Thinking im gonna have to stop the colazal

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butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 12/2/2007 4:36 PM (GMT -7)   
Ok guys i need your advice again.  I told you all that i started having watery diarrhea a week ago when i caught a stomache virus from my son.  Well i have to go back to work tomorrow and im not improving.  Im beginning to think it could be the colazal too. Ive almost been taking the colazal for 2 weeks.  Im thinking im gonna stop the colazal.  Should i try canasa supp or mesamalamine enemas?  Remember i had terrible bloody diarrhea and abdominal pain with asacaol, i was so hoping the colazal would work.  Every time i go out of the house i have an accident in my pants, i gotta get my stool to form and control of the urgency.  If this happens to me at work tomorrow im quitting my job!(like i can really afford to do that!)
 
20 yrs uc
ativan
ambien
vicodin
3 colazal a day

Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 12/2/2007 5:13 PM (GMT -7)   

You may need to give the Colazal a bit more time to have an effect and if asacol was not working for you then what other options have you considered?  There are many options out there (..such as lialda, remicade....) so maybe you should discuss them with your GI specialist. 

Also, I agree with Heather/Quincy's point about treating UC from both ends (thanks for the prudent advice Heather).  After consulting with my doc I have started taking cortifoam to supplement the Colazal treatment and try to get the UC into remission asap. 

Have you considered wearing a 'depends' at work till you are able to get the d under control? At least that way you can still continue working.

Also, do you think you might benefit from a second opinion from another GI specialist regarding your treatment, especially the low dosage of colazal compared to the high dosage of asacol that you were on previously?


Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6-week) tapered course of Pred in 10/07, flaring up since coming off it.
Currently on: 12 x 750mg Colazal (6 - twice a day).  
Diet: Cut out caffeine and alcohol after diagnosis.  Been vegetarian for many years.  Low dairy, low carb, and avoiding foods that are processed, fried, spicy, acid forming, fungal, contain yeast (i.e. I don't have a life, but desperate times call for desperate measures!).


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 12/2/2007 5:21 PM (GMT -7)   
Rio
Ive been wearing diapers, even at home. This morning it was awful, i walked out side and couldnt even make it back into the house and the diarrhea was running down my legs right through the diaper. Im scheduled to go to a gi at Cedars-Sinai January 16 and i have an appt. with the gi that put me on the low dose of colazal Tuesday. How are you doing on the Colazal? Do you have formed stools? No urgency? Boy im beginning to wonder if im ever gonna get better. Im gonna call the gi in the morning and tell him whats going on. Thanks for your response and advice.

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 12/2/2007 5:23 PM (GMT -7)   
If you do decide to go off the Colazal please make sure to taper. I went off it cold turkey and it threw me into a horrible flare. I was going to suggest you see your GI but it sounds like you have that covered.

Wait...I think I remember now. You are only on 3 Colazal and you are flaring?
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-6 a day, Acidopholis Pearls, Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


quincy
Elite Member


Date Joined May 2003
Total Posts : 29842
   Posted 12/2/2007 7:01 PM (GMT -7)   
Hi...definitely do the rectal meds...whatever they are...start them, or at least give them a fair try.

I agree with Tabitha...you've gone cold turkey from one med to a low dosage of another. Either you need to up them or go off them...

Call your doc and see if you can take an imodium in the mornings...it'll at least give you some sense of security to slow the bowel down a bit.

Have you been tested for microscopic colitis?

I agree you need to see another GI.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 12/2/2007 7:08 PM (GMT -7)   

Butterfly,

Not a problem at all and good to hear that you're getting a second opinion at Cedars-Sinai and also seeing your regular GI doc soon.  I've realized that I need to get a lot more proactive in dealing with UC and it's great that you're doing the same. 

I've been on Colazal for less than 2 weeks so will give it a bit more time - I'm still seeing slight blood and mucous but am having formed BM's (I was typically having formed BM's on asacol too but the slight bleeding and mucous was not ending so that's why I decided to switch).  The urgency is still there.

Aside from wearing diapers (and watching what you eat) I'm not sure what else you could do to make sure you're fine at work.  Hopefully someone else on the forum can offer some advice on this.

Hope things get under control soon.


Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6-week) tapered course of Pred in 10/07, flaring up since coming off it.
Currently on: 12 x 750mg Colazal (6 - twice a day).  
Diet: Cut out caffeine and alcohol after diagnosis.  Been vegetarian for many years.  Low dairy, low carb, and avoiding foods that are processed, fried, spicy, acid forming, fungal, contain yeast (i.e. I don't have a life, but desperate times call for desperate measures!).


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 12/2/2007 7:27 PM (GMT -7)   
Rio
You state you dont have a life, do you work?The reason im asking is i basically have no life either other than trying to work. This is my worst flare ever and ive been off all month getting a whole 55 dollars a day disability.(better than nothing) But im considering trying to get Soc. Security Disability if i dont get better soon and cant go back to work. I just wondered if we qualify with uc and if maybe you knew. Thanks for your advice and i plan on taking it. I think if i would have been consistent with my meds and such in the past maybe i wouldnt be having such a hard time now. I have no choice now that im so sick but to realize the realness and seriousness of uc and that you have to take meds, like it or not you have to or your gonna be sicker.

uc 20 yrs
colazal 3 a day
ambien
ativan
vicodin
Currently in worse flare every over a month now
Have been flaring and not complying with meds for allmost 4 years now!Noone to blame but myself.

julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 12/2/2007 9:08 PM (GMT -7)   
Hey Butterfly,

I'm so sorry that you're set to resume work and it's such bad timing with the flare. Is there any chance your employer will just give you more time, regardless of what the disability rules are? (I don't really know how disability works.)

Please, there's no sense in blaming yourself for any of this! It's a bad situation now but you've gotten this far and stayed sane. That's a huge feat.

When I went off my medication for a while and then returned to my doctor with a flare, she was really nice about it and said, "OK, now we know that without the meds you can go about 3 months and then you flare. Let's see if the meds can get you more than 3 months of remission." It was very nice that she took my actions and basically said -- ok, that's the control for our study; let's try to do better now with medication.

So you could look at it that way. No taking the meds might not have made any difference to this flare. You just never know.

My non-expert comments on your meds --
1) I'd try a cortisone enema at night. That could maybe help the urgency.
2) Imodium (suggested above) Lomotil or something else to slow your gut down might help.
3) If you're going to take vicodin for pain, ask your doc about switching to codeine temporarily. (If you don't have any concerns about addictions to any of these things.) I don't know about the vicodin, but codeine's side effect of constipation slows my gut down a lot. Maybe vicodin does the same? How much are you taking? Between the ambien, ativan, and vicodin I hope you're being REALLY careful. Do you write down when you take them? You don't want to accidentally double dose those combos, I don't think. (This is just me talking like an over-protective mom. And I don't even have kids!)

Glad you have the appt in January. Is there any chance they can make it earlier if it's really urgent? Maybe there's a waitlist....

take care. Sending lots of good wishes
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 12/2/2007 9:30 PM (GMT -7)   
Juliee70
The crazy thing is that ive been taking lomotil and immodium and am still having diarrhea. My md prescribed the lomotil when i got the stomache virus. My md prescribed the vicodin because of back pain and he said he thought it would help my uc because it does constipate. Now as for how much i take, im afraid of addiction so i take a half three times a day and the ativan 3 times a day and the ambien 1 at night. My enemas are mesamalamine, is that the same?Thats the soonest i can get into Cedars Sinai but i will call to see if there is a waiting list. I do have fmla so my boss would have to let me off but they do want me to hurry and come back and im not getting much on disability and i live with my mom and things are getting tense at home. I so hate being sick. Your response and concern are much appreciated. I just wish this diarrhea would go away.Ive never had it like this, this is new to me.

julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 12/2/2007 10:55 PM (GMT -7)   
Hi again,

Well, the vicodin should be helping, then. How frustrating that it's not. I usually see the codeine helping in about a week if I take one pill a night. (I don't know the dose, but I think it's sort of a normal low dose.)

I've found that the lomotil helps me most if I take it about a 1/2 hour before eating.

The enemas you have (I believe) are the same kind of medicine as the Colazol and the Asacol. So... if you are super-sensitive to that drug, you're getting some more of it, although it's obviously being absorbed differently and lower down.

The cortisone enemas are also called steroid enemas. Last I used them (a few years ago) the brand was called Cortenema. It's stronger than the Cortifoam that I've mentioned before, which is a steroid foam. I'm actually thinking of asking about Cortenemas for myself if my bleeding doesn't stop soon. Steroids, while not fab for your body in the long term, work fast and well. In the enema, the risk is far less than taking Prednisone, the oral steroid.

To me, this sounds like your best option because it might get you some relief faster. As long as you're using an enema, why not use the one with the strongest medicine? I wouldn't worry about the steroid risk. You're just trying to get through until January and then you can re-assess your treatment with the Cedars doctors.

Hey, by the time you get there, you'll be an expert and you'll be able to tell them that you've tried everything!
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 12/3/2007 12:57 PM (GMT -7)   
Julee70
Ok im having a really hard time right now. Im honestly beginning to think its the colozal. Im not having bleeding or cramping just terrible tummy gurgling, diarrhea and nausea. I have a call into my gi, his nurse is supposed to call me back, i told her whats going on and shes paging him and is supposed to call me back. I didnt go to work today because of the diarrhea. Im reallly not feeling well today. I feel a bit hopeless.

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 12/3/2007 1:00 PM (GMT -7)   
Hang in there! Let us know what the GI says.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 12/3/2007 1:17 PM (GMT -7)   
Thanks tjf. Ill let you know. Appreciate you being there.
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