autoimune response

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jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 11/28/2007 3:47 PM (GMT -7)   
if the som autoimune diseases get better why not uc?
please forgive my spelling, it seems that when i type it all goes beyind the margin and i can't see it before i post. i haven't learned how to use this site yet.-thanks all for your responses!
Mom to 19 year old daughter diagnosed 11/07.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 11/28/2007 4:22 PM (GMT -7)   
Define "get better." Ulcerative colitis can be managed and long-term remission can be achieved. I don't know that any auto-immune disease can be "cured" in the strictest sense of the word.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years. Down to 10 mg and feeling much better.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 11/28/2007 4:36 PM (GMT -7)   
you are right , i can't think of an autoinune disease that gets cured , but someone wrote that others seem to be easiear to get into remissions . and maybe stay there. i'm only learning.
Mom to 19 year old daughter diagnosed 11/07.


quincy
Elite Member


Date Joined May 2003
Total Posts : 29856
   Posted 11/28/2007 5:45 PM (GMT -7)   
I suspect I'm not going to explain this very well....but here goes.
I think it's more of the whole....body/mind/spirit....if that's more in sync, it can ultimately help the body's response to stimuli, whatever that may be. The less excessively the body/mind reacts, the more often the body will understand to not overreact.

I think some of it's an overall learned response...but cummulative.

When I was first diagnosed, the relief was awesome because my other doctor did sweet tweet except a barium enema and to tell me I was lucky I didn't have UC....can I say beeeeotch?

Having a doctor who made no judgements, put me though tests and started treatment conservatively worked well. The ups and downs of regressing were very stressful...I ended up with panic attacks (related to family issues) and I was an emotional mess.

As I learned through my doctor's care to be patient...because I knew what to expect, that became less of an issue for me. He giving me the sole direction to use rectal meds as I saw fit, be it inreasing or tapering... allowed me the freedom to not be dependent on him and to use my own judgement.

Eventually the improvement gave me hope and understanding that it's sometimes an up and down go, but not as much down as up as I was getting more experienced.

Whatever my point is...the bottom line is, for all the autoimmune diseases/disorders I have...the less I react to things emotionally/physically, the less the autoimmune responses have been.  Of course, I do use meds for maintenance and for treatment...but again, as conservatively as possible for the least amount of symptoms for long term.  I increase if needed and then taper to maintenance.  That included asthma and UC...the PSC is hopefully going to stay as it is forever.

In saying all that, I'm sure that if my life has a major crisis....my body and autoimmune responses will too.

quincy


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 11/28/2007 5:45:48 PM (GMT-7)

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