Left side pain and UC

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UC Mom
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Date Joined Jun 2007
Total Posts : 146
   Posted 11/30/2007 1:17 PM (GMT -7)   
My son is having a flare up, and last Sunday, began having pain on the left side.  I thought maybe he pulled a muscle, but now I wonder if this is a new symptom for him.  His Gastro doctor did not seem too concerned.  Ibuprofen helped alot, but then I found out he wasn't supposed to have that.  Tylenol is not working as well.  Any ideas out there?  Does anybody have similar troubles? 

dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
   Posted 11/30/2007 1:58 PM (GMT -7)   
Left sided pain is quite common with UC. I usually have pains on my left side right under my rib cage when flaring.

You are correct. No ibuprofen or any other NSAIDs. I like the extra strength Tylenol fast release pills and a heating pad.

If the pain is too much for the Tylenol, he could ask his doc about other options.
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Forvia and a Probiotic
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
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UC Mom
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Date Joined Jun 2007
Total Posts : 146
   Posted 11/30/2007 2:47 PM (GMT -7)   
Thank you.  He is 17 and was diagnosed last year. The symptoms went away for about 8 months and came back.  It breaks my heart.  Is it normal to have pain eventhough he seems to be getting better?  The dr. bumped his asacol up, and the bathroom part is getting better and the bleeding is better too.  This pain is not better though. He didn't have this pain last year.

Red_34
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Date Joined Apr 2004
Total Posts : 23549
   Posted 11/30/2007 7:19 PM (GMT -7)   
Usually the left sided pain was the last to go for me. Even when I was feeling better. Once he's in remission, the pain should lessen or cease. Darvocet is a good pain med for Uc'ers though for me, if I take more then one dose, it constipates me. Is he on rectal meds as well?
 @--->--SHERRY--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio, Colocort**Unable to tolerate Asacol, Rowasa or Canasa** 
~Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)~
~Secondary Reynauds Syndrome - '04 - Norvasc~
~Fibromyalgia - '06~
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
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UC Mom
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Date Joined Jun 2007
Total Posts : 146
   Posted 12/1/2007 5:17 AM (GMT -7)   
No, no rectal meds. The pain was so bad last night, he woke me
up in tears.  Is you pain ever severe like that, or do I need to call the doctor?  I worry alot:(
He did finally get back to sleep with the heating pad.  The darvocet didn't help the pain.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 12/1/2007 6:19 AM (GMT -7)   
I can only speak from my own experience - but no, my pain has never been severe enough to wake me nor failed to be relieved from Darvocet. I think that a phone call might be in order - wouldn't hurt right? Remember that anytime you have a question about what is going on with your son, never hesitate to call the doctor. That is what they are there for and if you have a great understanding doc, then he/she won't mind either.
 @--->--SHERRY--<---@
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio, Colocort**Unable to tolerate Asacol, Rowasa or Canasa** 
~Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)~
~Secondary Reynauds Syndrome - '04 - Norvasc~
~Fibromyalgia - '06~
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
 
 
 
 

 
 


quincy
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Date Joined May 2003
Total Posts : 29860
   Posted 12/1/2007 7:47 AM (GMT -7)   
Hi...you should call the doc and request a prescription for rectal meds such as the Rowasa retention enemas...or even the Canasa suppositories (the retention meds would be better)...and have him start using them at night.

The other suggestion is to request an antispasmodic...I use dicyclomine and it's awesome for me. Your son can take it about a half hour before he goes to bed. That will help with the rectal meds as well...meaning to help settle the colon/rectum and make it easier to retain the meds.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 12/1/2007 8:17 AM (GMT -7)   
Thanks you so much for the information,and just for being there to listen. Take care :)

Robert.K
Regular Member


Date Joined Nov 2007
Total Posts : 137
   Posted 12/1/2007 3:29 PM (GMT -7)   
Hello UC mom, as was said already, left-sided abdominal pain isn't an uncommon symptom of UC, especially when the disease is moderately to severely active. If you're interested, the reason the pain is felt in that region is due to the progression of the colon from the rectum (he's feeling pain where he's inflamed). Going up from the rectum, the colon goes left around the region of one's belt/waistline, then up, then straight to right all the way across to the other side of the mid-abdomen, then down and again to the left where the colon meets the small bowel. For most patients with UC, the inflammation of the bowel is the last 50% of the colon, which is where your son is experiencing his pain.

Post Edited (Robert.K) : 12/1/2007 3:33:04 PM (GMT-7)


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 12/1/2007 3:34 PM (GMT -7)   
Thank you. It was the severity of the pain that had me worried. The doctor said he could take ibuprofen instead of tylenol, so he feels much, much better today. I know ibuprofen is not the best choice, but it works, and he can get back to school. The pain was so bad earlier today and last night, he had to miss the SAT exam. Stress????? Maybe. He is a good student however. Thanks again.

Robert.K
Regular Member


Date Joined Nov 2007
Total Posts : 137
   Posted 12/1/2007 3:39 PM (GMT -7)   
That's too bad, hopefully his relief will last long enough to make his exams pass over as easily as possible. There is a definite correlation between the severity of the pain and the severity of the inflammation, but keep in mind that it isn't uncommon for the pain to be on the verge of being debilitating. I've never had a migraine, but I've heard things from migraine sufferes that reflects some of how I feel when I experience severe cramping from UC activity. For example, when I am experiencing a severe cramp, I want to minimize or completely eliminate all stimuli while I wait for the pain to pass over me. That means closing my eyes, being in a quiet place (turning off the TV, telling whoever I am with to simply be quiet for a short little while, etc), and basically "shutting down" temporarily. Hope that makes sense.

UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 12/1/2007 4:17 PM (GMT -7)   
It does, and I really appreciate your caring. I had much rather have this disease myself, instead of my son :(

Robert.K
Regular Member


Date Joined Nov 2007
Total Posts : 137
   Posted 12/1/2007 4:21 PM (GMT -7)   
Don't say that, but yes I can't really imagine being in your position as a mother and feeling that there's little you can do for him. But that's not the case (if that is how you're feeling). Although you cannot "cure" your son, providing what support he requests and helping him out in any way he needs is really a priceless thing that family can do for one another. Remember this: UC doesn't take away the things in life that are really important. one way or the other, his UC will be resolved, and his mind will remain intact, he'll be able to complete virtually any career plans he may have (school, etc), he'll be able to improve and build new relationships with family and friends... remember, the important things in life cannot be taken away by UC. Worst case scenario, he suffers physically for a period of time and it will build character ad perspective. The bright side may not be easy to find, but it's always there :-)

Hope that also makes sense. It's hard to understand, but UC can have a lot of bright sides to it in regards to what a person can learn from it.

UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 12/1/2007 4:24 PM (GMT -7)   
You are so kind to take the time to reassure a Mom. Thanks again:) We will get through this......

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 12/1/2007 7:53 PM (GMT -7)   
ibuprofen may not be the best, but for some people Tylenol simply doesn't work. I'm one of those people myself, so I'm sure your son is happy to be allowed to take it for the time being and get some relief. And you may be right, stress can definitely increase cramping and pain. And even good students get a little freaked by the SAT =P Hopefully he's just experiencing a fluke occurrence of pain and he'll be ok in a few days. If not, definitely call his Dr. again. and i wish him luck for whenever he gets the chance to take the SATs. :)
diagnosed Dec 2006 at 22 years old and flaring since
30mg prednisone in a 4 week taper
1000mg of Curcumin twice a day
probiotics
fish oil-3
coral calcium
multivitamin
yellowdock
iron
Colazal 3x3 a day *crosses fingers this will work*


quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 12/2/2007 1:58 AM (GMT -7)   
Please do ask the doc about the antispasmodics and the rectal meds....really!
If eventually the discomfort doesn't improve, maybe ask the doc to consider an ultrasound to check that nothing more is going on.  When was your son's last c-scope? 
Is his UC limited or throughout?
 

Just to add to Robert K's explaination and to clarify.........pain and inflammation don't always coincide. There are people with IBS and have horrific pains and discomfort...especially in the lower left quadrant (llq) and rectum...and they have no inflammation.

Pain can be caused by spasming.....gas can cause horrific pain and discomfort.

There are some patients who have severe active inflammation and few symptoms of discomfort...others have very mild inflammation and severe discomfort.
 
quincy


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 12/2/2007 2:04:35 AM (GMT-7)


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 12/2/2007 7:04 AM (GMT -7)   
Well, my gut opinion is that he pulled a muscle last weekend shooting lacrosse balls with a friend. The pain came on suddenly, after he went to shoot, and the spot was pretty high up on his side. Ibuprofen did the trick. The only time the pain became intense was when the GI said no ibuprofen. Since the doctor changed his mind about temporary use, 2 pills, and some time on the heating pad, he was back to his old self. All his friends came to watch the football playoffs, then out for a bite, home at 11:00. Just like normal. The two days without the ibuprofen were the worst. His symptoms are already better after increasing his asacol to 12 per day. We do go back to the GI on December 20th for a sigmoidoscopy. His last colonoscopy was last Oct. 2006. We just switched to an adult GI this week, so I guess he wants to take a peek himself :) We will get through this.
Thanks for all your concern.

gmasusie
Regular Member


Date Joined Nov 2007
Total Posts : 30
   Posted 12/2/2007 5:21 PM (GMT -7)   
Hello  This past summer I was having pain on my lower left side...turns out it was an abcess.
It kept getting worse over a weeks time.

Robert.K
Regular Member


Date Joined Nov 2007
Total Posts : 137
   Posted 12/2/2007 5:33 PM (GMT -7)   
quincy said...
Please do ask the doc about the antispasmodics and the rectal meds....really!
If eventually the discomfort doesn't improve, maybe ask the doc to consider an ultrasound to check that nothing more is going on.  When was your son's last c-scope? 
Is his UC limited or throughout?
 

Just to add to Robert K's explaination and to clarify.........pain and inflammation don't always coincide. There are people with IBS and have horrific pains and discomfort...especially in the lower left quadrant (llq) and rectum...and they have no inflammation.

Pain can be caused by spasming.....gas can cause horrific pain and discomfort.

There are some patients who have severe active inflammation and few symptoms of discomfort...others have very mild inflammation and severe discomfort.
 
quincy

Assuming you're right, it looks like a spoke too soon. I assumed that increased pain was necessarily associated with increased inflammation/stenosis. I didn't think a UC patients could have abdominal cramping rooted in his/her UC symptoms which WASN'T indicative of a worsening condition and increased inflammation.

UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 12/2/2007 5:34 PM (GMT -7)   
Hi. How did you find out it was an abcess? Just wondering.

kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 12/2/2007 7:16 PM (GMT -7)   
do not, do not, do not, do not, do not ever take ibuprofen or any other nsaid's with UC!!!!!!!!!!!!!!!!!!!!!!!!!!
 
they are the worse thing ever especially for those with IBD.
 
get some pain killers from the doctor. if darvocets dont work, get something stronger.
 
i have horrible excrutiating pain all on my left side and have been dealing with it for over a year now.
it wakes me up as well.
and on the toilet, im a moaning, sweating, shaking mess and in agonizing pain.
 
so yeah, pain is there on the left side and it could be just the UC or it could be something else as well.
he is not alone there.
 
but DO NOT give him any more ibuprofen EVER!!!!
 
 
steph - 31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only to splenic flexure. 
50mg prednisone 1x day with breakfast 5 weeks now.. will taper next week by 10mg every 5 days.
2x 500mg mesalazine 2x morning & night - colifoam enima 1x at night - 1/2 endone every 6 hours for pain
now taking calcium supps for pred side effects - got lots of those!
50mg imuran 1x day 8pm to have a baby - VSL#3 didnt work - Aloe Elite didnt work - Budesonide didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 12/2/2007 9:10 PM (GMT -7)   
My GI said it's okay to occasionally use NSAIDS. By occasionally, I mean he said I could take a couple Aleve a couple times a month. But, no, they should not be used for long-term pain management for UC patients.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 12/3/2007 4:51 AM (GMT -7)   
Thanks for your input. I know everyone is trying to help.

Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 12/3/2007 11:50 AM (GMT -7)   
kazygirl said...
do not, do not, do not, do not, do not ever take ibuprofen or any other nsaid's with UC!!!!!!!!!!!!!!!!!!!!!!!!!!


they are the worse thing ever especially for those with IBD.



get some pain killers from the doctor. if darvocets dont work, get something stronger.



i have horrible excrutiating pain all on my left side and have been dealing with it for over a year now.

it wakes me up as well.

and on the toilet, im a moaning, sweating, shaking mess and in agonizing pain.



so yeah, pain is there on the left side and it could be just the UC or it could be something else as well.

he is not alone there.



but DO NOT give him any more ibuprofen EVER!!!!


Who gave you your medical degree? If her/his doctor say's they can take Ibuprofen then thats what they can do.. None of the treatments for this stupid ailment are written in stone.. people do what people have to do.. What works for some does not work for others..

Take the Ibuprofen if the doctor advises and if the boy gets some relief.
Male 36yrs old. Indeterminate Colitis 6 yrs.


Pro-bio

Protonix
multi vitamin


Sideshowbob
Veteran Member


Date Joined Sep 2005
Total Posts : 698
   Posted 12/3/2007 1:48 PM (GMT -7)   
Hi UCMOM.

Left sided pain has been my constant companion for almost three years now. Even when I have no other symptoms I have the pain. Sometimes slight, sometimes it doubles me over. Not that I am suggesting this, but the one time I had some full release was when I was on tylenol 3 with codein after my surgery last February. It's touchy with those kind of meds, but when things are so bad we grasp for solutions.

As well, when on prednisone, the pain subsided substantially. But thats a slippery slope as well that many of us have traveled, and there are lots of side effects from the prednisone as well.

Hope you son feels better soon. :)
35 year old Male, Husband, Father of the best three kids in the universe.
First Flare was February 2005. Diagnosed June 2005-left-sided Colitis, suspect it has since spread. Started 4000 mg Oral Salofalk June 2005-stopped January 2007. Remission until November 2006. Been in a flare to various degrees since November 2006 to February 2007. Currently in remission.
Presently on 0 mg Prednisone-down from 60 mg!
Weekly 4000 mg Salofalk enemas.
Daily 4000 mg Salofalk oral.
Started Omeprazole 20 mg February 2007.
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