Hi all. Let me first say that I really appreciate this forum. You all are so helpful.
So here's my story (i'll try to be brief)...
I haven't been feeling well in months. My UC is progressively getting worse after almost 10 months of intense symptoms (i've even switched docs). Nothing seems to lessen my symptoms even a tad. The prednisone has blown me up to where I am constantly needing to purchase more clothes and I think the Asacol is really wreaking havoc on my body as well (hair falling out, kidney symptoms). Prior colonoscopies did not reveal C.Diff, but the colonoscopy I had last week did test positive. So now my GI added Flagyl to the regimen. Doc says I should feel almost 100% better (by tomorrow) after the Flagyl course, but that is not the case unfortunately. He said that I should start considering Remicade or surgery if no improvement by tomorrow.
Prior to getting this flare I was a "health nut". I always ate healthy, i don't smoke (but used to years ago), i don't drink and worked out 4-5 days per week. I was also an avid tennis player. Doc says he doesn't want me exercising at all except for walking. That, in itself, is very frustrating. I've gained 30 pounds in less than a year and it's sooo uncomfortable. I've even developed an increase in fluid at the base of my left lung. And the fatigue is overwhelming (oh yeah, anemic too!).
I never suffered from depression before, but now I feel I am deeply depressed/frustrated from my current health situation. I do not leave the house unless absolutely necessary, I've cut my work hours and I even cancelled my xmas vacation based on my doc's insistence (we were going out of the country). Should I consider throwing in an anti-depressant too?
What are everyone's thoughts on exercising? I've read that some of you are exercising despite being in the middle of a flare up.
At what point do you draw the line and say it's time for Remicade? Is there anyone on this forum that experienced the side effects of Remicade?
I'm 49 y/o (today is my b-day!!!) and not thrilled with the possibility of osteoporosis/oste
openia from prednisone. Should I be on Fosomax/Actinel?
I apologize in advance if these questions are repetitive. Thanks in advance for any help anyone can offer. Could use a UC buddy or two!!!
UC diagnosed 2002 (pancolitis)
Flare lasted 3 months
remission for 5 years
Recurrence Jan 2007
+ C.Diff (rt colon), Nov 2007 (tested neg all prev. times); left colon-severe u.c.
Asacol 1600mg three times/day
Prednisone 40mg every am
Mesalamine Enema (1000mg) @ bedtime
Flagyl 250mg 4x day
Bentyl 10mg 2-3 caps as needed
Haven't decided which probiotic yet!