i am in the same boat. i got off the imuran cuz i want to have a baby next year.
i was only on it for 3 weeks so it didnt do anything for me anyway. so coming off it was no big deal.
my regular doctor said NO WAY to getting preggers on imuran. can cause so many problems its unbelievable. plus what about
the fact that maybe 10-20 years from now our child gets some crazy autoimmune disease like ours or worse and its cuz we were on imuran while pregnant.
the fact that they "don't know" is not good enough to go ahead.
and so what if some woman have healthy babies. what about
the ones that don't? what about
the miscarriages? and all the other problems ones? the chances stated in scientific documents (dr read them to me) say that there is a 4 out of 5 chance to have mutations or birth defects. thats huge.
no way will i take that chance.
i have til the middle of next month to see if im healing and if the mesalazine and pred are working or not. then i have to decide whether or not to go back on imuran and hold off having a baby for a few years. cuz i was told that after a few years i could come off the imuran.
then i hear from others that you have to be on it forever. so all these different stories and answers definitely arent helping my decision making.
i want a baby soon, but i dont want to have one while in this horrible flare. but i am not gonna have one on a class D+ drug thats for sure.
so i dont know what to do really....
steph - 31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only to splenic flexure.
50mg prednisone 1x day with breakfast 5 weeks now.. will taper next week by 10mg every 5 days.
2x 500mg mesalazine 2x morning & night - colifoam enima 1x at night - 1/2 endone every 6 hours for pain
now taking calcium supps for pred side effects - got lots of those!
50mg imuran 1x day 8pm to have a baby - VSL#3 didnt work - Aloe Elite didnt work - Budesonide didnt work
ive lost 40+lbs and my legs look like sticks ... ewww