Remicade Question:

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jamo0001
Regular Member


Date Joined Apr 2007
Total Posts : 75
   Posted 12/1/2007 8:51 AM (GMT -7)   
I've found that starting about 7-10 days prior to my infusions of Remicade, I start experiencing loose bowels and slight bleeding; it stops within 1-2 days after the infusion, though.

Anyone else experience this?
James

21 yrs old, diagnosed severe pan ulcerative colitis 2 Mar 2007
Hospitalized 27 Apr-5 May 2007
Remission since 4 July 2007
Asacol (mesalamine) 400 mg x 12 daily
Remicade <--first infusion on 3 May 2007; currently once every 8 weeks
Imuran (azathioprine) 50 mg x 2 daily
Eating fruits and vegetables like there is no tomorrow...
"God bless Remicade!"


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 12/1/2007 9:01 AM (GMT -7)   
The only time I had any loosening was when I got so busy I was about ten days late on my infusion. I do know some people are on a six-week schedule, so you might want to discuss this with your GI.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 12/1/2007 9:12 AM (GMT -7)   
I notice things loosening up a few days to a week before my infusions, but no bleeding. My GI has suggested that I can switch to 7 weeks if necessary, but I don't have any blood or anything during that time. If I did, I'd go ahead and switch to every 7 weeks.
Current Meds www.myspace.com/gardenerjames

Asacol 4 tabs 2x daily
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
Omega-3 once daily
Tenth Remicade infusion Early December


Robert.K
Regular Member


Date Joined Nov 2007
Total Posts : 137
   Posted 12/1/2007 3:48 PM (GMT -7)   
A good friend of mine who suffers from Crohn's Disease experiences a similar progressio of her symptoms towards the last week before her next infusion. I am plaaning on beginning Remicade treatment for my UC as soon as possible, and I will update this thread as my experiences develop. I'm hoping Remicade will provide the answer I've been looking for.

jamo: When I read in your signature that you're scarfing down fruits and vegetables, it makes me jealous! I think I'm going to go murder a huge salad right now, I don't care how sick I get from it :-)

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 12/1/2007 7:53 PM (GMT -7)   
My celebration after my fourth Remicade infusion was a Cobb salad for lunch. But I still eat things like that maybe once a week rather than every day. Even before I had UC symptoms, too much fiber could give me cramping and D.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


Robert.K
Regular Member


Date Joined Nov 2007
Total Posts : 137
   Posted 12/1/2007 9:27 PM (GMT -7)   
What's a Cobb salad?

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 12/2/2007 12:37 AM (GMT -7)   
Cobb salad is a bit like chef salad. It has diced tomatoes, avocado, bleu cheese, hard boiled egg and sometimes bacon crumbles arranged on a big bed of mixed greens. It's one of those meal salads. I love them, and hadn't had one for more than four years.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 
"If you spend your time second-guessing your past decisions, you'll never have time to enjoy today."


jamo0001
Regular Member


Date Joined Apr 2007
Total Posts : 75
   Posted 12/4/2007 10:30 AM (GMT -7)   
Thanks all. I'll try to catch my doc this Friday and ask him about trying a 7-week rotation (I didn't know such things existed).

I hope all of you guys are doing alright; I've been bad about not coming back to the board since I went into remission this summer.

If you're having troubles, keep you head up; UC is tough, but you can beat it!

NEVER settle for anything less than complete remission...
James

21 yrs old, diagnosed severe pan ulcerative colitis 2 Mar 2007
Hospitalized 27 Apr-5 May 2007
Remission since 4 July 2007
Asacol (mesalamine) 400 mg x 12 daily
Remicade <--first infusion on 3 May 2007; currently once every 8 weeks
Imuran (azathioprine) 50 mg x 2 daily
Eating fruits and vegetables like there is no tomorrow...
"God bless Remicade!"

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