hopefully you'll feel much better soon.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 11/26/2007 4:34 AM (GMT -7)   
Colon Pow, stool sample taken from the colonoscopy? That’s a new one on me. I don’t see how there could be enough stool left after being cleaned out by the prep. Whenever I’m asked to bring in a stool sample on the day of the scope I’m always asked to take it before I start the prep. I wonder if they tested for C. Diff. from the biopsies. Never heard of that but maybe it is possible? Don’t try another antibiotic for your C. Diff unless you are tested positive for it after you complete your Flagyl.

I tried Asacol, Pentasa and Dipentum, all 5ASA medications and they all increased my bowel movements from 4 to 6 up to well over 20 a day within a few days. They also gave me terrible joint pain. After stopping them my symptoms would go back to normal within a day.

Many UC patients do not absorb vitamin B12 properly and need injections. I get an injection every month and I’m tested for B12 levels every 3 months by a blood sample. Folic acid is supposed to help the body store the B12.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 11/26/2007 7:29 AM (GMT -7)   
I exercised (20-30 miles of walking/hiking per week) with my last gigantic flare. The only time the GI held me back was when I was having over 40 episodes of bloody diarrhea per day. Other than that he felt exerise was good for UC patients and encouraged it. Just bear in mind that exercise will increase motility and maybe that is what your doctor is concerned with? In my early years of UC I was prescribed folic acid. I think it was because I was in the child bearing years and even though I never wanted to have children the doctor prescribed it anyway.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 11/26/2007 8:15 AM (GMT -7)   
A good weight training program will help combat bone loss from the pred. Even when I was in a pretty bad flare when first diagnosed, I still walked, lifted weights and did yoga.

I'd encourage you to get started on a probiotic and look into dietary manipulations to help get your flare under control.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years. Down to 10 mg and feeling much better.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 11/26/2007 2:55 PM (GMT -7)   
I never heard of not exercising, now I have been too tired when flaring lately and have put on 5 pounds in almost 3mos of pred. Also, I second taking cal + vit D 500 mg 3 xday and fosomax 1x week (that's what I take). Also, I take 600mg of potassium 2xday to help w/muscle cramping.

What is going on w/your kidney? You mentioned Kidney symptoms? I have kidney problems that I belive are from taking the 5ASA drugs and am curious if yours are the same? Also, you should be having urine tests checking for proteins if not already.
Beth, 32
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly;Hydrocortisone e's tapering, Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


Colon Pow
New Member


Date Joined Nov 2007
Total Posts : 15
   Posted 11/26/2007 5:51 PM (GMT -7)   
Hi Beth,
Here are my kidney symptoms: + blood/protein in urine, flank pain, frequent urination (at times).
Thanks for your response.
UC diagnosed 2002 (pancolitis)
Flare lasted 3 months
remission for 5 years
Recurrence Jan 2007
+ C.Diff (rt colon), Nov 2007 (tested neg all prev. times); left colon-severe u.c.
Asacol 1600mg three times/day
Prednisone 40mg every am
Mesalamine Enema (1000mg) @ bedtime
Flagyl 250mg 4x day
Bentyl 10mg 2-3 caps as needed
Calcium/Vit. D
Haven't decided which probiotic yet!
 
 
 


MommaD
New Member


Date Joined Nov 2007
Total Posts : 8
   Posted 11/26/2007 9:38 PM (GMT -7)   
So sorry you are having such trouble. I have been in a flare for 8 months and just started Remicade. Pretty much a wonder drug. Very expensive and the insurance does not always pay however when you are that miserable it is time to consider Remicade. Also stopped the Asacol and that was a huge difference in how I felt. Much better without that drug.
Hope you feel better soon and Good Luck

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 11/27/2007 9:19 AM (GMT -7)   
Colon Pow - how much proteins are in your urine and have you gone to see a Kidney Specialist? I was at 9grams a day my last check up, I have minimal change disease (it is 'reversible'). I also had hematuria (blood) but that is bengin (it's familial and is ok).
Beth, 32
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly;Hydrocortisone e's tapering, Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


Colon Pow
New Member


Date Joined Nov 2007
Total Posts : 15
   Posted 11/27/2007 7:44 PM (GMT -7)   
Momma D - I'm hopefully starting Remicade next week. Had my TB test today. Awaiting response from Insurance company.

Beth - I don't recall the protein numbers - just know that they've been elevated. My GP says that all other kidney tests were normal and told me not to worry just yet...go figure!
UC diagnosed 2002 (pancolitis)
Flare lasted 3 months
remission for 5 years
Recurrence Jan 2007
+ C.Diff (rt colon), Nov 2007 (tested neg all prev. times); left colon-severe u.c.
Asacol 1600mg three times/day
Prednisone 40mg every am
Mesalamine Enema (1000mg) @ bedtime
Flagyl 250mg 4x day
Bentyl 10mg 2-3 caps as needed
Calcium/Vit. D
Haven't decided which probiotic yet!
 
 
 


MommaD
New Member


Date Joined Nov 2007
Total Posts : 8
   Posted 11/27/2007 11:23 PM (GMT -7)   
Hopefully the insurance company will get back to you right away. Good luck and keep us all posted.

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 11/28/2007 6:57 AM (GMT -7)   
I would find out what the protein numbers are and get a second opinion. If you are hypersensitive to sulfasalazine, asacol or lialda it can cause minimal change disease in the kidney which I have. Originally my GI said oh yeah have your primary check it out and said it was probably no big deal, it actually is. One thing you can see is if you have foamy urine (I never really looked) and that is a side effect of minimal change disease also if you have edema. I had to do the research myself on the drugs I was taking to find the connection and bring it to my Dr's attn.

Not saying that you have this but I would definitely check it out.
Beth, 32
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly;Hydrocortisone e's tapering, Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


Robert.K
Regular Member


Date Joined Nov 2007
Total Posts : 137
   Posted 11/30/2007 9:36 PM (GMT -7)   
I really sympathize with your story, as I was also very keen on health and overall fitness prior to my initial flare about a year and a half ago. UC initially hit me when I was really peaking in many ways in my exercise "career". I also would exercise about 4-6 times per week, probably totalling about 15 or more hours per week in the gym hitting the weight with a little jump rope and elliptical machine thrown in. And, like you, it hit me and it hit me hard. It was very depressing for me inititally as so much of what I loved to spend time with was seemingly taken away from me: the gym, eating well (how could I eat when everything made my symptoms that much worse?), school, and work. Eventually my perspective on the illness changed, as I know that the important things in life, primarily my knowledge, experience, and coginitive abilities, are not taken away from me as a result of this disease. And I know that eventually I'll be able to get this disease under control for the long-term and make a comeback in the gym... and eventually surpass even my previous physical limitations.

In regards to how much to exercise, it's really up to you. Nobody's judgement is better than your own. As a self-proclaimed fitness fan, you are more in tune with your body than the rest of us. Do whatever you feel comfortable doing and be honest and disciplined. If I can pass on any advice I'd say that you shouldn't let UC keep you away from an active lifestyle. It's easy to shy away from previous activities that you used to take pride in due your abilities. In other words, if you considered yourself a good tennis player and have concerns with hitting the court and not being able to perform as well as you did in the past, try to remove those concerns. You're not always going to be on top of the world, and setbacks happen. It's generally (of course there are exceptions) better to do what you can than not to perform at all simply because you can't perform as well as you used to be able to. I'm not sure if these thoughts have crossed your mind, but if they have this is the best advice I can give you.

All in all, it's better to be active to some degree than to be inactive. I'm sure you're aware of this, but sometimes it's hard to act on this knowledge when in the midst of a flare: it's easy to make excuses to stay and home and be lethargic.

Robert

Catracha
New Member


Date Joined Nov 2007
Total Posts : 2
   Posted 12/1/2007 12:11 AM (GMT -7)   
Hey birthday guy! Happy Birthday! I hope you do actually havea few moments to reflect on what is good about your life and your progress right now. Just think, we could be in a country where we wouldn't even have access or choice of treatments for our disease.
That said, my little bit of advice is on the FLAGYL. If you develop ANY tingling in your hands or feet at all, stop taking it immediaqtely and call your physician. I was not told that the neuropathy is cumulative and can likely remain permanently. We don't need any more challenges. But my zapping feeling was only after high doses for months long. Just be aware of that and act quickly if needed.
I hope your birthday week can get better for you. Remember, you have fought too hard to let this disease take any more from you. Press on in the battle! You can do it!
-Catracha

njguy69
Regular Member


Date Joined Jul 2006
Total Posts : 276
   Posted 12/1/2007 6:47 AM (GMT -7)   
Colon Pow, you want to know if you can exercise? Well lets see, I'm a CAT 3 cyclist and took 16th in my state in mountain biking. I do martial arts and I box. I've won bench press contests before I got into biking. The training that it takes to reach those goals are enormous. So yes, you can exercise. As far as Remicade goes, I couldn't have done it without it!! yeah
aka. uc veteran

Asacol - four a day
6 MP - 1 tab. a day
Remicade - every eight weeks.


Colon Pow
New Member


Date Joined Nov 2007
Total Posts : 15
   Posted 12/5/2007 2:25 PM (GMT -7)   
xtremefit - i'm starting remicade this friday (dec. 7th)...i'm really looking forward to it. When did you first experience any relief?
As far as exercising - i'm still having too many trips to the bathroom (>20 per day) so right now that's not an option. I'm hoping to go back to working out after a couple of Remicade infusions...

Colon Pow
aka Sindi, 49
UC diagnosed 2002 (pancolitis)
Flare lasted 3 months

remission for 5 years

Recurrence Jan 2007

+ C.Diff (rt colon), Nov 2007 (tested neg all prev. times); left colon-severe u.c.

Asacol 1600mg three times/day

Prednisone 40mg every am

Mesalamine Enema (1000mg) @ bedtime

Librax, 1 caps b4 each meal and @ bedtime

Calcium/Vit. D

VSL#3

Starting Remicade December 7, 2007! Yippee!


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 12/5/2007 2:59 PM (GMT -7)   
Colon Pow - glad you are starting remicade, keep us posted!!!

That is my next step if the Azathioprine does not help. 
Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly;Hydrocortisone e's tapering, Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


Colon Pow
New Member


Date Joined Nov 2007
Total Posts : 15
   Posted 12/5/2007 7:52 PM (GMT -7)   
Beth, thanks! I will keep you posted. Good luck with the Azathioprine.
UC diagnosed 2002 (pancolitis)
Flare lasted 3 months

remission for 5 years

Recurrence Jan 2007

+ C.Diff (rt colon), Nov 2007 (tested neg all prev. times); left colon-severe u.c.

Asacol 1600mg three times/day

Prednisone 40mg every am

Mesalamine Enema (1000mg) @ bedtime

Librax, 1 caps b4 each meal and @ bedtime

Calcium/Vit. D

VSL#3

Starting Remicade December 7, 2007! Yippee!

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