Remicade Question:

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

jamo0001
Regular Member


Date Joined Apr 2007
Total Posts : 75
   Posted 12/1/2007 10:51 AM (GMT -6)   
I've found that starting about 7-10 days prior to my infusions of Remicade, I start experiencing loose bowels and slight bleeding; it stops within 1-2 days after the infusion, though.

Anyone else experience this?
James

21 yrs old, diagnosed severe pan ulcerative colitis 2 Mar 2007
Hospitalized 27 Apr-5 May 2007
Remission since 4 July 2007
Asacol (mesalamine) 400 mg x 12 daily
Remicade <--first infusion on 3 May 2007; currently once every 8 weeks
Imuran (azathioprine) 50 mg x 2 daily
Eating fruits and vegetables like there is no tomorrow...
"God bless Remicade!"


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 12/1/2007 11:01 AM (GMT -6)   
The only time I had any loosening was when I got so busy I was about ten days late on my infusion. I do know some people are on a six-week schedule, so you might want to discuss this with your GI.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 12/1/2007 11:12 AM (GMT -6)   
I notice things loosening up a few days to a week before my infusions, but no bleeding. My GI has suggested that I can switch to 7 weeks if necessary, but I don't have any blood or anything during that time. If I did, I'd go ahead and switch to every 7 weeks.
Current Meds www.myspace.com/gardenerjames

Asacol 4 tabs 2x daily
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
Omega-3 once daily
Tenth Remicade infusion Early December


Robert.K
Regular Member


Date Joined Nov 2007
Total Posts : 137
   Posted 12/1/2007 5:48 PM (GMT -6)   
A good friend of mine who suffers from Crohn's Disease experiences a similar progressio of her symptoms towards the last week before her next infusion. I am plaaning on beginning Remicade treatment for my UC as soon as possible, and I will update this thread as my experiences develop. I'm hoping Remicade will provide the answer I've been looking for.

jamo: When I read in your signature that you're scarfing down fruits and vegetables, it makes me jealous! I think I'm going to go murder a huge salad right now, I don't care how sick I get from it :-)

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 12/1/2007 9:53 PM (GMT -6)   
My celebration after my fourth Remicade infusion was a Cobb salad for lunch. But I still eat things like that maybe once a week rather than every day. Even before I had UC symptoms, too much fiber could give me cramping and D.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


Robert.K
Regular Member


Date Joined Nov 2007
Total Posts : 137
   Posted 12/1/2007 11:27 PM (GMT -6)   
What's a Cobb salad?

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 12/2/2007 2:37 AM (GMT -6)   
Cobb salad is a bit like chef salad. It has diced tomatoes, avocado, bleu cheese, hard boiled egg and sometimes bacon crumbles arranged on a big bed of mixed greens. It's one of those meal salads. I love them, and hadn't had one for more than four years.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


jamo0001
Regular Member


Date Joined Apr 2007
Total Posts : 75
   Posted 12/4/2007 12:30 PM (GMT -6)   
Thanks all. I'll try to catch my doc this Friday and ask him about trying a 7-week rotation (I didn't know such things existed).

I hope all of you guys are doing alright; I've been bad about not coming back to the board since I went into remission this summer.

If you're having troubles, keep you head up; UC is tough, but you can beat it!

NEVER settle for anything less than complete remission...
James

21 yrs old, diagnosed severe pan ulcerative colitis 2 Mar 2007
Hospitalized 27 Apr-5 May 2007
Remission since 4 July 2007
Asacol (mesalamine) 400 mg x 12 daily
Remicade <--first infusion on 3 May 2007; currently once every 8 weeks
Imuran (azathioprine) 50 mg x 2 daily
Eating fruits and vegetables like there is no tomorrow...
"God bless Remicade!"

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, July 19, 2018 2:34 PM (GMT -6)
There are a total of 2,983,270 posts in 327,097 threads.
View Active Threads


Who's Online
This forum has 161903 registered members. Please welcome our newest member, bail1234.
430 Guest(s), 14 Registered Member(s) are currently online.  Details
Balladeer, 81GyGuy, mattamx, PDL17, Dahlias, tickbite666, GoHerd92, Libertee, Dmarie8, Hibee, InTheShop, quincy, bail1234, borborygmi