Wow- I wish I had this site while I was at my son's hospital bedside for three weeks. Reading these posts here seems to put my mind at ease to some degree. He's been home from the hospital since 10/3/07 and improving after a course of Colozal and Solumedrol (which was weaned into Prednisone since the removed the PICC line 2 wks ago). He just had his 3rd Remicade on 11/13 and also on 25mg 6MP (which I keep catching myself wanting to call MP3...) He has had some success however this evening he starting bleeding quite a bit again. Scares me as he lost a lot of blood prior to and in the hospital.
Have others here experienced quite a bit of blood loss while weaning off Prednisone? He is down to 10mg this week.
Mom to 16 yr old Josh, diagnosed w/UC 9/2007. Hospitalized 3 weeks,lost 20lbs, required 2 blood transfusions.
Meds: Finished course of Solumedrol(IV), weaning off Prednisone, 25mg 6MP and Remicade (finished 1st course of 3)