Welcome to the forum! I haven't been in your situation, nor on pred or remi....but If my life was unbearable because of UC, and the meds weren't working... I'd start the process looking into surgery...no doubt in my mind about
I wonder why you're not on any rectal meds....have you ever been? That should help with incontinence...either a 5ASA retention enema or a steroid one.
What's the dosage of pred?
What other meds have you been on?
What exactly are your symptoms?
Have you made any consideration about
diet? Maybe there are some foods that are contributing to some of the symptoms. I'm not meaning UC symptoms, but some foods just don't agree with an inflamed gut.
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!