I've been in this awful flare for over a month now. Doc is trying to adjust meds and I'm back up to 40 mg pred, which I know will eventually kick in, but is never quick for me. Anyway, my days are okay, going maybe 3 to 5 times throughout, but the nights are absolutely dreadful. I'm up every 2 hours, sometimes every hour with sort of a constipation/diarrhea thing (if that makes any sense) complete with cramps, bleeding, body ache afterward. Why the heck are the nights so much worse? Any thoughts on how I can switch this up? Not that I want to be running to bathroom all day, but I need some sleep.
omg... i read this and had some kind of identity crisis for a second cuz that is EXACTLY what i am going through right now AND my name is stephanie. weird!!!
my flare has been a over year though. i am currently on 40mg of pred and i have to take it in the morning with my breakfast. BUT this is anytime between 9am and 11.30am. im not very spot on with taking it at the exact same time every day.
for sleep, my dr has prescribed tomazepam while on the pred. since it gives me insomnia on top of the waking up every hour or 2 to go the can. i tried the antihistamine over the counter kind of sleeping pill but they make me super drowsy all day the next day as well as give me the shakes (unless thats the pred). the tomazepam is good, i fall asleep and next day have no effects.
i also helps to fall back asleep for the short amount of time until the next trip to the can.
i take my mesalazine in the morning and night
and i try to give myself cortifoam enimas at night, but it is just so hard because my night time bm is just the beginning. i go so much how can it even do any good if i just crap it out an hour later. plus the pain from going doesnt help me wanting to insert anything into my poor tender sphincter!
sometimes in the evening, even before bed, when i go to the can, i am laid out for like an hour. it takes a while to recover from the pain. i have to lay down and not move. then when i do move, back to the bloody can (pardon the pun)
lol.. i have a small electric space heater in my bathroom pointed at the toilet and a jumper(sweatshirt) to put on whenever i go to the can at night. and lots of magazines. but it is pretty miserable anyway.
i stay away from imodium cuz i had a bad experience with it on the plane.. had all the horrible symptoms of having to go and the pain, cramping etc... but nothing came out. it was miserable. never doing that again.. but thats me.
i have a big seminar thing going on this friday saturday and sunday from 9am -10pm and i am freakin out how i will manage to get my money's worth if i spend the evenings in the toilet rather than the forum.
any suggestions on what to snack on as we get a 30min break every 2-3hours???
snacks that will hopefully keep me out of the restrooms for as long as possible. i should be right during the day, but it is after 5pm that things just go crappy!
steph - 31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only to splenic flexure.
50mg prednisone 1x day with breakfast 5 weeks now.. will taper next week by 10mg every 5 days.
2x 500mg mesalazine 2x morning & night - colifoam enima 1x at night - 1/2 endone every 6 hours for pain
now taking calcium supps for pred side effects - got lots of those!
50mg imuran 1x day 8pm to have a baby - VSL#3 didnt work - Aloe Elite didnt work - Budesonide didnt work
ive lost 40+lbs and my legs look like sticks ... ewww