WOW! How frustrating to not know if you are getting the placebo or not! I mean, based on the flex sig, I'd assume you are getting the placebo- or that the drug is not what the researchers thought it owuld be! But then again, looking at your history with meds... nothing much seems to work for you. Yuk! Please, let me know how the flex sig on the 10th turns out- I'm really curious about
this drug. So far the high Remicade dose has been helping me, every 6-7 weeks. But as I taper off pred, per usual, my symptoms are slooooooooowly increasing. Same old, same old..... Now if the scope on the 10th shows no improvement, what does "enter into the
open label & get the real treatment" mean? That you are in fact currently receving the placebo, or?????? And was it a pain to enroll in this trial? Did your GI have to jump thru hoops to get you in, does it cost anything, did your insurance give you grief over paying for it?
diagnosed with UC '02
Asacol- 8 tabs/day