New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 11/28/2007 4:29 PM (GMT -7)   
hi! you may remember yesterday i was upset that the dr. wasn't calling me back
and my daughter was in bad pain. well my gp finally got him to call us last night
after 2 days of calls. anyway he said that he really wanted do make a go of the asacol for 3 weeks
if she could before he would add steroid but if not he would start them. hmm.. i said is there any kind of pain med to help along for now, "no" i asked about tylenol, it never does anything for me, and he said ok
. well she had her 1st night of sleep in a month . Now she wants to take it again tonight, but i want to see if it was just a fluke or if it worked. but don't know if she should take it with the asacol again. anybody know if it's known to help?
don't want to stress kidneys or liver.
asacol for 10 days now 4 pills 2x daily. thank you. i know i keep posing questins but it's all so new.mybrain is going on overtime.
Mom to 19 year old daughter diagnosed 11/07.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 11/28/2007 4:35 PM (GMT -7)   
Tylenol is the only OTC pain reliever I know of that's approved for people with IBD. Whether or not it will help is another question... depends on how bad her pain is. As long as she's not taking high doses of it for an extended period of time, I don't think it would put undue stress on her liver.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years. Down to 10 mg and feeling much better.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


icanrace
Regular Member


Date Joined Sep 2007
Total Posts : 221
   Posted 11/28/2007 4:38 PM (GMT -7)   
I would agree.
Just stand CLEAR of the Ibprofin, Motrin, Advil etc.
Tylenol only.
started Prednisone & Asacol on Thursday 10-4-2007

currently tapering Prednisone. Started 15mg on 11-24


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 11/28/2007 5:13 PM (GMT -7)   
I take tylenol a lot for arthrities bad spelling. it has never been a problem and does help when I have pain in my tummy. hope she feels better.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


quincy
Elite Member


Date Joined May 2003
Total Posts : 29843
   Posted 11/28/2007 5:29 PM (GMT -7)   
High intake can cause a strain on the liver and kidneys...but for how you're using it...no.

I take Tylenol and Aspirin....both OK'd by my GI....

The ones that are in liquid form do have artificial sweeteners in them, so can be contraindicated with already sore gut.

What dosage are you giving your daughter?

Has the GI not given your daughter any rectal meds?

One med called dicyclomine would help ease gut and digestive tract spasming. I wouldn't suggest anything more than 10mg dosage....

It's OK to ask as many questions....it's sometimes a much quicker result to enquiries than searching the internet...ahem..or waiting for the doc to call.. ;-)

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Bmshurt
Regular Member


Date Joined Oct 2007
Total Posts : 28
   Posted 11/28/2007 5:37 PM (GMT -7)   
I take anywhere from 3 to 6 Rapid Release Tylenol's a day due to the headache that Prednisone causes. icanrace is right stay clear of those and additionally do not take aspirin. My GI doctor dropped a brick when told him I was taking Bayer for pain. Said that is possible cause of last flare-up being so bad and bloody, as it thins the blood. Doctor said Tylenol is the only OTC pain reliver that is safe. Darvocet really helped me during last flare-up for abdominal pain but that is obviously not OTC. Doctor prescribed to me cause i had some extreme abdominal pain, that plus Phennigan made my nights bearable to sleep (until i had one of those violent BM's that woke me up)...


Medication:
Prednisone 20MG Daily
Imuran x1 Daily
Probiotic x2 Daily
Multivitamin x1 Daily
Oscal Calcuim Tabs X2 Daily
Fish Oil x2 Daily
 
Diagnosed with UC in May of 2007
 

Post Edited (Bmshurt) : 11/28/2007 5:36:43 PM (GMT-7)


Bmshurt
Regular Member


Date Joined Oct 2007
Total Posts : 28
   Posted 11/28/2007 5:56 PM (GMT -7)   
Quincy, your doctor okd Aspirin? My doctor said to stay clear of them, but i was taking a high daily dosage of Bayer for chronic back pain. This could be why he said to switch to Tylenol. Was getting bruises on my arms and legs real easy, guess was taking too many. I prefer to take Bayer myself, much better for pain reliver.
Medication:
Prednisone 20MG Daily
Imuran x1 Daily
Probiotic x2 Daily
Multivitamin x1 Daily
Oscal Calcuim Tabs X2 Daily
Fish Oil x2 Daily
 
Diagnosed with UC in May of 2007
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 11/28/2007 5:57 PM (GMT -7)   
I take Tylenol all the time:)
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


redplum
Regular Member


Date Joined Sep 2007
Total Posts : 49
   Posted 11/28/2007 6:33 PM (GMT -7)   
Hi,

I also take tylenol all the time for my spondylitis(arthritis) pain. It helps a little without upseting my GI tract. Should be fine. Also, I hope your daughter feels well soon.

Regards,

Red Plum

quincy
Elite Member


Date Joined May 2003
Total Posts : 29843
   Posted 11/28/2007 6:34 PM (GMT -7)   
Bmshurt.....yes, because it has no effect on my UC at all. I do get more bruising, however, if i've used it more than a day or so.

I don't take ibuprophen since a hysterectomy in '92 (I took it for period cramping..worked like a charm).

I don't take naproxen because it affects my asthma.

Tylenol doesn't even touch my headaches. He's not concerned because my c-scopes have been A-OK...as well, my UC and PSC are in a nice non-inflamed state. I heal well, and my blood clotting is good. Plus, I've had the same GI for coming on 19 years in January.

Oh, I've taken aspirin since I was 11 years old after I fell causing whiplash that resulted in wry neck and a lifetime of tension headaches.

The one symptom I get from it is more ringing in my ears...which is probably caused from the aspirin use for so long. I'm 53.....and from my perspective...salicylates are a miracle for me. Thankfully.

I do see a chiro for my neck, and that's resulted in less headaches. I use Tylenol for body pains. It's a nice juggle of "line 'em up" so that I function as best as possible.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 11/28/2007 8:41 PM (GMT -7)   
PLEASE - It's a good thing you pushed the doctor on this issue! I really don't get why a doctor wouldn't just say, "sure, try it. It beats being in pain if it works."

I've taken Tylenol w/Codeine nearly every night for the last 2 months. My doctor (who is truly fab) says not to worry about it as long as I don't keep upping the dose.

This idea of giving the asacol three weeks (which seems fairly arbitrary to me) before starting on steroids (which I assume means Prednisone) seems off to me. Anyone else want to weigh in? I just think that:
a) Who knows how long the asacol might take to work... why did he pick 3 weeks
b) Prednisone is a crappy drug to be on and he should tell you all the risks now so you can be ready to make that decision in 3 weeks. (Doctor RARELY tell you all the problems with it.)
c) It seems silly not to try Cortifoam or a cortisone enema first before going all the way to oral steroids. They have fewer side effects and would work right now while the asacol may or may not be kicking in.

Ok, that's my 2 cents. I think that this doctor who doesn't call back sounds annoying. I'm glad you're taking control of the issue and getting the info you need here. Any luck with the doctors in NYC? :)
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


quincy
Elite Member


Date Joined May 2003
Total Posts : 29843
   Posted 11/29/2007 12:44 AM (GMT -7)   
I'll chime in here too....it can take a while for the 5ASA meds to start showing progress...and I would always encourage both oral AND rectal together.

I'd take going on pred as a threat rather than a positive....there's no reason for a 3 week or any time limit for that matter unless you're getting worse on the meds and showing absolutely NO improvement.

using oral 5ASA alone will not help the rectal inflammation that all of us will have regardless of the extent up into the colon.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 11/29/2007 4:56 AM (GMT -7)   
I'm with the majority here - I take Tylonel frequently but not excessively (2-6 a day) to help with my headaches. And it's perfectly safe for Uc'ers. In the past, I would take Darvocet but I would only use that sparingly. It constipates me because it slows my colon down too much.

And pose as many questions as you like! You can't learn if you don't ask right?


 @--->--SHERRY--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio, Colocort**Unable to tolerate Asacol, Rowasa or Canasa** 
~Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)~
~Secondary Reynauds Syndrome - '04 - Norvasc~
~Fibromyalgia - '06~
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
 
 
 
 

 
 


Lou95
Regular Member


Date Joined Dec 2007
Total Posts : 47
   Posted 12/4/2007 4:06 PM (GMT -7)   
I like the 8 hour time release Extra Strength Tylenol.  I take up to four a day and the Dr. said that amount would not hurt my liver.  But, I'm an adult - I'd ask about how much is safe according to her weight and age.  The pharmacist will probably know that as well as the doctor and the pharmacist is more accessible.  Good luck!
Age: 50
Diagnosed:  2005
Medications:  800 mg. Asacol twice a day - in remission
 


UChick
Regular Member


Date Joined Jun 2006
Total Posts : 164
   Posted 12/7/2007 10:39 PM (GMT -7)   
Hi! I take asacol and tylenol is my favorite aspirin. i prefer the cool caplet kind, not that it makes a difference, and i am about your daughter's age. I believe Tylenol is safe enough, but i don't know about taking it everyday. if it helps the pain or lets her sleep take it.

<B>

[color=red>Remission]

<FONT color=green>Asacol- 4 pills 3xday


<FONT color=orange>Azathioprine- 75mg 1xmorning

Took Remicade 3 times, BIG FAN!!!!


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 12/7/2007 10:57 PM (GMT -7)   
PLEASE - Is your daughter doing any better?
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed


jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 12/9/2007 6:46 AM (GMT -7)   
sara, thanks for asking if she is any better. i believe that she is going less frequently
but her blood count dropped so the bleeding is still a problem. she will be home in a week and i will know better when i see her. bu the tyleno did work for her pain and helped her get some sleep.
i hope you are feeling well. can you tell me how long it took to get your 1st flare uner control and what did it for you/
Mom to 19 year old daughter diagnosed 11/07.


Wiped Out
Regular Member


Date Joined Jun 2007
Total Posts : 71
   Posted 12/9/2007 8:02 AM (GMT -7)   
I take Tylenol now after years of Excedrin use.  It seems I have to wait a little longer for relief from headaches and pains but the tradeoff is much safer. 

 
Left-sided UC Diagnosed 2004
Iron Deficiency Anemia Diagnosed 2007
Indeterminate Dysplasia Biopsy Result 2006   
Colazal  -  3X3 daily 
Entocort - 3 daily
Nexium
Folic Acid 
Ferrous Sulfate - 325 mg X3 daily
Vitamin C - 500 mg 
Canasa - As Needed
 
 
 
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/9/2007 9:35 AM (GMT -7)   
I take Tylenol quite a bit too.  It isn't the best, but it's better than nothing.  Now I have Darvocets though, trying not to use them too much, but it feels so wonderful to be completely pain free.  about the Asacol, I remember when I took it, it took 2 months to see any change on it....

Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007: Increased Remicade dosage to 660mg every 6 weeks, diagnosed with Psoriatic Arthritis and Fibromyalgia
Current meds: Remicade 660mgs every 6 wks, Lomotil, Tramadol, Darvocet, Clorazepate, new meds I am about to start: Prograf, Cymbalta, Lyrica


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 12/9/2007 11:00 AM (GMT -7)   
PLEASE - I was first diagnosed in March of this year. I'm still not completely in remission (my last c-scope showed mild inflammation in the rectum only and I still go about 3-4 times a day), but am much, much better than I was at first (I was going over 20xa day with tons of blood and severe abdominal pain). I was first put on Asacol 2 pills, 3 times a day and a course of Flagyl (an antibiotic..I think he gave me this just in case I had an infection along with the UC, but I'm not sure). The Asacol helped tremendously with the pain and bleeding after a couple weeks, but I was still having other symptoms. Then, my Gastro doc. increased the Asacol dose to 8 pills/day and I started Rowasa enemas nightly. Later, he increased my Asacol to 12 pills per day and that's what I'm at now. I still do Rowasa about once a week. So, basically I'm still trying to get into complete remission, but I feel almost normal now. I'm pretty lucky that the Asacol worked so well for me. It did take me a couple months to get rid of all bleeding, and then a couple times it went away for a month, only to come back later. So, it's definitely a disease where patience helps. Hmmm...that was probably more information than you wanted! =)
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 12, 2017 10:40 PM (GMT -7)
There are a total of 2,904,671 posts in 318,781 threads.
View Active Threads


Who's Online
This forum has 158158 registered members. Please welcome our newest member, Mrblonde369.
285 Guest(s), 4 Registered Member(s) are currently online.  Details
Nab, Girlie, OptimisTick, mordant