Wow.. read this

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Harpo
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Date Joined Jul 2007
Total Posts : 262
   Posted 11/29/2007 8:52 AM (GMT -7)   
Stem cells...

www.emcell.com/en/case19/index.html
Male 36yrs old. Indeterminate Colitis 6 yrs.


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expecting226
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Date Joined Jul 2007
Total Posts : 402
   Posted 11/29/2007 9:03 AM (GMT -7)   
I am firm believer that someday, UC and Crohn's will be cured via stem cell transplants. (Yes, I said cured.) My GI believes this is where we are headed, too.

When you are pregnant, one of the things that you can do now is bank blood from your baby's umbilical cord. The collect the blood at birth, immediately after delivery. This blood contains stem cells that are an exact match for the baby and are likely an exact match for the parents and siblings. (I'm simplifying things a bit here. To read more, you can go to the ViaCord website. They are one of the companies that do this.)

The only issue is that it is expensive to bank the cord blood. I've been investigating it to decide whether or not to do it and have exchanged several emails with my GI about it. His advice was that I would be crazy not to do it. He said they have already had success with stem cell transplants in UC and Crohn's patients in the UK (as evidenced by Harpo's link) and that it is very likely these stem cells could benefit me, my child, and any future siblings.

Harpo - Thanks for the link to this article. It reaffirms our decision to spend the money on this. To our future health!
Stem cells from cord blood are not subject to the restrictions the U.S. government has put on them because they do not come from an embryo. So, if you need the transplant and have these banked, they are available to you without any issues.
Current Medications:
- Asacol (4 pills, 2x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


Harpo
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Date Joined Jul 2007
Total Posts : 262
   Posted 11/29/2007 9:16 AM (GMT -7)   
My wife just had a baby 2 weeks ago.. Its a shame I didnt know this then...
Male 36yrs old. Indeterminate Colitis 6 yrs.


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pb4
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Date Joined Feb 2004
Total Posts : 20577
   Posted 11/29/2007 9:20 AM (GMT -7)   
Don't worry about it, because on the news just last week researchers have discovered they are able to make stem cells from skin...no more whining and fighting over ethics on this topic anymore.
 
Here, read this link...
 
 
 
ANTI-SPAM FILTER IS A PAIN IN THE BUTT! (language Pb tongue )

:)

Post Edited By Moderator (Red_34) : 11/29/2007 7:42:59 PM (GMT-7)


Harpo
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Date Joined Jul 2007
Total Posts : 262
   Posted 11/29/2007 9:23 AM (GMT -7)   
Yeah, But they need to "git-r-dun".. Cause I cant wait much longer I fear.. Dr's usually take decades to get treatments approved.
Male 36yrs old. Indeterminate Colitis 6 yrs.


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ediekristen
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Date Joined Apr 2007
Total Posts : 1366
   Posted 11/29/2007 12:57 PM (GMT -7)   
Wow, thank you for mentioning the ViaCord service... I didn't even know anything like that was possible! I just looked on the website and even though it's $2000 which is a lot, I think it's totally worth it and besides, they offer payment plans as well. I will definitely do this when I have a baby!! You never know what could happen and what you or your baby might need that blood/cells for.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
40 mg Citalopram (for depression/social anxiety)
125mg Imuran
 
Should also be on supplements and probiotics and other UC drugs but I'm just not good at taking pills...


ithurtsmom
Regular Member


Date Joined Nov 2006
Total Posts : 289
   Posted 11/29/2007 7:59 PM (GMT -7)   

My daughter was diagnosed at age 5 with UC, she is now 6.  I'm so thankful that I listened to that little voice and saved her cord blood, as I'm sure this will help her some day.  It is well worth the money, they are just learning all that can be done.

 

 


Joan
 
Daughter 5, UC
Pentasa 2X2 daily
Omega 3
Folic Acid 1000mcg.
Fiber
Probiotics
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/30/2007 11:08 AM (GMT -7)   
well I just heard on the news this morning that scientists have discovered the "aging cell (gene)" so instead of plastic surgery you can have this gene shut off apparently....they need to do this with the inflammatory gene(s), just think of how many different inflammatory diseases would no longer be a problem for people.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


barnsbury
Regular Member


Date Joined Jan 2006
Total Posts : 464
   Posted 12/1/2007 4:53 AM (GMT -7)   

Harpo - Thanks for the link.  It was really interesting.

Is this treatment now available? 


Back on Pred - 6mg - Steroid Dependent :-(
Azathioprine 125mg
Actonel 35mg
Predfoam Enema
EPA Fish Oils
Various Homeopathic meds
Asacol x 9
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
 


macgrl
Regular Member


Date Joined Nov 2007
Total Posts : 26
   Posted 12/1/2007 7:36 AM (GMT -7)   
This is great news! I'm currently 18 weeks pregnant and having an unbelievable flare. I've been struggling to find answers, hope, etc. and this might be just what I was looking for. $2000 though? That's crazy expensive. Does anyone know if it's that much in Canada? But if it works, it would be worth it!
----------------------------------------------------------------

Diagnosed: July 2007
Pregnant: Due 05/2008
Meds: mesalamine, 40mg prednisone,
Other: prenatal vit., probiotics, calcium, fish oil.


Reef08
Regular Member


Date Joined Dec 2005
Total Posts : 267
   Posted 12/1/2007 4:21 PM (GMT -7)   
We can't just turn inflammatory genes off since we need a certain amount of inflammation as a response to infection and injury in the body. The genes are just mutated. They are still needed though. I don't think we'll see any gene therapy for curing autoimmune diseases for a loooong time.

However I do agree (and so do many scientists) that stem cell transplants will be used to cure autoimmune diseases in the very near future. It's already becoming more common and safer actually.

In fact, here's a new article in which scientists eliminate the defective immune system without chemotherapy in mice. This pretty much eliminates most of the risky side-effects.

http://www.medicalnewstoday.com/articles/89747.php

Post Edited (Reef08) : 12/1/2007 11:08:02 PM (GMT-7)


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 12/1/2007 6:06 PM (GMT -7)   
KSU said...
Harpo - Thanks for the link. It was really interesting.

Is this treatment now available?


Yeah, In Italy.. The neo-con's in power have radically dampened stem cell research due to religion..
Male 36yrs old. Indeterminate Colitis 6 yrs.


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summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 12/1/2007 9:23 PM (GMT -7)   
We used CBR and it was like 1250 or something to start with and it is 95.00 a year, i have coupons for CBR, but i am not sure if i would be allowed to get them to someone. Anyway, you can also bank your cord blood publicly, like a blood bank, but of course there is no guarantee you will be able to use it.
ViaCord may have changed, but when we banked ours Viacord was having some serious problems.
 
 


barnsbury
Regular Member


Date Joined Jan 2006
Total Posts : 464
   Posted 12/2/2007 4:00 AM (GMT -7)   
Thanks Harpo  - But, how do we go about buying the treatment? Can anyone go along and get it?

Back on Pred - 6mg - Steroid Dependent :-(
Azathioprine 125mg
Actonel 35mg
Predfoam Enema
EPA Fish Oils
Various Homeopathic meds
Asacol x 9
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 12/2/2007 5:38 AM (GMT -7)   
I don't think stem cell research has progressed nearly that far yet. As far as I've heard, they're just starting to try a few things with mice. It's a long process to get something completed, tested and approved, and testing on mice is a very early step in the process.

And yes, due to the objections of some (who seem to believe stem cell research promotes abortion), the progress in stem cell research has been very slow. Scientists in this country were banned from using any new strains of human cells if they receive any government grants (most do), and the two existing strains that were deemed acceptable for use both have cellular problems, as I understand it.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 12/3/2007 11:54 AM (GMT -7)   
Judilyn said...
I don't think stem cell research has progressed nearly that far yet. As far as I've heard, they're just starting to try a few things with mice. It's a long process to get something completed, tested and approved, and testing on mice is a very early step in the process.

And yes, due to the objections of some (who seem to believe stem cell research promotes abortion), the progress in stem cell research has been very slow. Scientists in this country were banned from using any new strains of human cells if they receive any government grants (most do), and the two existing strains that were deemed acceptable for use both have cellular problems, as I understand it.


So.... did you read the link I posted?
Male 36yrs old. Indeterminate Colitis 6 yrs.


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Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 12/3/2007 11:55 AM (GMT -7)   
KSU said...
Thanks Harpo - But, how do we go about buying the treatment? Can anyone go along and get it?


i've got some emails out there, But I dont now anything yet.. :) I let you know if I hear anything.
Male 36yrs old. Indeterminate Colitis 6 yrs.


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UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 389
   Posted 12/3/2007 1:19 PM (GMT -7)   
The report doesn't say anything at all about stem cells. . . it says the patient was injected with "hematopoietic human fetal liver cells." (Unless hematopoietic means stem cell? I don't know)

And, from what I gather, it doesn't explain why doing this should help with ulcerative colitis.

Can anyone explain?
12 Asacol
100 mg Imuran
6 or 9 fish oil pills
4 Acidophilus pills


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 12/5/2007 2:48 AM (GMT -7)   
Any news Harpo?

Does anyone know if we are close to a cure for internal inflammation?

Current Diagnosis in October 2007: Colitis (Mild inflammation on Rectum, Right and Left side of Colon)                                 

Medication Prescribed: 800mg Mesalazine (Asacol) x 3  

Symptoms: Two or Three BM's a day, moderate urgency, no diarrhea or constipation, irregular stool pattern due to IBS, no other symptoms (minor Bleeding stopped after taking Metronidazol and Asacol for 10 days). Also suffer from hyperchondria, anxiety and stress.

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