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fed up with uc
New Member


Date Joined Nov 2007
Total Posts : 1
   Posted 11/28/2007 6:09 PM (GMT -7)   
 
Hello,
 
I was diagnosed w/ Uc in 02/06.  However,  I was dealing it with way before then.   I've had 4 colonoscopy's since then, hospitalized twice for 7 days each time.  My last colonoscopy was the Monday before Thanksgiving, which showed moderate active UC throughout the entire colon.  My dr put me back on prednisone and changed my meds from Pentasa to Colazal.  Also, my last Remicade treatment  was 10/19.   I'm so fruuuuustrated.    I've had several bouts of incontinence.  At this point,  I'm ready to give up and have the surgery.  I've read many posts that talk about how it's given them their life back.  I realize there are other issues with having the surgery but they seem to out weigh what I'm living.    Just venting!!! 
 
thanks

quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 11/29/2007 1:28 AM (GMT -7)   
Welcome to the forum!    I haven't been in your situation, nor on pred or remi....but If my life was unbearable because of UC, and the meds weren't working... I'd start the process looking into surgery...no doubt in my mind about it.

I wonder why you're not on any rectal meds....have you ever been? That should help with incontinence...either a 5ASA retention enema or a steroid one.

What's the dosage of pred?

What other meds have you been on?

What exactly are your symptoms?

Have you made any consideration about diet? Maybe there are some foods that are contributing to some of the symptoms. I'm not meaning UC symptoms, but some foods just don't agree with an inflamed gut.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 11/29/2007 7:43 AM (GMT -7)   
fed up with uc said...
Hello,



I was diagnosed w/ Uc in 02/06. However, I was dealing it with way before then. I've had 4 colonoscopy's since then, hospitalized twice for 7 days each time. My last colonoscopy was the Monday before Thanksgiving, which showed moderate active UC throughout the entire colon. My dr put me back on prednisone and changed my meds from Pentasa to Colazal. Also, my last Remicade treatment was 10/19. I'm so fruuuuustrated. I've had several bouts of incontinence. At this point, I'm ready to give up and have the surgery. I've read many posts that talk about how it's given them their life back. I realize there are other issues with having the surgery but they seem to out weigh what I'm living. Just venting!!!



thanks


I hear you...
Male 36yrs old. Indeterminate Colitis 6 yrs.


Pro-bio

Protonix
multi vitamin


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 11/29/2007 3:07 PM (GMT -7)   
my GI and I were just talking the other day bout surgery (not for me, just in general). and he was saying that it is important that patients understand that it is ok to want surgery. he doesn't think it is a cure-all, nor does he think it is easy on the patient necessarily, but he did say that over the years he has realized that it is really important for patients to feel like they can ELECT to have surgery and not be FORCED to have it once they are so sick they no longer have a choice. so.. for whatever it is worth, I say you should at least talk to a surgeon if that's how you feel. I think quality of life is really important.
29/Female/NC
Pancolitis dx 3/07
12 Asacol/day
150mg Imuran/day (steroid dependent)
Various vitamins, a probiotic and fish oil.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/29/2007 8:44 PM (GMT -7)   
if that is what you want to do then defintely talk to a surgeon and also talk to some people who have ostomies i have one and for years i was so against it, i thought it was gross and awful and all that, but i got to where nothing was working and i just couldnt; take it, and i wish i had done it years ago. There are downfalls of course, but i looked at it like this, I may hate it after having the surgery and i may not but I KNEW i hated living like i was
 
 
snaej ni tfel eht no cip

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