When bleeding doesn't stop

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bonnie2916
New Member


Date Joined Nov 2007
Total Posts : 2
   Posted 11/26/2007 6:04 PM (GMT -7)   
Hey there - I'm SO glad you have found you all.  Thanks for all your posts and information for us newbies!  I was diagnosed with proctitis in March and the day after starting Colazol and Canasta I stopped bleeding.  about eight weeks ago the bleeding started again.  The only symptom - no diarrhea, cramps, etc.  My doctor started me on Canasta at night, then two weeks later when that hadn't helped, Mesalamine (?) enemas every night for two weeks and then every other night for two weeks.  Still was bleeding after the two weeks of every night, so he had me add Canasta back in every morning.  Now I'm done with the enemas and still bleeding.  He wants to give it one more week of doing both and then if bleeding hasn't stopped, do another colonoscopy.  That has me a little worried.  From you-all's experience, what are some of the possible things they could find if I haven't stopped bleeding in a week (that will be over two months of bleeding every time I go to the bathroom - all different colors of red - I'm starting to feel like the woman in the bible who bled for seven years!)  Feeling a little nervous tonight about the possibilities.....

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 11/26/2007 6:16 PM (GMT -7)   
Hi and Welcome! We are glad to have you here. I bled for 3+ months straight before I got everything under control! How many Colazal are you on? So you are doing the Canasa in the am and pm? We have alot of members that use Rowasa enemas...hopefully they will chime in w/ some additional information.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/26/2007 6:26 PM (GMT -7)   
i've been bleeding for over a year.. every time i go to the toilet which has been like 13-20+ times a day.
there have been a few weeks here and there where the bleeding stopped, but thats it.

except for those very few times, every day all the time.. there is blood.
buti also have diarrhea and cramps too, so it might be a different story for me.
im still bleeding.. cant get it under control.

when you find something that helps, let me know please!
steph - 31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only to splenic flexure. 
50mg prednisone 1x day with breakfast 5 weeks now.. will taper next week by 10mg every 5 days.
2x 500mg mesalazine 2x morning & night - colifoam enima 1x at night - 1/2 endone every 6 hours for pain
now taking calcium supps for pred side effects - got lots of those!
50mg imuran 1x day 8pm to have a baby - VSL#3 didnt work - Aloe Elite didnt work - Budesonide didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 
 


bonnie2916
New Member


Date Joined Nov 2007
Total Posts : 2
   Posted 11/26/2007 7:09 PM (GMT -7)   

Thanks - it sure does help to know that other people have had the extended times of bleeding, too.

I'm on three Colazol two times a day and just the enema at night and suppository in the am.


gaff
Regular Member


Date Joined Jul 2006
Total Posts : 442
   Posted 11/27/2007 8:38 AM (GMT -7)   

 

The healing process can take awhile.  It took 1 year for me to figure out my meds and get things under control.  Keep in mind that Rowasa  (mesalamine) is a maintenance drug and should be used continually along with the Colazal.  If I completely stop using either one, my symptoms return.  I would keep trying and give it a lot more time before jumping to a stronger med.  Good Luck!


gaff
left-sided UC since 11/05
 Rowasa, Colazal, Calcium, Centrum
Natren Healthy Trinity Probiotics


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 11/27/2007 10:46 AM (GMT -7)   
I wonder if it ever is under "control".. It appears to be an evolving entity that finds new ways to surface and cause trouble. It's really a pain...
Male 36yrs old. Indeterminate Colitis 6 yrs.


Pro-bio

Protonix
multi vitamin


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 11/27/2007 10:51 AM (GMT -7)   
I take 9 colazal a day when flaring and 6/day while in remission. You may want to ask your GI if you can up the Colazal.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 11/27/2007 12:01 PM (GMT -7)   
The book Listen to Your Gut has dietary recommendations aimed at helping stop bleeding. You may want to give that a look.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years. Down to 10 mg and feeling much better.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 11/27/2007 5:12 PM (GMT -7)   
You could also ask your doctor about steroid enemas, which can get bleeding under control (in my experience) faster than the Canasa or the Rowasa enemas.

I would want to give that a try before going through another c-scope. At least a couple weeks anyway to see if there's something that can get it under control. Generally with Cortifoam (which is like the steroid enema but in foam form. It's great!) I can get bleeding under control in about a week. I could never do that with Rowasa.

By the way, you got a smile out of me with your typo of "Canasta" instead of "Canasa". I'd prefer to learn to play the game of canasta than have to use Canasa, but I doubt that canasta is going to help my bum! lol
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.

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