Ok, here's the story so far:
I'm 33 years old, 3 kids and work as a police officer in Edinburgh.
I started having terrible diarrhoea around the 20th of October.
I went to my Docs on the 8th November and he arranged for a stool sample.
It didn't get any better at all and about
2 weeks later I noticed the diarrhoea had turned to blood....lots of blood!
I ignored it (yes, stupid) and then my other half noticed blood coming through my clothes. An appointment was made at the docs and I even showed him a pic of the bloody 'movement' (aren't mobile phones great).
He told me he would refer me and I would probably have a colonoscopy
2 weeks passed and nothing happened. I was getting very ill, had been passing nothing but blood (at least to the eye) for several weeks and had lost half a stone in a week (now a full stone).
I just happened to be at another appointment with a cardiologist for something else when I told her about
the bleeding in case it was pertinent.
She had, what would best be described as, quite a 'reaction' to the length of time I had been waiting!
I was packed immediately off to the A&E at the New Royal Infirmary in Edinburgh and lots of tests.
From there to The Western General Hospital, Edinburgh. This was Wednesday 28th November. I was really quite ill by this point, wondering what was going on.
I had a colonoscopy
on Fri pm (arse now like a wizard's sleeve, thanks for that), and sent to the GI Ward, still in the Western.
I was put on: prednisolone
Pentasa Tablets 4000mg/day
Adcal D3 2 tablets/day
Pentasa Enema 1/day (for 7 days)
I looked at the pics from the colonoscopy
and was told I had ulcerative colitis. They had taken biopsies from the rectum, left side and the very end of the colon. The rectum and left side were ulcerated and the very end was inflamed.
I spent 5 days in hospital and was discharged.
I was told an IBD specialist nurse would phone me on Monday or Tuesday of last week, and I would get an appointment with the consultant in about
The nurses never phoned and every time I try I'm told they're not answering their pagers and you can't leave a message.
I've also never been told the results of my biopsies.
I've read a lot on UC since coming home (as you can imagine!) and I want to know if it's left sided or pancolitis. One of the Dr's thought left sided, but if it was inflamed at the end, isn't that pancolitis?!
I kind of feel a bit lost with it all/no information and can't wait to see my consultant.
I seen my GP the other day for more drugs and he was very apologetic regarding the delay (booking mess up apparently), though it turns out it was the wrong place anyway!
I feel not too bad in myself, though tired. Eating loads.
The main question I have, and would be grateful if anyone could advise me here, is I thought everything was going back to normal:
A couple of days ago I had a proper, solid movement...I was over the moon!
Then, last night, I had an 'accident' but it was pretty much clear liquid/mucus?
I've just been to the loo this morning and I'm back to diarrhoea and lots of blood VIEW IMAGE
Can anyone tell me is this normal? Is it part of the usual healing process?
I'm concerned that the previous indication would suggest the colon was healing very well, and now it's bleeding a lot again.
Any advice greatly