Having Kids and UC

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Deleuze
Regular Member


Date Joined Nov 2007
Total Posts : 22
   Posted 11/29/2007 12:48 AM (GMT -7)   
Hey everyone,

I am nearing the age and in a relationship where having kids is becoming a really important topic of discussion.

I am noticing lately, however, that I am really questioning having kids at all. I feel guilty potentially passing on this horrible disease to someone else. I can't imagine how terrible I would feel if one of my children got this disease.

Has anyone else been through this battle? What did you decide? What were your reasons?

Also, does anyone have the statistic on the increased likelihood of UC in the children of people with UC? I think it was 10-15% but I don't have a source.

-Deleuze

Diagnosed April, 2007 - No sign of remission yet

quincy
Elite Member


Date Joined May 2003
Total Posts : 29842
   Posted 11/29/2007 1:21 AM (GMT -7)   
Hi..are you male or female?

I have no kids with the support of my husband....decided factor based on the fact that I have a few inherited autoimmune conditions as well as back and neck problems since I was a kid. I also have depression and anxiety, and I would hazard to even imagine how I would have dealt while being sick or even passing it on. My parents knew nothing about this stuff...I do, and thankfully I, nor my brother have any kids.
I'm somewhat resentful I've had to MAKE a decision, but  have no regrets.

No one will deny ever having had kids after the fact....for how can you deny a child you have already produced and love.

If you're male......personally....I don't think having flares will interfere with your producing or having kids, for many men I know don't have the major role of looking after them. Being in the bathroom will interfere with lifestyle, as will the obvious being on meds and pain and suffering having UC can cause.

There are some who absolutely hate having UC and wish for a cure and would never wish it on anyone.....yet have a baby after all that.

I know of a woman who was diagnosed with MS and went through much to have a baby. It put her in a bad state for a long while and the doctors told her that another baby could render her to an exacerbation of her condition. So, guess what she did....had another baby. She's now under complete 24 hour care, cannot even sit up, has someone else caring for her children and her husband left her.

Go figure. I have empathy for her children...but that's it.

Oh, forgot to add I'm still married going on 29 years. My husband would have been a wonderful and understanding father, but he knows it would have been hell with kids because of me.

Some call our decision selfish....sigh.

quincy


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 11/29/2007 5:03 AM (GMT -7)   
Q is right - I already have 2 kids and I love them so much at times it hurts. When I got pregnant with my daughter, I already had Uc but no one told me that it could be heriditary. Would that had stopped me from still having her? I honestly can't say - but I would have to probably say no. I wouldn't want her to possibly have this condition. I would however, probably adopted.
 @--->--SHERRY--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio, Colocort**Unable to tolerate Asacol, Rowasa or Canasa** 
~Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)~
~Secondary Reynauds Syndrome - '04 - Norvasc~
~Fibromyalgia - '06~
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
 
 
 
 

 
 


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 11/29/2007 6:32 AM (GMT -7)   
I am currently pregnant with our first child. We went back and forth on having our own children vs. adopting due to my UC and my mother-in-law's rheumatoid arthritis. The only other person in my family to have UC is my father's sister. We debated for a very long time and did a ton of research but weren't happy with the too many "what ifs" that were left hanging out there. My GI advised that we see a genetic counselor in an effort to have all of our questions answered, which we did. She was absolutely wonderful. She fully explained the hereditary instances of both diseases, and we were told there is, on average, a 2-5% risk of passing UC on to our child. Of course, there are no guarantees, but based upon both my and my husband's genetic make-up, that is where we came out. We decided to go for it.

There was a great discussion about this on this board several months back. Someone (I'm sorry - I forget who) went to a conference where they heard a leading GI speak on fertility issues. She brought back her notes and posted a ton of information about passing this disease on to your children. You might try searching the posts to find it. It was really informative.

In our opinion after the research and our genetic counseling... when you look at UC as compared to the hereditary links to various other diseases, the risk is relatively low. There are much higher risks for things like Down's Syndrome, leukemia, other types of cancers and childhood diseases, spinabifida, etc. It really is scary when you think of all the things that can go wrong! The bottom line is that it is a big decision and a very personal decision at that. I find that educating myself allows me to make a decision that I am comfortable with, and I would recommend doing as much research and even trying genetic counseling to find more answers.
Current Medications:
- Asacol (4 pills, 2x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/29/2007 9:17 AM (GMT -7)   
Yes, according to a research paper I recieved with my CCFC journal there is a -10 to -15 fold increased risk of offspring developing IBD (either CD or UC) if one parent already has the disease but...disease also has to be triggered, imagine how many people walking around right now that are actually predisposed to getting it but it hasn't been triggered for them yet (and may never be in their life)...my mom didn't get UC until 65 yrs of age, well obviously she had all 6 of us kids before that and so far I'm the only one out of 6 that has crohns.

And as far as having kids goes, look at it this way, there are way too many people who have kids that shouldn't and just as many that don't who should...it's the way life is, if it wasn't then we'd be living in a perfect world.

You also never know what bringing a child into the world will bring, possibly some heartache and likely alot of joy, so long as you want the child(ren) and are comitted to giving up a big part of your life for them...not an easy choice by any means.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 11/29/2007 9:23 AM (GMT -7)   
I try to look at it like this...I have a family history of a million illness/diseases (I'm sure everyone else does too). There is a chance that my son not to mention myself from my side alone coule get....UC (obviously), heart disease, bipolar, depression, prostate cancer (okay not me on that one), dementia...I could go on for days (and that's just my parents and grandparents!)

I had my son Pre-UC diagnosis though. I'm done being having kids but if I wasn't I would absolutely have another under the supervision of my GI and an ob/gyn that had experience w/ IBD patients.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 11/29/2007 9:30 AM (GMT -7)   
My husband and I are ready to have kids and have been discussing my UC and kids. We are definitly having kids. I understand that there is a risk of passing this dd on to my kids but there is a chance of them getting hit by a bus. No one in my family has UC. I feel as though my kids could just as easily develop cancer, high blood pressure, or any of the multitude of things that run in my or my husbands families. At least if they do get UC I wll be able to help them and will know exactly what they are going through. Hopefully before any of my kids have to deal with this there will be a cure, or at least better options than we have now. For me the desire to have kids, to raise them, love them, and teach them how to be good people outweighs the risks. I am a glass half full person.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, 15 mg pred. until immuran kicks in...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07
Prontonix once daily for acid reflux, zofran twice daily for nausea


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 11/29/2007 9:40 AM (GMT -7)   
I believe if we did not have kids unless we knew they would come out 100% perfect w/no problems then nobody would have kids. Everyone's family tree has something. My friends father has UC, should she not have children? Meaning where do you draw the line? There are so many shades of gray.

There is just no guarantee.....now that said, I would feel terrible if my future child had UC but what if my future child becomes a Dr. and finds a cure for UC, there are so many what if's. I truly belive it's a personal decision that you have to live with the rest of your life and so does your child, so whether you want to have children or not, you need to be comfortable with your decision.

There is a movie called Gattaca (came out in the 90's has Uma Thurman & Ethan Hawke in it) and it is about people only having 'perfect' children and people who decide to have children the regular way (meaning the child might need glasses or have an illness someday) are less in society. Not saying anyone is saying that but it is a very interesting take on this subject of knowing potentially you can pass something on to your children.
Beth, 32
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly;Hydrocortisone e's tapering, Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/29/2007 10:11 AM (GMT -7)   
It's like saying none of us should have been born because we now live with IBD, I'm sure most everyone of our parents that are aware of our health issue feel terrible but it's not like they wanted it to happen...besides there are definitely worse things to live with.
I also had my first child before I got sick with crohns (and although my mom has UC she didn't get it until AFTER I got CD) so we had no idea that IBD was even exsistant before she and I had kids.
 

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 11/29/2007 11:32 AM (GMT -7)   
I'm starting to think it isn't 'inherited' but instead 'communicable'..
Male 36yrs old. Indeterminate Colitis 6 yrs.


Pro-bio

Protonix
multi vitamin


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/29/2007 11:54 AM (GMT -7)   
Too much research proves many genes directly related to crohns and UC.
 
here's one link from the CCFA, you may have to copy and paste it...
 
 


My bum is broken....there's a big crack down the middle of it!  LOL  :)


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 11/29/2007 12:43 PM (GMT -7)   
I thought it was a gene for susceptibility... Not for inheritance..
Male 36yrs old. Indeterminate Colitis 6 yrs.


Pro-bio

Protonix
multi vitamin


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 11/29/2007 1:16 PM (GMT -7)   
You know... I have UC, and a year into dating my boyfriend he started having a lot of stomach issues, and I'm beginning to think he either has IBD or at least IBS, which he never had issues with before dating me... But that's besides the point. Him and I have talked about kids and I most definitely want to have kids even though I know they will probably have colic (him and I both did) and will probably need glasses (we both do) and might have IBD. I've never had thoughts of not having children cross my mind because it's my main goal in life *shrug*
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
40 mg Citalopram (for depression/social anxiety)
125mg Imuran
 
Should also be on supplements and probiotics and other UC drugs but I'm just not good at taking pills...


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/29/2007 2:34 PM (GMT -7)   
Harpo, that's just one link...there are genes of inheritance, it's written up in my CCFC journal (more to follow)....here's another link....
 


My bum is broken....there's a big crack down the middle of it!  LOL  :)

Post Edited (pb4) : 11/29/2007 2:36:01 PM (GMT-7)


Trixy's Got Butt Trouble
Regular Member


Date Joined Jun 2007
Total Posts : 356
   Posted 11/29/2007 2:36 PM (GMT -7)   
If I were to choose not to have kids, it would not be b/c I have UC. UC is treatable and manageable. Yes, it would suck if my DD got this, but there is a good chance that she won't. My mom has colitis, and I'm the only one out of 6 kids that has UC. [shrug]. You just never know.

And when you adopt, you get all other kind of health issues you don't know about that could prop up. What if the birth mom or dad develop UC after they put their baby up for adoption? Just b/c they didn't have it when they gave birth, doesn't mean they won't get it later.

My DH is clueless about his families medical history. So if you were to adopt from someone like my DH, you might be told all is well, but in reality it isn't....KWIM? I have always taken an interest in my families medical history and know probably more than I care to know, but not everyone does or cares or is open to discussion. My DH's family doesn't talk about it at all. My FIL is dying of cancer and it's like pulling teeth from them to find out the status, etc. Forget about distant relatives. No telling what they have or died of. My family is different.

My dad had high BP, my mom has sleep apnea which caused a stroke and heart attack, my brother has diabetes, my dad died of cancer, my GPa died of cancer, my GMa died of cancer, I have a cousin who had cancer, but survived, I have 2 aunts who died of cancer, and the list goes on. I still chose to have a child and I would never change that for the world.
Best Wishes,
Trixy (39)
dx Pancolitis, mild, w/more activity on left side & IBS
12 Asacol a day;
1 Rowasa at night during flare/1 a week during remission;
Nexium; Probiotic; Multi-Vitamin; Flax Seed Oil
UC manifesting to other organs: joints, eyes (Iritis) & skin (Erythema Nodusom)
Controlling w/MEDS & DIET (eliminating animal protein, white flour, sugar, dairy, eggs, & nightshade veggies)
Current Status:  11/2/07 Ending 5 month remission w/mini-flare :-(


Deleuze
Regular Member


Date Joined Nov 2007
Total Posts : 22
   Posted 11/29/2007 2:42 PM (GMT -7)   
Wow, it is so great to hear about other people struggling with this issue.

To answer Quincy's question I am male, so my concern is less about the actual pregnancy and birth and more about the heredity. Although due to the nature of my job (hopefully) after I am done with graduate school as a professor, I may be responsible for a lot of the day to day care due to schedule flexibility.

I have never heard of a genetic counselor, but that sounds interesting!

Also, another reason why I am really concerned is because my Dad has Crohn's, so it just seems as if my children would have an even higher likelihood of having this disease.

MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 622
   Posted 11/29/2007 2:46 PM (GMT -7)   
This is so personal, there are no cookie-cutter answers that fit for everyone facing this decision. There are no guarantees. If you are ready and you believe you have gifts to offer a child, I say go for it. I believe in the future, we cannot imagine what will be available to treat the illnesses that we struggle with today. Life is a crap shoot.

I personally did not have children and I am 52. Part of the reason that didn't happen for me is because in my 20's, I was not ready, in my 30's and 40's I was struggling so with depression, and in the end, time passed me by.

I do not have an unmanageable (by any stretch of the imagination) variety of colitis. I was much, much, much more concerned about passing on my chronic and much more debilitating depression onto a child. Besides, I was in no frame of mind or emotional condition to be able to meet the needs of a child when it was possible that I could actually conceive and deliver one.

Best of luck in whatever you decide. I wish more people would think about it ahead of time like you are and prepare themselves.

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/29/2007 2:50 PM (GMT -7)   
A research doc in Canada had this write up regarding the genetics and inheritance of IBD....

Genetic influences have long beein suspected to play a role in IBD based on the following clues.
1. a significant percentage (~20) of IBD patients have a relative that also suffers from IBD.

2. certain ethnic groups are at substantially higher risk for IBD than the general population (jewish desent).

3. there are extream cases of familial IBD where nearly every member of a family suffers from the condition.

4. in studies of identical twins, if one twin has crohns, there is a 40-60% chance that the other wtin will also have the disease.

In the past few yrs, advanced genetic techniques have allowed scientitist to discover at least 9 different gene clusters that CONTRIBUTE to the development of IBD and DEFINE THE SEVERITY AND behaviour of the disease overtime.

some of these genes encode factors involved in reconginition and defense against bacteria (why probiotics are key!!!!) Mutations in immune response genes may adversely affect how the immune system reacts to harmless bacteri and this probably contributes to the development of IBD.

Several different genes have been identified that are associated with IBD and it's very likely that many more IBD genes exsit and await discovery...how genes are passed from parent to offspring is still poorly understood (especially since not necessarily does every IBDer have a parent with IBD)...some have other family members with it, grandparent, cousins, ect.

For CD, cigarette smoking is one KNOWN trigger for CD....so if any of you smoke, you shouldn't smoke around your kids as second-hand smoke is included in this environmental trigger.

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 11/29/2007 2:58 PM (GMT -7)   
This is definitely a really interesting question and I've enjoyed reading the responses here.

I've always been on the fence about whether I want to have kids and I've decided not to. The thing I have noticed is that the decision NOT to have kids seems to require justification in our society. Having kids in the norm. If you don't, then you should have a good reason. UC sounds like a good reason and maybe for some people it is. I'm sure that there are other people besides me who maybe weren't psyched about having kids and decided not to have kids in large part because the idea of taking care of kids when you feel like heck is horrifying to us. BUT, I think that if I'd REALLY wanted to have kids, I would have done it anyway. People tend to figure out how to get through the hard stuff when they want to. So the UC might be the reason I give to myself or others because it's the easy reason.

But in reality, I don't actually think that's the best reason not to have kids. Extended family or babysitters (if financially feasible) could provide backup during flares when child care might be too difficult. And the heredity issue, like others have said, is just part of being human. We pass things on to our kids and we can't know what it will be.

Thanks for the opportunity to think about this "out loud" and share some thoughts.
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/29/2007 3:01 PM (GMT -7)   
There's also this info...

Clinical, epidemiological and molecular data reported in the last 5 years have provided strong evidence that genetic factors are important in susceptibility to both Crohn's disease and ulcerative colitis. The model of disease inheritance which best fits the epidemiological data is that Crohn's disease and ulcerative colitis are related polygenic diseases. However, genetic heterogeneity is likely to be extensive, and may well underlie the variability in clinical presentation associated with inflammatory bowel disease. Considerable progress has already been made in identifying potential disease susceptibility loci using the technique of genome-wide scanning. There is optimism that international collaborative studies will allow fine mapping of the loci implicated on chromosomes 16 and 12. The identification of novel susceptibility genes has become a realistic goal for investigators. Once this has been achieved, there are likely to be immediate clinical benefits, both in understanding disease pathophysiology, and in disease management.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 388
   Posted 11/29/2007 3:32 PM (GMT -7)   
I'm in the same situation right now - recently married, talking about kids. I would feel so guilty if my kids turned out to have UC.

But, on the other hand, they could cure it tomorrow, or next year, or ten years from now, and some above have pointed out the odds are small of your child getting it (though my mother had it as well.)

What I'm also concerned about is whether the stress of caring for children would give me a nonstop two decade flare.
12 Asacol
100 mg Imuran
6 or 9 fish oil pills
4 Acidophilus pills


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 11/29/2007 4:04 PM (GMT -7)   
lol, UCinGV, kids might cause a two decade flare! I did not think of that = )

Just a couple more cents from me. My Mom had UC and she had it 50 times worse than me. I am very glad that she did not make a decision not to have me b/c of it and I am very glad to be here = ). (I intend this comment to be taken as I am not angry at my Mom for me having UC).

Also, my brother and sister are both smokers and do not have UC (ages 42 and 27 respectively).

For the people that decide not to have kids, I think that is great. I don't think that anyone should have kids, 'just to have them' or for any other reason than a conscious decision to want to be a parent (and all that comes with it.....). Like I said before, it's a very personal decison and whatever the factors are of deciding not to have children or to have children as long as the people making them are comfortable with the decision that is what matters.
Beth, 32
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly;Hydrocortisone e's tapering, Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 11/29/2007 4:30 PM (GMT -7)   
We chose not to have kids. Not only am I concerned about possibly passing gut troubles along to my children, I'm worried about how I would handle the stress of having a baby/small child. I have no idea how pregnancy would affect my UC and frankly, I don't know how I'd manage caring for a baby/small child while trying to take care of my own health and hold down a full-time job. (I'm the primary bread winner in the family.)

I've learned to manage my UC and am mostly in remission now, but I think back to the first couple of years when I was diagnosed and how sick and desperate I was. There were many times when I was stuck for hours in the bathroom, bleeding and in pain, that I thought, "Thank God I don't have children. What would I do? Lock them in the bathroom with me?" There are no guarantees I won't someday be in that same shape again. For me, it's not worth the risk.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years. Down to 10 mg and feeling much better.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/29/2007 6:25 PM (GMT -7)   
Most definitely if kids don't fit into your lifestyle then don't have them...when they turn legal age, it doesn't end there, once a parent always a parent, no matter how old they get, you'll always have the parental worry and everything eles that goes along with being a parent...

I have to say though, although I didn't get sick with my crohns until my first baby was a yr and a half old, most people assume that at that age she'd be heading into her "terrible 2's" and she was a peice of cake until she became a teenager (which she currently still is, but being in Canada, she's legal at 18), my second child I had aprox 3 yrs after the first, was a colicky baby, didn't sleep worth a darn, but grew into a great kid and although he's also a teen now (14.5) he's been a dream kid, he really made up for being a brat just as my daughter made up for being an angle when she was little, funny how it can work that way...the yrs go by so fast and I've always been in some degree of a flare througout their childhoods and we still managed quite well even with little bumps in the road our daughter put us through....but seeing them growing into such beautiful, responsible and productive people is reward enough especially when I look at how one of my sisters kids turned out (very bad news from the time they were little to now, mid 20's and early 30's and they're hellish people)...

It's all a personal choice, no one can tell you whether or not to have kids and IBD can sometimes be the deciding factor especially if your disease activity is more on the severe and constant side compared to an IBDer who is more mild and has more frequent/long lasting remission...as this is something to consider as well maybe.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


mama2
Regular Member


Date Joined Jun 2007
Total Posts : 42
   Posted 11/29/2007 8:25 PM (GMT -7)   
I was diagnosed as soon as I became pregnant...Had no clue what was in store it was a challenge but I was very glad to have had my daughters however wound up in the hospital when my first daughter was a year old for 2weeks and my second daughter I wound up in the hospital for 29days. I thought at time I would never see them grow and my friends and family had to take care of them....Well I am happy that I had them and I am desperate for a cure.. I know there is surgery and they say thats next for me... I am not quite ready as I just came off prednisone after 6 months and finally feel like myself... Don;t want to leave my kids again very hard on them...These are personal choices, this last flare was a big problem on my body and my mind but I think it makes me stronger and my kids stronger that I want to get well for them,,, My little girls bring me the biggest joy on earth and even thu my body may never be right my heart has such love from them!!!!!!Good luck to those who don;t want to have children I completely understand.. I pray my girls don;t get this. I keep a journal just in case something happens and I die and they do get UC they can read it and hope they follow some things to help them, and everyone who has kids and struggle enjoy every minute you have they are precious....God Bless all of us with this terrible disease....




12 Asacol,1 protonix, Remicade every 6 weeks, mulit vit, probiotics
Asacol 400 mg 12 a day
Remicade every 6 weeks
Proton ix
Xnanx
Anitriptalyn

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